Treatment goals and preferences of pediatric psoriasis patients, young adults, and parents
Background Treatment needs of young psoriasis patients and parents are not widely studied and could advance patient-centered care.Objective To explore treatment goals and preferences of pediatric psoriasis patients, young adults, and parents.Methods A web-based survey among Dutch psoriasis patients...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2022-07-01
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| Series: | Journal of Dermatological Treatment |
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| Online Access: | https://www.tandfonline.com/doi/10.1080/09546634.2021.1985058 |
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| author | Mirjam J. Schaap Susanne C. E. Broekhuis Saskia Spillekom-van Koulil Hans M. M. Groenewoud Elke M. G. J. de Jong Marieke M. B. Seyger |
| author_facet | Mirjam J. Schaap Susanne C. E. Broekhuis Saskia Spillekom-van Koulil Hans M. M. Groenewoud Elke M. G. J. de Jong Marieke M. B. Seyger |
| author_sort | Mirjam J. Schaap |
| collection | DOAJ |
| description | Background Treatment needs of young psoriasis patients and parents are not widely studied and could advance patient-centered care.Objective To explore treatment goals and preferences of pediatric psoriasis patients, young adults, and parents.Methods A web-based survey among Dutch psoriasis patients aged ≥6 to ≤30 years and parents included multiple-choice, open-ended, and 4-point Likert scale questions. Treatment goals and characteristic preferences of pediatric patients (≤17 years) were compared to young adults (≥18 years) and parents.Results 195 young patients (20.2 ± 6.3 years) and 45 parents were included. The most important treatment goals were ‘preventing lesions’, ‘reducing lesions’, ‘no itch’, and ‘no lesions’. Regarding treatment characteristics, ‘long-term safety’, ‘high effectiveness’, and ‘short-term safety’ were most important. We found differences by age, gender, and current treatment. Pediatric patients rated ‘not sticky’, ‘quick results’, and ‘no/few blood samples needed’ higher than parents and/or young adults. Young adults rated ‘feeling more confident’ and ‘better quality of sleep’ higher than pediatric patients. Parents considered safety most important. Psychosocial goals were more important for women and patients on biologics.Conclusion Young psoriasis patients and parents mainly strive to clear lesions and itch with effective and safe treatment. However, revealed differences underline the relevance of addressing individual needs. |
| format | Article |
| id | doaj-art-c2fe9ce8704149cb9db3544ec8ab1f38 |
| institution | Kabale University |
| issn | 0954-6634 1471-1753 |
| language | English |
| publishDate | 2022-07-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | Journal of Dermatological Treatment |
| spelling | doaj-art-c2fe9ce8704149cb9db3544ec8ab1f382025-02-05T19:02:55ZengTaylor & Francis GroupJournal of Dermatological Treatment0954-66341471-17532022-07-013352527253310.1080/09546634.2021.1985058Treatment goals and preferences of pediatric psoriasis patients, young adults, and parentsMirjam J. Schaap0Susanne C. E. Broekhuis1Saskia Spillekom-van Koulil2Hans M. M. Groenewoud3Elke M. G. J. de Jong4Marieke M. B. Seyger5Department of Dermatology, Radboud University Medical Center, Nijmegen, The NetherlandsDepartment of Dermatology, Radboud University Medical Center, Nijmegen, The NetherlandsDepartment of Dermatology, Radboud University Medical Center, Nijmegen, The NetherlandsDepartment for Health Evidence, Radboud University, Nijmegen, The NetherlandsDepartment of Dermatology, Radboud University Medical Center, Nijmegen, The NetherlandsDepartment of Dermatology, Radboud University Medical Center, Nijmegen, The NetherlandsBackground Treatment needs of young psoriasis patients and parents are not widely studied and could advance patient-centered care.Objective To explore treatment goals and preferences of pediatric psoriasis patients, young adults, and parents.Methods A web-based survey among Dutch psoriasis patients aged ≥6 to ≤30 years and parents included multiple-choice, open-ended, and 4-point Likert scale questions. Treatment goals and characteristic preferences of pediatric patients (≤17 years) were compared to young adults (≥18 years) and parents.Results 195 young patients (20.2 ± 6.3 years) and 45 parents were included. The most important treatment goals were ‘preventing lesions’, ‘reducing lesions’, ‘no itch’, and ‘no lesions’. Regarding treatment characteristics, ‘long-term safety’, ‘high effectiveness’, and ‘short-term safety’ were most important. We found differences by age, gender, and current treatment. Pediatric patients rated ‘not sticky’, ‘quick results’, and ‘no/few blood samples needed’ higher than parents and/or young adults. Young adults rated ‘feeling more confident’ and ‘better quality of sleep’ higher than pediatric patients. Parents considered safety most important. Psychosocial goals were more important for women and patients on biologics.Conclusion Young psoriasis patients and parents mainly strive to clear lesions and itch with effective and safe treatment. However, revealed differences underline the relevance of addressing individual needs.https://www.tandfonline.com/doi/10.1080/09546634.2021.1985058Psoriasisneedstreatment goalsyoung patientspediatricparents |
| spellingShingle | Mirjam J. Schaap Susanne C. E. Broekhuis Saskia Spillekom-van Koulil Hans M. M. Groenewoud Elke M. G. J. de Jong Marieke M. B. Seyger Treatment goals and preferences of pediatric psoriasis patients, young adults, and parents Journal of Dermatological Treatment Psoriasis needs treatment goals young patients pediatric parents |
| title | Treatment goals and preferences of pediatric psoriasis patients, young adults, and parents |
| title_full | Treatment goals and preferences of pediatric psoriasis patients, young adults, and parents |
| title_fullStr | Treatment goals and preferences of pediatric psoriasis patients, young adults, and parents |
| title_full_unstemmed | Treatment goals and preferences of pediatric psoriasis patients, young adults, and parents |
| title_short | Treatment goals and preferences of pediatric psoriasis patients, young adults, and parents |
| title_sort | treatment goals and preferences of pediatric psoriasis patients young adults and parents |
| topic | Psoriasis needs treatment goals young patients pediatric parents |
| url | https://www.tandfonline.com/doi/10.1080/09546634.2021.1985058 |
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