Chronic non-communicable diseases in patients and families with retinitis pigmentosa
<p><strong>Background:</strong> retinitis pigmentosa, an ocular disease of genetic origin and low prevalence, slowly progresses over years towards severe visual impairment and affects social performance. In the Ophthalmology Service of the Dr. Salvador Allende Clinical Surgical Tea...
Saved in:
| Main Authors: | , , , , , |
|---|---|
| Format: | Article |
| Language: | Spanish |
| Published: |
Centro Provincial de Información de Ciencias Médicas. Cienfuegos
2023-05-01
|
| Series: | Medisur |
| Subjects: | |
| Online Access: | http://medisur.sld.cu/index.php/medisur/article/view/5631 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1832576874868375552 |
|---|---|
| author | Raisa Hernández Baguer Raisa Ivis Beltràn Saìnz Asunciòn Fortunata Rodrìguez Morris Dagmara Magdalena Cordero Ruiz Loida Mevis Savòn George Bàrbara Cid Vàzquez |
| author_facet | Raisa Hernández Baguer Raisa Ivis Beltràn Saìnz Asunciòn Fortunata Rodrìguez Morris Dagmara Magdalena Cordero Ruiz Loida Mevis Savòn George Bàrbara Cid Vàzquez |
| author_sort | Raisa Hernández Baguer |
| collection | DOAJ |
| description | <p><strong>Background:</strong> retinitis pigmentosa, an ocular disease of genetic origin and low prevalence, slowly progresses over years towards severe visual impairment and affects social performance. In the Ophthalmology Service of the Dr. Salvador Allende Clinical Surgical Teaching Hospital, there is an institutional care protocol that includes systematic and comprehensive care for those affected. <br /><strong>Objective:</strong> to identify chronic non-communicable diseases in patients with retinitis pigmentosa and their relatives.<br /><strong>Methods:</strong> descriptive, prospective study carried out between March 2016-March 2022, with non-probabilistic and intentional sampling. Patients and families registered in the service's database, residing in the Cerro and Plaza municipalities, in Havana, were selected.<br /><strong>Results:</strong> of 145 people studied (74 patients with retinitis pigmentosa and 71 relatives), 138 (95.1%) had non-communicable chronic diseases, among which arterial hypertension (29.7%), diabetes mellitus (21 0.0%) and the association of both (13.0%). In community dispensing, people with visual impairment are included in Group 4 and also in other dispensing groups to better attend to the risk factors and chronic non-communicable diseases found in them.<br /><strong>Conclusions:</strong> the identification of chronic non-communicable diseases was useful to deploy holistic and interdisciplinary medical care that facilitates the prevention of diseases and complications, preserves vision, optimizes visual rehabilitation and quality of life. It is recommended to apply attentive care and improve health education in patients with retinitis pigmentosa.</p> |
| format | Article |
| id | doaj-art-0e3e37f0c1404f899edf48b7a19a00a6 |
| institution | Kabale University |
| issn | 1727-897X |
| language | Spanish |
| publishDate | 2023-05-01 |
| publisher | Centro Provincial de Información de Ciencias Médicas. Cienfuegos |
| record_format | Article |
| series | Medisur |
| spelling | doaj-art-0e3e37f0c1404f899edf48b7a19a00a62025-01-30T21:29:00ZspaCentro Provincial de Información de Ciencias Médicas. CienfuegosMedisur1727-897X2023-05-012135425542296Chronic non-communicable diseases in patients and families with retinitis pigmentosaRaisa Hernández Baguer0Raisa Ivis Beltràn Saìnz1Asunciòn Fortunata Rodrìguez Morris2Dagmara Magdalena Cordero Ruiz3Loida Mevis Savòn George4Bàrbara Cid Vàzquez5Hospital Docente Clínico Quirúrgico Dr. Salvador Allende. Centro de Referencia de Retinosis Pigmentaria. La Habana, Cuba.Hospital Docente Clínico Quirúrgico Dr. Salvador Allende. Centro de Referencia de Retinosis Pigmentaria. La Habana, Cuba.Hospital Docente Clínico Quirúrgico Dr. Salvador Allende. Centro de Referencia de Retinosis Pigmentaria. La Habana, Cuba.Facultad de Ciencias Médicas Salvador Allende. Universidad de Ciencias Médicas de La Habana, Cuba.Hospital Docente Clínico Quirúrgico Dr. Salvador Allende. Centro de Referencia de Retinosis Pigmentaria. La Habana, Cuba.Hospital Docente Clínico Quirúrgico Dr. Salvador Allende. Centro de Referencia de Retinosis Pigmentaria. La Habana, Cuba.