National Registry of Rare Diseases by Yadnil Elizabeth Gómez Vázquez, Onelis Góngora Gómez

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Is the treatment of ankle osteoarthritis changing over time in Italy? Analysis of temporal trends for fusion and arthroplasty in a population-based study from 2001 to 2022 on the N... by Adriano Cuccu, Elena Manuela Samaila, Enrico Ciminello, Umberto Alfieri Montrasio, Fabrizio Cortese, Stefania Ceccarelli, Tiziana Falcone, Marina Torre

“…The aim of the study was to present the overall temporal trends of TAR throughout 22 years (2001–2022) in Italy, analyzing the distributions of hospitals by volume of activity and patients by age and sex, drawing on the National Hospital Discharge Record database. Furthermore, as a secondary aim, we compared these trends with those of ankle fusions. …”
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Epidemiology of Soft Tissue Sarcoma in Iran: Four‐Year National Cancer Registry Data Report (2014–2017) by Mohammad Sajed Dehghan Banadaki, Vahid Rahmanian, Saeed Hosseini, Seyyed Mohammad Hossein Hosseini, Narjes Hazar

“…Methods The study population comprised 4968 cases of STS recorded in the Cancer Registry System between 2014 and 2017. …”
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Croatian National Data and Comparison with European Practice: Data from the Cardiac Resynchronization Therapy Survey II Multicenter Registry by Sandro Brusich, Ivan Zeljković, Nikola Pavlovic, Ante Anić, Zrinka Jurišić, David Židan, Marina Klasan, Zlatko Čubranić, Kenneth Dickstein, Cecilia Linde, Camilla Normand, Sime Manola

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Associated Factors of the Need for Mechanical Ventilation Following Traumatic Injuries; a Registry-Based Study on 2,708 Cases in Iran by Zahra Ramezani, Vali Baigi, Mohammadreza Zafarghandi, Vafa Rahimi-Movaghar, Reza Farahmand-Rad, Akram Zolfaghari Sadrabad, Seyed-Mohammad Piri, Mahgol Sadat Hassan Zadeh Tabatabaei, Khatereh Naghdi, Payman Salamati

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Clinical expression of facioscapulohumeral muscular dystrophy in carriers of 1–3 D4Z4 reduced alleles: experience of the FSHD Italian National Registry by Antonio Di Muzio, Corrado Angelini, Tiziana Mongini, Liliana Vercelli, Lucia Morandi, Giovanni Antonini, Gabriele Siciliano, Lucio Santoro, Maurizio Moggio, Giacomo Brisca, Luisa Villa, Giuliano Tomelleri, Francesco Sera, Carmelo Rodolico, Lorenzo Maggi, Giulia Ricci, Angela Berardinelli, Elena Pegoraro, Sabrina Ravaglia, Chiara Fiorillo, Michelangelo Cao, Rossella Tupler, Ana Nikolic, Elisabetta Bucci, Monica Govi, Fabiano Mele, Marta Rossi, Lucia Ruggiero, Maria Chiara D'Amico, Maria Grazia D'Angelo, Claudio Bruno

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Increasing incidences and changes in treatment trends of clavicle fractures in adults during 2 decades in Denmark: a nationwide study on data from the Danish National Patient Regis... by Ida Tryggedsson, Bjarke Viberg, Per Hviid Gundtoft, Ilija Ban, Søren Overgaard, Tazio Maleitzke, Arvind von Keudell

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Predictors of frequency of CF care in the US Cystic Fibrosis Foundation Patient Registry. by Alexandra C Hinton, Edmund H Sears, Jonathan B Zuckerman, Sara Lopez-Pintado

“…BVI was defined as the number of days from the index encounter to the previously recorded visit.<h4>Results</h4>The study included 28,588 pwCF with 859,568 encounters. …”
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Validity of patient-reported information: agreement rate between patient reports and registry data by Tomone Watanabe, Yuichi Ichinose, Tsutomu Toida, Takahiro Higashi

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Breast cancer patterns by age groups in Brazil: insights from population-based registries data by Jessé Lopes da Silva, Luiz Claudio Santos Thuler, Andréia Cristina de Melo

