Mapping mad maps and recovery tools developed by mental health service users and survivors of psychiatry: a scoping review by Hernán María Sampietro, Viviana R Carmona, J Emilio Rojo, J Gómez-Benito

“…We focused on tools, elaborated by users and survivors, and studies reporting the main applications of them. …”
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Mortality and risk of cardiac complications among immediate survivors of accidental electric shock: a Danish nationwide cohort study by Christian Torp-Pedersen, Sam Riahi, Lars Køber, Steen Møller Hansen, Peter Søgaard, Rikke Mortensen, Søren Hjortshøj

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Hubungan antara Dukungan Sosial dengan Resiliensi Penyintas COVID-19 di Wilayah Kerja Puskesmas Kaliwates Jember by Aditya Kusuma Wardana, Erti Ikhtiarini Dewi, Yeni Fitria

“…This research uses a quantitative method with an analytical observational design with a cross-sectional approach. The number of samples in this research was 176 COVID-19 survivors and were selected using the simple random sampling technique. …”
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Safety, feasibility and initial efficacy of an app-facilitated telerehabilitation (AFTER) programme for COVID-19 survivors: a pilot randomised study by Kristine M Erlandson, Jacob John Capin, Amy Nordon-Craft, Sarah E Jolley, Jennifer E Stevens-Lapsley, Mary Morrow, Meghan Connors, Kristine Hare, Samantha MaWhinney, Michelle Rauzi, Sheryl Flynn

“…Objectives Determine the safety, feasibility and initial efficacy of a multicomponent telerehabilitation programme for COVID-19 survivors.Design Pilot randomised feasibility study.Setting In-home telerehabilitation.Participants 44 participants (21 female, mean age 52 years) discharged home following hospitalisation with COVID-19 (with and without intensive care unit (ICU) stay).Interventions Participants were block randomised 2:1 to receive 12 individual biobehaviourally informed, app-facilitated, multicomponent telerehabilitation sessions with a licenced physical therapist (n=29) or to a control group (n=15) consisting of education on exercise and COVID-19 recovery trajectory, physical activity and vitals monitoring, and weekly check-ins with study staff. …”
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The Lived Experience of Adult Cancer Survivors After Hematopoietic Stem Cell Transplantation: A Qualitative Study From Saudi Arabia by Almutairi H, Aboshaiqah A, Alzahrani M, Almutairi AF, Salam M

“…The aim of this study is to explore the lived experience of cancer survivors who underwent HSCT from Saudi Arabia.Material And Methods: This study adopted a qualitative descriptive research design using semi-structured in-depth face-to-face interviews. …”
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Long-term functioning status of COVID-19 survivors: a prospective observational evaluation of a cohort of patients surviving hospitalisation by Linamara Rizzo Battistella, Felipe Fregni, Marta Imamura, Vinicius Delgado Ramos, Lucas Ramos De Pretto, Simon K H A A Van Cauwenbergh, Sabrina Saemy Tome Uchiyama, Denise Matheus, Flavia Kuhn, Ana Alice Amaral de Oliveira, Gabriella Souza Naves, Aline Rossetti Mirisola, Fernando de Quadros Ribeiro, Andre Tadeu Sugawara, Mauricio Cantarino, Rafael Andrade Santos Antunes Cavalca, Vanessa Pagano, Melina Valentim Marques, Elizabeth Mendes da Silva, Alessandra Pereira Gomes

“…Objectives The study investigated the long-term functional status of hospitalised COVID-19 survivors to explore and document their functional situation.Design This prospective observational study assessed 801 COVID-19 survivors at 3–11 months after hospital discharge. …”
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CHAT-S study protocol: A randomized controlled trial of a health insurance literacy education program for young adult cancer survivors by Mary Killela, Cindy A. Turner, Amy Chevrier, Monique Stefanou, Perla L. Vaca Lopez, Heydon K. Kaddas, Karely M. van Thiel Berghuijs, Echo L. Warner, Giselle K. Perez, Austin R. Waters, Douglas B. Fair, Richard E. Nelson, Mark A. Lewis, Elyse R. Park, Anne C. Kirchhoff

“…This paper describes the protocol in a randomized controlled trial (RCT) to test a virtual patient navigation program designed to help YA cancer survivors understand their health insurance.Methods: This is a two-arm, multi-site (Huntsman Cancer Institute, Intermountain Health) RCT wherein intervention participants receive four sessions with a patient navigator and a booklet on insurance; usual care receives the booklet. …”
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Race or Resource? BMI, Race, and Other Social Factors as Risk Factors for Interlimb Differences among Overweight Breast Cancer Survivors with Lymphedema by Lorraine T. Dean, Anagha Kumar, Taehoon Kim, Matthew Herling, Justin C. Brown, Zi Zhang, Margaret Evangelisti, Renata Hackley, Jiyoung Kim, Andrea Cheville, Andrea B. Troxel, J. Sanford Schwartz, Kathryn H. Schmitz

“…High BMI is a risk factor for upper body breast cancer-related lymphedema (BCRL) onset. Black cancer survivors are more likely to have high BMI than White cancer survivors. …”
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Statistical analysis plan for a pragmatic randomised controlled trial comparing enhanced acceptance and commitment therapy plus ( +) added to usual aftercare versus usual aftercare... by Clare Robinson, Trudie Chalder, Paul McCrone, Olivier Quintin, Evdoxia Gkaintatzi, Imran Khan, Stephanie J. C. Taylor, on behalf of the SURECAN GROUP

