Meeting report: MyoIN – Pan-India collaborative network for myositis research
Rheumatology in India, albeit old, has lagged behind in research on epidemiology and outcomes of chronic rheumatic diseases. The realization about paucity of Indian data has created the felt need for cohort-building and sustainable research. With this comes the dawn of collaborative research. Myosit...
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2019-01-01
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| Series: | Indian Journal of Rheumatology |
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| Online Access: | http://www.indianjrheumatol.com/article.asp?issn=0973-3698;year=2019;volume=14;issue=2;spage=136;epage=142;aulast=Gupta |
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| author | Latika Gupta Sravan Kumar Appani Ramya Janardana Hafis Muhammed Able Lawrence Sanjiv Amin Vineeta Shobha Liza Rajasekhar Ramnath Misra |
| author_facet | Latika Gupta Sravan Kumar Appani Ramya Janardana Hafis Muhammed Able Lawrence Sanjiv Amin Vineeta Shobha Liza Rajasekhar Ramnath Misra |
| author_sort | Latika Gupta |
| collection | DOAJ |
| description | Rheumatology in India, albeit old, has lagged behind in research on epidemiology and outcomes of chronic rheumatic diseases. The realization about paucity of Indian data has created the felt need for cohort-building and sustainable research. With this comes the dawn of collaborative research. Myositis is one such rare disease with considerable morbidity and mortality, where little is known about the behavior of the disease and treatment practices in the Indian setting. In recent years with the availability of myositis-specific autoantibodies, newer clinic-serologic associations have been described. Collaborative efforts in rare diseases from the Western world have yielded exemplary results. Hence, a pan-India collaborative network called MyoIN (Myositis India Collaborative Effort) was formed to collect data on patients with inflammatory myositis in a standardized format including clinical and investigational parameters both at presentation and follow up to build up a large series prospectively. This report describes the activities since the inception of this group. |
| format | Article |
| id | doaj-art-5abd8742e51c49bd9ec12d4c83085c6b |
| institution | Kabale University |
| issn | 0973-3698 0973-3701 |
| language | English |
| publishDate | 2019-01-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Indian Journal of Rheumatology |
| spelling | doaj-art-5abd8742e51c49bd9ec12d4c83085c6b2025-02-03T10:55:24ZengSAGE PublishingIndian Journal of Rheumatology0973-36980973-37012019-01-0114213614210.4103/injr.injr_40_19Meeting report: MyoIN – Pan-India collaborative network for myositis researchLatika GuptaSravan Kumar AppaniRamya JanardanaHafis MuhammedAble LawrenceSanjiv AminVineeta ShobhaLiza RajasekharRamnath MisraRheumatology in India, albeit old, has lagged behind in research on epidemiology and outcomes of chronic rheumatic diseases. The realization about paucity of Indian data has created the felt need for cohort-building and sustainable research. With this comes the dawn of collaborative research. Myositis is one such rare disease with considerable morbidity and mortality, where little is known about the behavior of the disease and treatment practices in the Indian setting. In recent years with the availability of myositis-specific autoantibodies, newer clinic-serologic associations have been described. Collaborative efforts in rare diseases from the Western world have yielded exemplary results. Hence, a pan-India collaborative network called MyoIN (Myositis India Collaborative Effort) was formed to collect data on patients with inflammatory myositis in a standardized format including clinical and investigational parameters both at presentation and follow up to build up a large series prospectively. This report describes the activities since the inception of this group.http://www.indianjrheumatol.com/article.asp?issn=0973-3698;year=2019;volume=14;issue=2;spage=136;epage=142;aulast=GuptaCollaborative effortsIndiamyositis |
| spellingShingle | Latika Gupta Sravan Kumar Appani Ramya Janardana Hafis Muhammed Able Lawrence Sanjiv Amin Vineeta Shobha Liza Rajasekhar Ramnath Misra Meeting report: MyoIN – Pan-India collaborative network for myositis research Indian Journal of Rheumatology Collaborative efforts India myositis |
| title | Meeting report: MyoIN – Pan-India collaborative network for myositis research |
| title_full | Meeting report: MyoIN – Pan-India collaborative network for myositis research |
| title_fullStr | Meeting report: MyoIN – Pan-India collaborative network for myositis research |
| title_full_unstemmed | Meeting report: MyoIN – Pan-India collaborative network for myositis research |
| title_short | Meeting report: MyoIN – Pan-India collaborative network for myositis research |
| title_sort | meeting report myoin pan india collaborative network for myositis research |
| topic | Collaborative efforts India myositis |
| url | http://www.indianjrheumatol.com/article.asp?issn=0973-3698;year=2019;volume=14;issue=2;spage=136;epage=142;aulast=Gupta |
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