Personal Health Record Software for Neuroendocrine Tumors: Patient-Centered Design Approach

Personal Health Record Software for Neuroendocrine Tumors: Patient-Centered Design Approach

Abstract BackgroundPersonal health record (PHR) software has the potential of aiding with patient engagement and data collection in longitudinal research to better understand the long-term impact of treatments on patients with rare medical conditions. Neuroendocrine tumors (NE...

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Bibliographic Details
Main Authors: Juan Pablo Hourcade, Michael O'Rorke, Elizabeth Chrischilles, Nicholas J Rudzianski, Brian Gryzlak, Kerry Peterman, Chris Ortman, Sam Wolstencroft, Margaret Bean, Elyse Gellerman, Josh A Mailman, Maryann Wahmann
Format: Article
Language:English
Published: JMIR Publications 2025-06-01
Series:JMIR Human Factors
Online Access:https://humanfactors.jmir.org/2025/1/e68788
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