Assessing the influence of lived-experience experts on healthcare providers in a virtual community of practice: a qualitative study

Assessing the influence of lived-experience experts on healthcare providers in a virtual community of practice: a qualitative study

Long COVID, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and other poorly understood post-acute infection syndromes (PAIS) can present with unexplained symptoms or conditions that may be misunderstood by healthcare providers, causing delays in diagnosis and care. To address these iss...

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Bibliographic Details
Main Authors: Stephanie Sargent Weaver, Monique Carry, Jeanne Bertolli, Job Godino, Bruce Struminger, Douglas Taren, John D. Scott, Sydney P. Sharp, Jane Samaniego, Donna R. Bean, Anindita Issa, Jin-Mann S. Lin, Elizabeth R. Unger, Christian B. Ramers
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-06-01
Series:Frontiers in Health Services
Subjects:
Long COVID
myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
post-acute infection syndromes (PAIS)
Extension for Community Healthcare Outcomes (ECHO) learning model
lived-experience experts
qualitative evaluation
Online Access:https://www.frontiersin.org/articles/10.3389/frhs.2025.1562651/full
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https://www.frontiersin.org/articles/10.3389/frhs.2025.1562651/full

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