“…Hospital-Based Cancer Registries provided clinical and sociodemographic data from 2000 to 2019. …”
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Observational study on the current status of thalassaemia in Malaysia: a report from the Malaysian Thalassaemia Registry by Hishamshah Mohd Ibrahim, Zulaiha Muda, Ida Shahnaz Othman, Mohamed Najib Mohamed Unni, Kok Hoi Teh, Asohan Thevarajah, Kogilavani Gunasagaran, Gek Bee Ong, Seoh Leng Yeoh, Aisyah Muhammad Rivai, Che Hadibiah Che Mohd Razali, Nazzlin Dizana Din, Zarina Abdul Latiff, Rahman Jamal, Norsarwany Mohamad, Hany Mohd Ariffin, Hamidah Alias

“…Sustainability of the Malaysian Thalassaemia Registry is important for surveillance of thalassaemia management in the country and help the national health authorities to develop more effective policies.…”
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Discrepancies in reported results between trial registries and journal articles for AI clinical researchResearch in context by Zixuan He, Lan Yang, Xiaofan Li, Jian Du

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Retrospective cross-sectional study on bronchiectasis in adult Aboriginal Australians: disease characteristics and comparison with ethnically diverse global bronchiectasis registry... by Timothy Howarth, Subash Heraganahally, Claire Gibbs, Lata Jayaram, Asanga Abeyaratne, Shiidheshwar J Ravichandran, Davaadorj Erdenebayar, Winnie Chen, Hubertus Jersmann

“…Smoking rates were higher at 85% compared with other registry cohorts (22–46%) as was the prevalence of comorbidities (97%): cardiovascular diseases (73%), diabetes mellitus (50%) and chronic obstructive pulmonary disease (83%) compared with other registry cohorts (4–32%; 6–14%; and 14–37%, respectively). …”
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Spatial and temporal changes of breast-conserving surgery rates and its influential factors among Chinese patients with breast cancer from 2013 to 2019: a registry-based study by Pengpeng Ye, Yuan Yang, Wei Hu, Lingyan Dai, Erwei Song, Shunrong Li, Liling Zhu, Kai Chen, Yanjie Xu, Xiaoyu Wang, Jianli Zhao, Jianrong He, Queran Lin, Tongrui Shang, Xiujuan Gui, Ziliang Zhong, Qianru Chen, Qing Yan, Xiaoliang Huang, Zijian Liang

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In-hospital costs of diabetic foot infection at a national referral hospital in Jakarta, Indonesia by Fitrianingsih, Rani Sauriasari, Em Yunir, Agusdini Banun Saptaningsih

“…Methods: We conducted a retrospective cross-sectional study of 213 subjects with low, moderate and high ulcer grades from January 2019 to December 2022 at a national referral hospital in Jakarta, Indonesia. Data were taken from the medical admissions record unit, electronic health records (EHR), hospital integrated system (HIS) and the foot registry system in the metabolic endocrine division, in relation to diabetic foot infection (DFI) as the primary or secondary diagnosis. …”
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A national population-based study of mortality and risk factors in COVID-19-hospitalized patients in Spain (2020–2021) by José-Manuel Ramos-Rincón, José-Manuel Ramos-Rincón, José Sánchez-Paya, Pilar González-De-La-Aleja, Juan-Carlos Rodríguez-Díaz, Juan-Carlos Rodríguez-Díaz, Esperanza Merino, Esperanza Merino

“…The objective was to assess the impact of vaccination on IHM and identify associated risk factors, using data from Spain’s national hospitalization registry.MethodsThis retrospective analysis used data from the Spanish National Surveillance System for Hospital Data. …”
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A Unique Source for Innovative Longitudinal Research: The POPLINK Database by Annika Westberg, Elisabeth Engberg, Sören Edvinsson

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A Unique Source for Innovative Longitudinal Research: The POPLINK Database by Annika Westberg, Elisabeth Engberg, Sören Edvinsson

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A Unique Source for Innovative Longitudinal Research: The POPLINK Database by Annika Westberg, Elisabeth Engberg, Sören Edvinsson

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A Unique Source for Innovative Longitudinal Research: The POPLINK Database by Annika Westberg, Elisabeth Engberg, Sören Edvinsson

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