Primary Ciliary Dyskinesia Registry
Introduction:Primary ciliary dyskinesia (PCD) is a rare genetic disease that is estimated to occur in about 1 in 15,000 people. A patient registry is a well-known tool for collecting a sufficient number of patients with a rare disease to evaluate and monitor the patient’s information in a standard a...
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| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
| Published: |
Mashhad University of Medical Sciences
2024-01-01
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| Series: | Patient Safety and Quality Improvement Journal |
| Subjects: | |
| Online Access: | https://psj.mums.ac.ir/article_23843_734dfb3e73f478e9e24b56c0695bc6d2.pdf |
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