Disclosure of Parental HIV Status to Children: Experiences of Adults Receiving Antiretroviral Treatment at an Urban Clinic in Kampala, Uganda
Limited data are available on the experiences of parental HIV disclosure to children in Uganda. We conducted a qualitative study comprising sixteen in-depth interviews and four focus group discussions with parents receiving highly active antiretroviral therapy. Analysis was done using Atlas.ti quali...
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| Format: | Article |
| Language: | English |
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Wiley
2017-01-01
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| Series: | AIDS Research and Treatment |
| Online Access: | http://dx.doi.org/10.1155/2017/3458684 |
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| author | Charles Peter Osingada Monica Okuga Rose Chalo Nabirye Nelson Kaulukusi Sewankambo Damalie Nakanjako |
| author_facet | Charles Peter Osingada Monica Okuga Rose Chalo Nabirye Nelson Kaulukusi Sewankambo Damalie Nakanjako |
| author_sort | Charles Peter Osingada |
| collection | DOAJ |
| description | Limited data are available on the experiences of parental HIV disclosure to children in Uganda. We conducted a qualitative study comprising sixteen in-depth interviews and four focus group discussions with parents receiving highly active antiretroviral therapy. Analysis was done using Atlas.ti qualitative research software. Back-and-forth triangulation was done between transcripts of the in-depth interviews and focus group discussions, and themes and subthemes were developed. Barriers to parents’ disclosure included perceptions that children are too young to understand what HIV infection means and fears of secondary disclosure by the children. Immediate outcomes of disclosure included children getting scared and crying, although such instances often gave way to more enduring positive experiences for the parents, such as support in adherence to medical care, help in household chores, and a decrease in financial demands from the children. Country-specific interventions are needed to improve the process of parental HIV disclosure to children and this should encompass preparation on how to deal with the immediate psychological challenges associated with the parent’s disclosure. |
| format | Article |
| id | doaj-art-7ef88ecd970843f2812d848d3e8a5e52 |
| institution | Kabale University |
| issn | 2090-1240 2090-1259 |
| language | English |
| publishDate | 2017-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | AIDS Research and Treatment |
| spelling | doaj-art-7ef88ecd970843f2812d848d3e8a5e522025-02-03T06:14:13ZengWileyAIDS Research and Treatment2090-12402090-12592017-01-01201710.1155/2017/34586843458684Disclosure of Parental HIV Status to Children: Experiences of Adults Receiving Antiretroviral Treatment at an Urban Clinic in Kampala, UgandaCharles Peter Osingada0Monica Okuga1Rose Chalo Nabirye2Nelson Kaulukusi Sewankambo3Damalie Nakanjako4Makerere University College of Health Sciences, School of Health Sciences, Department of Nursing, P.O. Box 7072, Kampala, UgandaMakerere University School of Public Health, Department of Health Policy Planning and Management, P.O. Box 7072, Kampala, UgandaMakerere University College of Health Sciences, School of Health Sciences, Department of Nursing, P.O. Box 7072, Kampala, UgandaDepartment of Internal Medicine, School of Medicine, Makerere College of Health Sciences, P.O. Box 7072, Kampala, UgandaDepartment of Internal Medicine, School of Medicine, Makerere College of Health Sciences, P.O. Box 7072, Kampala, UgandaLimited data are available on the experiences of parental HIV disclosure to children in Uganda. We conducted a qualitative study comprising sixteen in-depth interviews and four focus group discussions with parents receiving highly active antiretroviral therapy. Analysis was done using Atlas.ti qualitative research software. Back-and-forth triangulation was done between transcripts of the in-depth interviews and focus group discussions, and themes and subthemes were developed. Barriers to parents’ disclosure included perceptions that children are too young to understand what HIV infection means and fears of secondary disclosure by the children. Immediate outcomes of disclosure included children getting scared and crying, although such instances often gave way to more enduring positive experiences for the parents, such as support in adherence to medical care, help in household chores, and a decrease in financial demands from the children. Country-specific interventions are needed to improve the process of parental HIV disclosure to children and this should encompass preparation on how to deal with the immediate psychological challenges associated with the parent’s disclosure.http://dx.doi.org/10.1155/2017/3458684 |
| spellingShingle | Charles Peter Osingada Monica Okuga Rose Chalo Nabirye Nelson Kaulukusi Sewankambo Damalie Nakanjako Disclosure of Parental HIV Status to Children: Experiences of Adults Receiving Antiretroviral Treatment at an Urban Clinic in Kampala, Uganda AIDS Research and Treatment |
| title | Disclosure of Parental HIV Status to Children: Experiences of Adults Receiving Antiretroviral Treatment at an Urban Clinic in Kampala, Uganda |
| title_full | Disclosure of Parental HIV Status to Children: Experiences of Adults Receiving Antiretroviral Treatment at an Urban Clinic in Kampala, Uganda |
| title_fullStr | Disclosure of Parental HIV Status to Children: Experiences of Adults Receiving Antiretroviral Treatment at an Urban Clinic in Kampala, Uganda |
| title_full_unstemmed | Disclosure of Parental HIV Status to Children: Experiences of Adults Receiving Antiretroviral Treatment at an Urban Clinic in Kampala, Uganda |
| title_short | Disclosure of Parental HIV Status to Children: Experiences of Adults Receiving Antiretroviral Treatment at an Urban Clinic in Kampala, Uganda |
| title_sort | disclosure of parental hiv status to children experiences of adults receiving antiretroviral treatment at an urban clinic in kampala uganda |
| url | http://dx.doi.org/10.1155/2017/3458684 |
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