<p><strong>Background:</strong> retinitis pigmentosa, an ocular disease of genetic origin and low prevalence, slowly progresses over years towards severe visual impairment and affects social performance. In the Ophthalmology Service of the Dr. Salvador Allende Clinical Surgical Teaching Hospital, there is an institutional care protocol that includes systematic and comprehensive care for those affected. <br /><strong>Objective:</strong> to identify chronic non-communicable diseases in patients with retinitis pigmentosa and their relatives.<br /><strong>Methods:</strong> descriptive, prospective study carried out between March 2016-March 2022, with non-probabilistic and intentional sampling. Patients and families registered in the service's database, residing in the Cerro and Plaza municipalities, in Havana, were selected.<br /><strong>Results:</strong> of 145 people studied (74 patients with retinitis pigmentosa and 71 relatives), 138 (95.1%) had non-communicable chronic diseases, among which arterial hypertension (29.7%), diabetes mellitus (21 0.0%) and the association of both (13.0%). In community dispensing, people with visual impairment are included in Group 4 and also in other dispensing groups to better attend to the risk factors and chronic non-communicable diseases found in them.<br /><strong>Conclusions:</strong> the identification of chronic non-communicable diseases was useful to deploy holistic and interdisciplinary medical care that facilitates the prevention of diseases and complications, preserves vision, optimizes visual rehabilitation and quality of life. It is recommended to apply attentive care and improve health education in patients with retinitis pigmentosa.</p>http://medisur.sld.cu/index.php/medisur/article/view/5631retinitis pigmentosaretinosis pigmentariadistrofia de bastones y conosenfermedades no transmisiblesdispensarización |
| spellingShingle | Raisa Hernández Baguer Raisa Ivis Beltràn Saìnz Asunciòn Fortunata Rodrìguez Morris Dagmara Magdalena Cordero Ruiz Loida Mevis Savòn George Bàrbara Cid Vàzquez Chronic non-communicable diseases in patients and families with retinitis pigmentosa Medisur retinitis pigmentosa retinosis pigmentaria distrofia de bastones y conos enfermedades no transmisibles dispensarización |
| title | Chronic non-communicable diseases in patients and families with retinitis pigmentosa |
| title_full | Chronic non-communicable diseases in patients and families with retinitis pigmentosa |
| title_fullStr | Chronic non-communicable diseases in patients and families with retinitis pigmentosa |
| title_full_unstemmed | Chronic non-communicable diseases in patients and families with retinitis pigmentosa |
| title_short | Chronic non-communicable diseases in patients and families with retinitis pigmentosa |
| title_sort | chronic non communicable diseases in patients and families with retinitis pigmentosa |
| topic | retinitis pigmentosa retinosis pigmentaria distrofia de bastones y conos enfermedades no transmisibles dispensarización |
| url | http://medisur.sld.cu/index.php/medisur/article/view/5631 |
| work_keys_str_mv | AT raisahernandezbaguer chronicnoncommunicablediseasesinpatientsandfamilieswithretinitispigmentosa AT raisaivisbeltransainz chronicnoncommunicablediseasesinpatientsandfamilieswithretinitispigmentosa AT asuncionfortunatarodriguezmorris chronicnoncommunicablediseasesinpatientsandfamilieswithretinitispigmentosa AT dagmaramagdalenacorderoruiz chronicnoncommunicablediseasesinpatientsandfamilieswithretinitispigmentosa AT loidamevissavongeorge chronicnoncommunicablediseasesinpatientsandfamilieswithretinitispigmentosa AT barbaracidvazquez chronicnoncommunicablediseasesinpatientsandfamilieswithretinitispigmentosa |