Experiences, impact, and enablers of involving young people and family caregivers in developing reporting guidelines for paediatric randomised trials: a case study

Experiences, impact, and enablers of involving young people and family caregivers in developing reporting guidelines for paediatric randomised trials: a case study

Abstract Background Patient and public involvement (PPI) is increasingly recognized as important, yet no guidance exists on integrating young people and family caregiver perspectives in the development of research reporting guidelines. We developed two paediatric-specific extensions with young peopl...

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Main Authors: Ami Baba, Maureen Smith, Jennifer Preston, Begonya Nafria Escalera, Segolene Gaillard, Pamela Dicks, Matthew Prebeg, Amanda Doherty-Kirby, Kimberly Courtney, Lynn Mendonza, Tanya Chute Nagy, Lotty Hooft, Martin Offringa
Format: Article
Language:English
Published: BMC 2025-07-01
Series:Research Involvement and Engagement
Subjects:
Reporting guideline
Clinical trial
Randomised controlled trial
Paediatrics
Children
Adolescents
Online Access:https://doi.org/10.1186/s40900-025-00751-x
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https://doi.org/10.1186/s40900-025-00751-x

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