Trauma and Growth: Impact of AIDS Activism

Introduction. Our goal was to assess the long-term impact of AIDS activism of ACT UP/New York on the current adjustment of those who were members during its peak years (1987–1992), including assessment of trauma sequelae as well as posttraumatic growth. Methods. A 90-minute semistructured interview...

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Main Authors: Judith G. Rabkin, Martin C. McElhiney, Mark Harrington, Tim Horn
Format: Article
Language:English
Published: Wiley 2018-01-01
Series:AIDS Research and Treatment
Online Access:http://dx.doi.org/10.1155/2018/9696725
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author Judith G. Rabkin
Martin C. McElhiney
Mark Harrington
Tim Horn
author_facet Judith G. Rabkin
Martin C. McElhiney
Mark Harrington
Tim Horn
author_sort Judith G. Rabkin
collection DOAJ
description Introduction. Our goal was to assess the long-term impact of AIDS activism of ACT UP/New York on the current adjustment of those who were members during its peak years (1987–1992), including assessment of trauma sequelae as well as posttraumatic growth. Methods. A 90-minute semistructured interview and 6 validated self-report scales were administered. We relied on purposive and snowball sampling to recruit potential participants. Areas covered include demographics, ACT UP participation, and psychiatric problems. Self-report scales provided approximate diagnoses of PTSD and depression, as well as coping, optimism, and related concepts. Results. Participants included 102 men (40% HIV-positive) and 23 women. Seventeen percent reported current symptoms suggesting PTSD, slightly above the range in general population studies. Symptoms consistent with depression were reported by 8% overall, with higher rates for HIV+ men. Enhanced sense of self, belief in change, and empowerment were reported by 93% of respondents, independent of concurrent PTSD or depression. Conclusions. Twenty-eight years later, ACT UP study participants recall their activist days during the AIDS epidemic as the peak experience of their lives. While some continue to have symptoms of stress and depression, most found that their activism has enriched their subsequent lives.
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spelling doaj-art-587f8c48a0ce4436ab9f6e5aa0047aa82025-02-03T01:11:33ZengWileyAIDS Research and Treatment2090-12402090-12592018-01-01201810.1155/2018/96967259696725Trauma and Growth: Impact of AIDS ActivismJudith G. Rabkin0Martin C. McElhiney1Mark Harrington2Tim Horn3New York State Psychiatric Institute, New York, NY, USANew York State Psychiatric Institute, New York, NY, USATreatment Action Group, New York, NY, USATreatment Action Group, New York, NY, USAIntroduction. Our goal was to assess the long-term impact of AIDS activism of ACT UP/New York on the current adjustment of those who were members during its peak years (1987–1992), including assessment of trauma sequelae as well as posttraumatic growth. Methods. A 90-minute semistructured interview and 6 validated self-report scales were administered. We relied on purposive and snowball sampling to recruit potential participants. Areas covered include demographics, ACT UP participation, and psychiatric problems. Self-report scales provided approximate diagnoses of PTSD and depression, as well as coping, optimism, and related concepts. Results. Participants included 102 men (40% HIV-positive) and 23 women. Seventeen percent reported current symptoms suggesting PTSD, slightly above the range in general population studies. Symptoms consistent with depression were reported by 8% overall, with higher rates for HIV+ men. Enhanced sense of self, belief in change, and empowerment were reported by 93% of respondents, independent of concurrent PTSD or depression. Conclusions. Twenty-eight years later, ACT UP study participants recall their activist days during the AIDS epidemic as the peak experience of their lives. While some continue to have symptoms of stress and depression, most found that their activism has enriched their subsequent lives.http://dx.doi.org/10.1155/2018/9696725
spellingShingle Judith G. Rabkin
Martin C. McElhiney
Mark Harrington
Tim Horn
Trauma and Growth: Impact of AIDS Activism
AIDS Research and Treatment
title Trauma and Growth: Impact of AIDS Activism
title_full Trauma and Growth: Impact of AIDS Activism
title_fullStr Trauma and Growth: Impact of AIDS Activism
title_full_unstemmed Trauma and Growth: Impact of AIDS Activism
title_short Trauma and Growth: Impact of AIDS Activism
title_sort trauma and growth impact of aids activism
url http://dx.doi.org/10.1155/2018/9696725
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