Achieving reliable patient reported outcomes collection to measure health care improvement in a learning health network: lessons from pediatric rheumatology care and outcomes improvement network

Achieving reliable patient reported outcomes collection to measure health care improvement in a learning health network: lessons from pediatric rheumatology care and outcomes improvement network

IntroductionData from the Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN) registry suggests that reliable collection of patient-reported outcomes (PROs) varies across sites. The objective of this study was to better understand the practices of collecting PROs at PR-COIN sites....

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Bibliographic Details
Main Authors: Nancy Pan, Esi M. Morgan, Meghan Ryan, Beth Gottlieb, Julia G. Harris, Tzielan Lee, Y. Ingrid Goh
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-01-01
Series:Frontiers in Pediatrics
Subjects:
patient reported outcomes
pediatric rheumatology
quality of life
outcome measures
juvenile idiopathic arthritis
Online Access:https://www.frontiersin.org/articles/10.3389/fped.2024.1443426/full
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https://www.frontiersin.org/articles/10.3389/fped.2024.1443426/full

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