The potential impact of nonsuicidal self-injury disorder: Insights from individuals with lived experience

Nonsuicidal self-injury disorder (NSSI-D) is presently a condition for further study in the Diagnostic & Statistical Manual of Mental Disorders (DSM-5-TR) (American Psychiatric Association, 2022). While previous studies focused on NSSI-D through the lens of experts, there is a shortage of resea...

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Main Authors: Gregory J. Lengel, Brooke A. Ammerman, Keri-Anne Bell, Jason J. Washburn
Format: Article
Language:English
Published: PAGEPress Publications 2025-01-01
Series:Qualitative Research in Medicine & Healthcare
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Online Access:https://www.pagepressjournals.org/qrmh/article/view/12631
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author Gregory J. Lengel
Brooke A. Ammerman
Keri-Anne Bell
Jason J. Washburn
author_facet Gregory J. Lengel
Brooke A. Ammerman
Keri-Anne Bell
Jason J. Washburn
author_sort Gregory J. Lengel
collection DOAJ
description Nonsuicidal self-injury disorder (NSSI-D) is presently a condition for further study in the Diagnostic & Statistical Manual of Mental Disorders (DSM-5-TR) (American Psychiatric Association, 2022). While previous studies focused on NSSI-D through the lens of experts, there is a shortage of research that explores the potential impact of NSSI-D from the perspective of those most directly affected - individuals with NSSI lived experience. The present study aimed to expand this limited literature and provide a more enhanced and nuanced understanding of the potential implications and consequences of NSSI-D from lived experience viewpoints. Adults with lifetime NSSI history (N = 38) completed a semi-structured interview that surveyed perspectives on NSSID, including the meaning of officially recognizing NSSI-D, potential impacts of receiving an NSSI-D diagnosis, and the impact of NSSI-D on one’s decision to speak with a clinician. Results from our thematic analysis of the interview data suggested opinions about NSSI-D and its potential impact were generally positive (e.g., increased awareness, understanding, and validation, increased comfort with disclosing NSSI behavior, positive impacts on treatment, and improved functioning). Participants also highlighted potential concerns about the potential consequences of NSSI-D (e.g., negative self-perception, increased stigma, and concerns about the necessity and utility of NSSI-D), and some expressed neutral/indifferent opinions about NSSI-D. Overall, results provide valuable insights regarding potential implications and consequences of official recognition and diagnosis of NSSID and have relevant implications for client-clinician interactions. Results also highlight the importance and value of amplifying lived experience perspectives.
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spelling doaj-art-a78adadf347a485783cc8b2fd7542ff72025-01-23T10:55:57ZengPAGEPress PublicationsQualitative Research in Medicine & Healthcare2532-20442025-01-018s110.4081/qrmh.2024.12631The potential impact of nonsuicidal self-injury disorder: Insights from individuals with lived experienceGregory J. Lengel0Brooke A. Ammerman1Keri-Anne Bell2Jason J. Washburn3Department of Psychology & Neuroscience, Drake University, Des Moines, IADepartment of Psychology, University of Notre Dame, Notre Dame, INDepartment of Psychology, University of Notre Dame, Notre Dame, INDepartment of Psychiatry & Behavioral Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL Nonsuicidal self-injury disorder (NSSI-D) is presently a condition for further study in the Diagnostic & Statistical Manual of Mental Disorders (DSM-5-TR) (American Psychiatric Association, 2022). While previous studies focused on NSSI-D through the lens of experts, there is a shortage of research that explores the potential impact of NSSI-D from the perspective of those most directly affected - individuals with NSSI lived experience. The present study aimed to expand this limited literature and provide a more enhanced and nuanced understanding of the potential implications and consequences of NSSI-D from lived experience viewpoints. Adults with lifetime NSSI history (N = 38) completed a semi-structured interview that surveyed perspectives on NSSID, including the meaning of officially recognizing NSSI-D, potential impacts of receiving an NSSI-D diagnosis, and the impact of NSSI-D on one’s decision to speak with a clinician. Results from our thematic analysis of the interview data suggested opinions about NSSI-D and its potential impact were generally positive (e.g., increased awareness, understanding, and validation, increased comfort with disclosing NSSI behavior, positive impacts on treatment, and improved functioning). Participants also highlighted potential concerns about the potential consequences of NSSI-D (e.g., negative self-perception, increased stigma, and concerns about the necessity and utility of NSSI-D), and some expressed neutral/indifferent opinions about NSSI-D. Overall, results provide valuable insights regarding potential implications and consequences of official recognition and diagnosis of NSSID and have relevant implications for client-clinician interactions. Results also highlight the importance and value of amplifying lived experience perspectives. https://www.pagepressjournals.org/qrmh/article/view/12631Nonsuicidal self-injury disorderlived experienceDSMthematic analysis
spellingShingle Gregory J. Lengel
Brooke A. Ammerman
Keri-Anne Bell
Jason J. Washburn
The potential impact of nonsuicidal self-injury disorder: Insights from individuals with lived experience
Qualitative Research in Medicine & Healthcare
Nonsuicidal self-injury disorder
lived experience
DSM
thematic analysis
title The potential impact of nonsuicidal self-injury disorder: Insights from individuals with lived experience
title_full The potential impact of nonsuicidal self-injury disorder: Insights from individuals with lived experience
title_fullStr The potential impact of nonsuicidal self-injury disorder: Insights from individuals with lived experience
title_full_unstemmed The potential impact of nonsuicidal self-injury disorder: Insights from individuals with lived experience
title_short The potential impact of nonsuicidal self-injury disorder: Insights from individuals with lived experience
title_sort potential impact of nonsuicidal self injury disorder insights from individuals with lived experience
topic Nonsuicidal self-injury disorder
lived experience
DSM
thematic analysis
url https://www.pagepressjournals.org/qrmh/article/view/12631
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