Integrated Care for People Living With Rare Disease: A Scoping Review on Primary Care Models in Organization for Economic Cooperation and Development Countries

Introduction/Objectives: Individually rare, rare diseases are collectively common resulting in frequent health system use. Navigating the health system persists as a challenge. Primary care provides longitudinal contact with the health system and is placed to provide integrated rare-disease-care. Me...

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Bibliographic Details
Main Authors: Nada Vidic, Anna McGlynn, Fatemeh Abdi, Chun Wah Michael Tam, Reginald Michael Crampton, Kean-Seng Lim, Elizabeth Emma Palmer, Natalie Taylor, Ben Harris-Roxas
Format: Article
Language:English
Published: SAGE Publishing 2025-01-01
Series:Journal of Primary Care & Community Health
Online Access:https://doi.org/10.1177/21501319241311567
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