The Ethics of Refusal in Terrence Malick’s A Hidden Life by Marguerite La Caze, Magdalena Zolkos

“…We argue that Malick complicates the question of what it means to rise in defiance against power by locating Jägerstätter’s refusal not in religious dogma or a position of righteousness, but depicting it as a lived experience infused with affect, hesitation and doubt. …”
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Professional learning networks: a descriptive phenomenological study with primary school teachers in Greece by Ourania Maria Ventista, Stavroula Kaldi, Magdalini Kolokitha, Christos Govaris, Chris Brown

“…Design/methodology/approach – A descriptive phenomenological study was conducted to explore the lived experience of primary school teachers participating in PLNs. …”
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Language interpretation and translation in emergency care: A scoping review protocol. by Henry Li, Samina Ali, Lisa Hartling, Liz Dennett, Elena Lopatina, Kayathiri Ganeshamoorthy, Jaspreet Khangura

“…Our team includes our provincial health authority interpretation services lead who brings lived experience and will inform and validate our results and help identify future areas of needed research. …”
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Building ADMISSION – A research collaborative to transform understanding of multiple long-term conditions for people admitted to hospital by Miles D Witham, Victoria Bartle, Sue Bellass, Jonathan G Bunn, Duncan Cartner, Heather J Cordell, Rominique Doal, Felicity Evison, Suzy Gallier, Steve Harris, Susan J Hillman, Ray Holding, Peta Leroux, Tom Marshall, Fiona E Matthews, Paolo Missier, Anand Nair, Mo Osman, Ewan R Pearson, Chris Plummer, Sara Pretorius, Sarah J Richardson, Sian M Robinson, Elizabeth Sapey, Thomas Scharf, Rupal Shah, Marzieh Shahmandi, Mervyn Singer, Jana Suklan, James MS Wason, Rachel Cooper, Avan A Sayer

“…These approaches are complemented by focused qualitative work exploring the perspectives of healthcare professionals and the lived experience of people with MLTCs admitted to hospital. …”
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Confronting stereotypes: the dual narratives of ethnic minority youth in Aotearoa New Zealand by Vartika Sharma, Rodrigo Ramalho, Rachel Simon-Kumar, Shanthi Ameratunga, Kristy Kang, Renee Liang, Arier Lee, Roshini Peiris-John

“…Interviews with 17 EMY with additional marginalized identities (EMYi) indicated significant diversity and fluidity in their lived experience. Participants felt ‘othered’ by the wider NZ society for their ethnic identity, and thus adapted themselves to be perceived as less different from the majority ethnic group (New Zealand European). …”
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Peer support workers in co-production and co-creation in public mental health and addiction services: Protocol for a scoping review. by Kristina Bakke Aakerblom, Ottar Ness

“…Worldwide, there is a growing interest to employ people with lived experiences in health and social services. Particularly in mental health and addiction services, individuals with lived experience of mental health problems enter the workplace as peer support workers (PSW´s). …”
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On being and having: a qualitative study of self-perceptions in bipolar disorder by Matthew N. Ponticiello, Alexis L. Chang, Rebecca J. Chang, Salahudeen Mirza, Andrés Martin

“…Even as qualitative research has explored the lived experience of BD across a variety of perspectives, i.e., what BD looks like, there is a lack of research exploring what BD means to those living with the condition. …”
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Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature by Laura E. Dowsett, Stephanie Coward, Diane L. Lorenzetti, Gail MacKean, Fiona Clement

“…Background and Aims. The lived experience of HCV has not been well documented in the literature. …”
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Understanding the use of co-design methods for research involving older adults living with HIV: A scoping review protocol. by Paige Brown, Hardeep Singh, Esther Su, Luxey Sirisegaram, Sarah E P Munce, Andrew D Eaton, Alice Zhabokritsky, Stuart McKinlay, Kristina M Kokorelias

“…The methodology encompasses six stages: 1) developing research questions, 2) creating a search strategy, 3) screening and selecting evidence, 4) data extraction, 5) data analysis using content analysis, and 6) consultation with key stakeholders, including community partners and individuals with lived experience. The review will involve a comprehensive literature search, including peer-reviewed databases and gray literature, to identify relevant studies conducted in the past 20 years. …”
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Barriers to uptake of harm reduction techniques for GBMSM who use drugs in night-clubs and sex-on-premises venues in London and the Southeast: a mixed-methods, qualitative study by Stephen Naulls, K. Oniti, J. Eccles, J. M. Stone

