Sarcoma Assessment Measure-Paediatric Version (SAM-Paeds): development of a disease-specific patient reported outcome measure for children with sarcoma

Abstract Purpose Sarcomas account for approximately 10–15% of all cancer in children aged ≤ 16. Poorer health-related quality of life (HRQoL) is recorded in comparison to other cancers; however, these studies are limited by generic HRQoL measures not being specific to patients with sarcoma. The aim...

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Main Authors: Rachel M. Taylor, Sophie-Anne Purnell, Sian Hocking, Rachael Windsor, Craig Gerrand, Meriel Jenney, Madeleine Adams
Format: Article
Language:English
Published: SpringerOpen 2025-03-01
Series:Journal of Patient-Reported Outcomes
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Online Access:https://doi.org/10.1186/s41687-025-00857-6
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