Reflections on the ERN ITHACA 2024 Patient Workshop in Bucharest

The ERN ITHACA (European reference network for rare malformation syndromes and rare intellectual and neurodevelopmental disorders) Patient Workshop 2024, held on December 12th in Bucharest, Romania, brought together over 70 participants (healthcare providers and patient advocates), to enhance suppor...

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Bibliographic Details
Main Authors: Tanja Zdolšek Draksler, Anne Hugon, Dorica Dan
Format: Article
Language:English
Published: Elsevier 2025-01-01
Series:Rare
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S295000872500016X
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