Adapting a consensus process for survivors of domestic abuse and child maltreatment: a brief report about adopting a trauma-informed approach in multistakeholder workshops

Purpose Among health researchers, there is a growing appreciation of the importance of the involvement of service users and members of the public. This recognition has not only resulted in involvement guidelines and improved research ethics but also an increasing use of consensus processes with serv...

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Main Authors: Ruth Gilbert, Gene Feder, Eszter Szilassy, Katherine Cowan, Emma Howarth, Karen Johns, Alison Gregory, Ursula Lindenberg, Claire Powell
Format: Article
Language:English
Published: BMJ Publishing Group 2025-01-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/15/1/e090017.full
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author Ruth Gilbert
Gene Feder
Eszter Szilassy
Katherine Cowan
Emma Howarth
Karen Johns
Alison Gregory
Ursula Lindenberg
Claire Powell
author_facet Ruth Gilbert
Gene Feder
Eszter Szilassy
Katherine Cowan
Emma Howarth
Karen Johns
Alison Gregory
Ursula Lindenberg
Claire Powell
author_sort Ruth Gilbert
collection DOAJ
description Purpose Among health researchers, there is a growing appreciation of the importance of the involvement of service users and members of the public. This recognition has not only resulted in involvement guidelines and improved research ethics but also an increasing use of consensus processes with service users and members of the public to determine research priorities and questions and to agree outcomes to be measured in intervention studies. There is, however, limited advice about how to safely involve survivors of violence and abuse in consensus-based studies.Methods/results This commentary provides an overview of the adaptations made to a process of core outcome set development, to ensure that survivors of violence and abuse felt safe, heard and supported, and able to contribute in a meaningful way.Conclusions We advocate for an iterative process of listening to and learning from survivors, as well as buy-in from funders to ensure research studies are appropriately resourced and involve sufficient planning time.
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spelling doaj-art-ba5e0e84801b479697fa50f79fa2fea02025-01-23T06:05:09ZengBMJ Publishing GroupBMJ Open2044-60552025-01-0115110.1136/bmjopen-2024-090017Adapting a consensus process for survivors of domestic abuse and child maltreatment: a brief report about adopting a trauma-informed approach in multistakeholder workshopsRuth Gilbert0Gene Feder1Eszter Szilassy2Katherine Cowan3Emma Howarth4Karen Johns5Alison Gregory6Ursula Lindenberg7Claire Powell8Centre for Paediatric Epidemiology and Biostatistics, UCL Institute of Child Health, London, UKCommunity Based Medicine, University of Bristol, Bristol, UKCentre for Academic Primary Care, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UKKatherine Cowan Consulting Limited, St. Leonards-on-Sea, UKPsychology, University of Sussex, Brighton, UKVoices Charity, Bath, UKAlison Gregory Consultancy, Bristol, UKVoices Charity, Bath, UKInstitute of Child Health, University College London, London, UKPurpose Among health researchers, there is a growing appreciation of the importance of the involvement of service users and members of the public. This recognition has not only resulted in involvement guidelines and improved research ethics but also an increasing use of consensus processes with service users and members of the public to determine research priorities and questions and to agree outcomes to be measured in intervention studies. There is, however, limited advice about how to safely involve survivors of violence and abuse in consensus-based studies.Methods/results This commentary provides an overview of the adaptations made to a process of core outcome set development, to ensure that survivors of violence and abuse felt safe, heard and supported, and able to contribute in a meaningful way.Conclusions We advocate for an iterative process of listening to and learning from survivors, as well as buy-in from funders to ensure research studies are appropriately resourced and involve sufficient planning time.https://bmjopen.bmj.com/content/15/1/e090017.full
spellingShingle Ruth Gilbert
Gene Feder
Eszter Szilassy
Katherine Cowan
Emma Howarth
Karen Johns
Alison Gregory
Ursula Lindenberg
Claire Powell
Adapting a consensus process for survivors of domestic abuse and child maltreatment: a brief report about adopting a trauma-informed approach in multistakeholder workshops
BMJ Open
title Adapting a consensus process for survivors of domestic abuse and child maltreatment: a brief report about adopting a trauma-informed approach in multistakeholder workshops
title_full Adapting a consensus process for survivors of domestic abuse and child maltreatment: a brief report about adopting a trauma-informed approach in multistakeholder workshops
title_fullStr Adapting a consensus process for survivors of domestic abuse and child maltreatment: a brief report about adopting a trauma-informed approach in multistakeholder workshops
title_full_unstemmed Adapting a consensus process for survivors of domestic abuse and child maltreatment: a brief report about adopting a trauma-informed approach in multistakeholder workshops
title_short Adapting a consensus process for survivors of domestic abuse and child maltreatment: a brief report about adopting a trauma-informed approach in multistakeholder workshops
title_sort adapting a consensus process for survivors of domestic abuse and child maltreatment a brief report about adopting a trauma informed approach in multistakeholder workshops
url https://bmjopen.bmj.com/content/15/1/e090017.full
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