“…Participants included GBMSM with lived experience of substance use in night-time venues, as well as those providing support to this population. …”
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Abortion and contraception within prison health care: a qualitative study by Martha J. Paynter, Clare Heggie, Anja Mcleod, Wendy V. Norman

“…Our study team included members with lived experience of incarceration. We conducted recruitment in partnership with community organizations. …”
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Defining harmful news reporting on community firearm violence: A modified Delphi consensus study. by Jessica H Beard, Evan L Eschliman, Anita Wamakima, Christopher N Morrison, Jim MacMillan, Jennifer Midberry

“…Twenty-one panelists were recruited from three expertise groups (lived experience of CFV, journalism practice, scholarship) and all panelists completed all three rounds. …”
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Comparing social stigma of anorexia nervosa, bulimia nervosa, and binge-eating disorder: A quantitative experimental study by Carlye S. Aird, Bennett A. A. Reisinger, Stephanie N. Webb, David H. Gleaves

“…This knowledge could also advance the understanding of the lived experience of individuals living with eating disorders, subsequently informing treatment practices.…”
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The impacts of antipsychotic medications on eating-related outcomes: A mixed methods systematic review. by Rasha Alkholy, Karina Lovell, Penny Bee, Rebecca Pedley, Helen Louise Brooks, Richard J Drake, Prathiba Chitsabesan, Anam Bhutta, Abigail Brown, Rebecca L Jenkins, Andrew Grundy

“…<h4>Strengths</h4>We used GRADE and GRADE-CERQual frameworks to enhance the transparency of our judgement of the certainty of the evidence. Lived experience perspectives were incorporated in different stages of the review to enhance its relevance and practical implications.…”
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Diverse Patient Experiences of Internet-Based Cognitive Behavioral Therapy with Guided Peer Support for Generalized Anxiety Disorders by Jill Nault Connors PhD, MSSW, Ernani Magalhaes JD, Kevin Prather MSW, Nida Khan MD, Claire Draucker PhD, RN, FAAN, Johanne Eliacin PhD, HSPP, Chet Montgomery, Julie Hayden BS, Michael Millard MD, Kurt Kroenke MD, Paul Musey MD, MS, FACEP

“…In collaboration with a diverse group of patient and community partners, we co-developed and tested an existing iCBT course for generalized anxiety disorder with delivery of guided support by a peer recovery specialist with concordant lived experience. We analyzed patient partner feedback from debriefing sessions during the testing phase using conventional content analysis. …”
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Improving the Utility, Safety, and Ethical Use of a Passive Mood-Tracking App for People With Bipolar Disorder Using Coproduction: Qualitative Focus Group Study by Laurence Astill Wright, Matthew Moore, Stuart Reeves, Elvira Perez Vallejos, Richard Morriss

“…Results were cross-checked by someone with lived experience of BD. ResultsFocus groups were transcribed and analyzed using thematic analysis. …”
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“I think people have been in survival mode”: a qualitative study of community connectivity in a neighbourhood of North East England before and during COVID-19 by Mandy Cheetham, Alice Wiseman, Stephen Ward, Sarah Gorman, Fiona Pollard

“…Findings suggest community-centred responses were facilitated by trusting relationships, visionary leadership and lived experience of adversity among staff. Issues which appeared to hamper progress included interorganisational power dynamics and attempts to impose solutions. …”
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Inclusion of young people with disabilities in the future of work: forecasting workplace, labour market and community-based strategies through an online and accessible Delphi surve... by Arif Jetha, Kathleen A Martin Ginis, Emile Tompa, Monique A M Gignac, Dwayne van Eerd, Kay Nasir

“…A diverse sample of subject matter experts (eg, policy makers, employment service providers, labour market experts) and participants with lived experience of a disability will be recruited using a purposive sampling strategy. …”
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Patient Perspectives on Engagement in Recovery after Hip Fracture: A Qualitative Study by Joanie Sims-Gould, Sarah Stott-Eveneshen, Lena Fleig, Megan McAllister, Maureen C. Ashe

“…Participants shared valuable insight into how their expectations for their recovery period compared to their lived experience and the role of physical activity in their ability to return to their prefracture activities. …”
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Definitions of Frailty in Qualitative Research: A Qualitative Systematic Review by Deborah A. Lekan, Susan K. Collins, Audai A. Hayajneh

“…The purpose of this qualitative systematic review was to examine how frailty was conceptually and operationally defined for participant inclusion in qualitative research focused on the lived experience of frailty in community-living frail older adults. …”
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