Assessing the impact of Dravet syndrome on caregivers’ quality of life and perceived burden in Poland

Assessing the impact of Dravet syndrome on caregivers’ quality of life and perceived burden in Poland

Abstract Background Dravet syndrome (DS) is a rare, severe, genetically-based epilepsy that begins in infancy. Due to the multiplicity, severity, and treatment-refractory seizures, DS patients are at high risk of status epilepticus and premature death. They also experience many other symptoms and co...

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Bibliographic Details
Main Authors: Jan Domaradzki, Dariusz Walkowiak, Association for People with Severe Refractory Epilepsy DRAVET.PL
Format: Article
Language:English
Published: BMC 2025-07-01
Series:BMC Psychology
Subjects:
Caregivers
Caregiving burden
Dravet syndrome
Rare genetic epilepsy
Quality of life
WHOQOL-BREF
Online Access:https://doi.org/10.1186/s40359-025-03102-3
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https://doi.org/10.1186/s40359-025-03102-3

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