Management of rare and undiagnosed diseases: insights from researchers and healthcare professionals in Türkiye

Management of rare and undiagnosed diseases: insights from researchers and healthcare professionals in Türkiye

IntroductionDiagnosis, treatment and management of rare diseases (RD) pose unique challenges due to their complex nature, significantly impacting the daily experiences of researchers and healthcare professionals working in this field. Despite increasing awareness and progress in the field of RD worl...

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Bibliographic Details
Main Authors: Sinem Durmus, Emrah Yucesan, Sinem Aktug, Begum Utz, Ahmet Okay Caglayan, Pinar Gencpinar, Cagatay Günay, Yavuz Oktay, Ravza Nur Yildirim, Ayca Yigit, Ugur Ozbek
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-01-01
Series:Frontiers in Public Health
Subjects:
RareBoost
rare disease
survey
Türkiye
undiagnosed disease
unmet needs
Online Access:https://www.frontiersin.org/articles/10.3389/fpubh.2024.1501942/full
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https://www.frontiersin.org/articles/10.3389/fpubh.2024.1501942/full

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