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Qualitative focus group study investigating experiences of accessing and engaging with social care services: perspectives of carers from diverse ethnic groups caring for stroke sur... by Geoffrey Cloud, Nan Greenwood, Jess Holley, Theresa Ellmers, Gill Mein

“…The study therefore explored the experiences of carers of stroke survivors aged 45+ years from 5 ethnic groups in accessing and receiving social care services after hospital discharge.Design This qualitative study used 7 recorded focus groups with informal carers of stroke survivors. …”
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Help-seeking behaviors among survivors of intimate partner violence during pregnancy in 54 low- and middle-income countries: evidence from Demographic and Health Survey data by Mariella Stiller, Michael Lowery Wilson, Till Bärnighausen, Adebola Adedimeji, Erin Lewis, Anne Abio

“…Conclusion Practitioners are encouraged to consider the study’s outcomes when designing interventions and support for survivors seeking help in response to IPV during pregnancy. …”
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Design Criteria of Soft Exogloves for Hand Rehabilitation-Assistance Tasks by Juana-Mariel Dávila-Vilchis, Juan C. Ávila-Vilchis, Adriana H. Vilchis-González, LAZ-Avilés

“…This paper establishes design criteria for soft exogloves (SEG) to be used as rehabilitation or assistance devices. …”
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An Exploration of a Social Robot as a Digital Shield for Law Enforcement Interviews: Designing a Prototype. by Cryston Sahae, Shuyue Gu, Lige Yang, Elin A. Björling, Nichelle Song

“…The paper explores the preliminary design of social robots as digital shields, offering a supportive and non-judgmental space for survivors to disclose their experiences by analyzing the development process, user research, ideation, and concept testing of two robot prototypes: IRA and Pup. …”
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Design of Network and Pole for Meeting Lighting, Communication, and Energy Needs from a Single Source in Disasters by Levent Aksoy, İlknur Yardımcı Coşkun

“…The pole incorporates various energy generation methods, data transmission options, wireless access points, mobile charging stations, sensors, and IoT devices. This design is expected to play a crucial role in meeting the basic needs of disaster survivors both during and after a disaster. …”
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Identifying biomarkers for epilepsy after cerebral malaria in Zambian children: rationale and design of a prospective observational study by Bo Zhang, Archana A Patel, Gretchen L Birbeck, Maitreyi Mazumdar, Suzanna Mwanza, Rosemary Nyirongo, Dixon Berejena, Joseph Kasolo, Tina Mwale, Violet Nambeye, Kafula Lisa Nkole, Nfwama Kawatu, Alexander Rotenberg

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Rationale and design of APOLLO: a personalized rehAbilitation PrOgram in aLLOgeneic bone marrow transplantation by Edith Pituskin, Stephen Foulkes, Rachel J. Skow, Thomas McMurtry, Calvin Kruger, Janet E. Bates, Daena Lamoureux, Joseph Brandwein, Elena Lieuw, Cynthia Wu, Nancy Zhu, Peng Wang, Daniel Sawler, Minakshi Taparia, Marlene Hamilton, Tiffany Comfort-Riddle, Tara Meyer, Gabor T. Gyenes, Ian Paterson, Carla M. Prado, Mark J. Haykowsky, Justin G. Greiner, Margaret L. McNeely, Puneeta Tandon, Richard B. Thompson

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“What women want”: Focus group discussions to inform the design of nutrition resources for women impacted by menopause following cancer treatment by Samantha J. Cushen, Micheala Murphy, Katie E. Johnston

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Co-creation of a toolkit to assist risk communication and clinical decision-making in severe preeclampsia: SPOT-Impact study design by Hannah Brown Amoakoh, Bregje C. De Kok, Linda Lucy Yevoo, Klaartje M. Olde Loohuis, Emmanuel K. Srofenyoh, Daniel K. Arhinful, Koiwah Koi-Larbi, Kwame Adu-Bonsaffoh, Mary Amoakoh-Coleman, Joyce L. Browne

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HER-SAFE study design: an open-label, randomised controlled trial to investigate the safety of withdrawal of pharmacological treatment for recovered HER2-targeted therapy-related c... by Robin Chung, James C Moon, Alexander R Lyon, Charlotte H Manisty, Muhummad Sohaib Nazir, Malcolm Walker, Peter Kellman, Benjamin Dowsing, Daniel Chen, Jessica Artico, Mark Westwood, Hakim-Moulay Dehbi, Rebecca Roylance, Tom Crake, Peter Schmid, Arjun Ghosh, Maria Sol Andres, Joanna Pedra, Orla Worn

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Characterisation of internal tremors and vibration symptoms by Harlan M Krumholz, Mitsuaki Sawano, Richa Sharma, Tianna Zhou, Dorothy Massey, Anna D Baker, Diana Berrent Güthe, Nick Güthe, Suzanne Pincus Shidlovsky, Liza Fisher, Connor B Grady, Cesar Caraballo

“…Objectives To describe the experiences of patients who have postacute sequelae SARS-CoV-2 infection with internal vibrations and tremors as a prominent component, we leveraged the efforts by Survivor Corps, a grassroots COVID-19 patient advocacy group, to gather information from individuals belonging to its Facebook group with a history of COVID-19 suffering from vibrations and tremors.Setting and design A narrative analysis was performed on 140 emails and 450 social media comments from 140 individuals collected as a response to a call to >180 000 individuals participating in Survivor Corps between 15 July and 27 July 2021. …”
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