Definitions of Frailty in Qualitative Research: A Qualitative Systematic Review by Deborah A. Lekan, Susan K. Collins, Audai A. Hayajneh

“…The purpose of this qualitative systematic review was to examine how frailty was conceptually and operationally defined for participant inclusion in qualitative research focused on the lived experience of frailty in community-living frail older adults. …”
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Women’s experiences of living with adenomyosis and perceptions of the diagnostic journey: a scoping review by Tim J Croudace, Margaret A Taylor, Margot McBride, Fiona E Muir

“…No studies specifically focused on perceptions of the diagnostic journey, but some eligible studies made minor reference to this and are included.Conclusions This review highlights the profound impact of adenomyosis and is the first to explore the lived experiences and the diagnostic journey. Understanding the burdens of disease in terms of perceptions and lived experience in combination with the experiences of diagnostic interactions is vital to improving diagnostic pathways. …”
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Omega-3 supplements in the prevention and treatment of youth depression and anxiety symptoms: A scoping review. by Natalie M Reily, Samantha Tang, Ashlee Negrone, Daniel Z Q Gan, Veronica Sheanoda, Helen Christensen

“…A stakeholder group including young people with lived experience of anxiety/depression, parents/carers and mental health professionals informed the research questions and data interpretation. …”
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Physicians’ moral distinctions between medical assistance in dying (MAiD) and withdrawing life-sustaining treatment in Canada: a qualitative descriptive study by Midori Matthew, Kieran Bonner, Andrew Stumpf

“…This research captures meaningful accounts regarding MAiD and WLT that is rooted in the lived experience of the providers of these services in order for bioethical debates to have substantive impact in clinical practice and in legislation surrounding future health policies.…”
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Nursing Stress and Thought Control in a Multiperspectival Interpretive Phenomenological Analyses from the United Kingdom, United States and Switzerland by Yumna Ali, Syeda Farhana Kazmi

“…To explore stress management skills for nurses to be applied in developing Asian countries through the personal lived experience of experts from developed countries. Multiperspectival Interpretive Phenomenological Analyses (MIPA) are performed case by case and across the participants to establish convergence and divergence. …”
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Barriers to early diagnosis and treatment of cervical cancer in Addis Ababa, Ethiopia: qualitative study by Alem Gebremariam, Adamu Addissie, Alemayehu Worku, Mathewos Assefa, Eva Johanna Kantelhardt, Ahmedin Jemal, Nebiyu Dereje

“…This study aimed to describe the lived experience of the patients and to explore the barriers to early diagnosis and treatment of cervical cancer.Design We conducted a phenomenological qualitative study, which was part of a larger mixed-methods study.Setting Tikur Anbesa Specialised Comprehensive Hospital, Addis Ababa, Ethiopia.Participants 24 purposively selected patients with diagnostic delay and 16 patients with treatment delay were interviewed using an in-depth interview guide (IDI).Results Two broad themes and seven sub-themes to explain the barriers to early diagnosis and treatment of cervical cancer emerged. …”
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The Strength of a Story: Partnering With a Community Organization to Destigmatize Substance Use Disorder by Noah Sorkow, Cameron Lauf, Stephen H. Berns

“…Students appreciated the small-group format and hearing someone's lived experience/perspective. Community members expressed how the session helped humanize health care providers and had interest in participating in future sessions. …”
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The meaning of trust along the treatment pathway of women with breast cancer: a mixed-methods study among cancer survivors by Eleonore Baum, Daniela Bernhardsgrütter, Ramona Engst, Carola Maurer, Jessica Ebneter, Adrienne Zenklusen, Barbara Wartlsteiner, Lotti Barandun, Andrea Neher, Antje Koller, Andrea Kobleder

“…The conceptual model of trust should receive attention to bring care closer to the women’s lived experience so that their care experience can be improved.…”
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The Managers' Perceptions of Telework Implementation Requirements in the Algerian Companies: A Post Covid-19 Assessment by Riad BENGHEBRID

“…Research Limitations/Future Research: The Covid-19 crisis was the starting point for talking about telework, because it was a direct reason behind the exploration of this method of managing labor relations by many Algerian companies, which continued to be used even after the end of the crisis. However, this lived experience for more than Four years in this manner opened the door to discussion of many problems related to capabilities, protection, control, etc. …”
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Recommendations for improving accessibility of digital health interventions for cardiometabolic disease for ethnically diverse populations by Mel Ramasawmy, Nushrat Khan, David Sunkersing, Madiha Sajid, Shivali H Modha, Manoj Mistry, Wasim Hanif, Fiona Stevenson, Kiran Patel, Kamlesh Khunti, Paramjit Gill, Lydia Poole, Amitava Banerjee

“…A one-day workshop was held in May 2023 with key stakeholders, including people with lived experience, health professionals, technology innovators and policymakers ( n  = 34), to develop recommendations arising from the DISC study findings. …”
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Living with psychosis in West and Southeast Africa: SUCCEED Africa’s four-country situation analysis by Olubukola Omobowale, Rachel Greenley, Grace Ryan, Olusegun Ogunmola, Lloyd Dzapasi, Abraham Jimmy, Anthony Sefasi, Mayowa Olusanmi, Rebecca Esliker, Alhaji Koroma, Adeola Afolayan, Rita Tamambang, Epiphania Munetsi, Janet Mambulasa, Ritsuko Kakuma, Dixon Chibanda, Olayinka Omigbodun, Julian Eaton

“…As part of the formative work of the SUCCEED Africa consortium, we followed a participatory process to identify existing gaps and resources needed for the development and implementation of a rights-based intervention for people with lived experience of psychosis in Malawi, Nigeria, Sierra Leone and Zimbabwe.…”
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Experience, access and utilisation of fertility care for infertile men within the biomedical sector in urban Bangladesh: protocol for a qualitative study by Papreen Nahar, Gitau Mburu, Sohana Shafique, Priya Satalkar-Götz, Foyjunnaher Sultana

“…This study aims to provide insights into the lived experience of male infertility, the availability and access of infertility services for men within the biomedical sector in Bangladesh and the potential willingness of men to use home-based semen testing.Methods and analysis This qualitative study will be conducted in Dhaka and Khulna districts in Bangladesh over 18 months (late 2023–2025). …”
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Access to Diagnostics and Treatment for People With Metastatic EGFR-Positive NSCLC: Lessons From Project PRIORITY by Jill Feldman, MA, Ivy Elkins, MBA, Zofia Piotrowska, MD, Bellinda L. King-Kallimanis, PhD, Tendai Chihuri, MD, Carly Johnson, BS, Alecia Clary, PhD, Teri Kennedy, MA, Upal Basu Roy, PhD, MPH

“…Introduction: The treatment landscape for people diagnosed with EGFR-mutated (EGFR-m) NSCLC has rapidly evolved, yet there remains limited self-reported information about the lived experience. In this paper, we describe the clinical characteristics and treatment experiences of people living with EGFR-m lung cancer from Project PRIORITY, a patient-driven study. …”
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Through the lens of Good Participatory Practice: Findings and lessons learned from the healthcare worker subcommittee of the COVID-19 Healthcare Worker Exposure Response and Outcom... by Mei Lin Chen-Lim, Jayne F. Koellhoffer, Kisha Batey Turner, Martha Summerlin, Anoop George, Eileen Handberg, Daryl Lawrence, Syed Hasan Naqvi, Emily O’Brien, Lauren Cohen, Patty McAdams, Laura Webb, Renee Leverty

“…Engagement of the HCW Subcommittee resulted in representing their lived experience and ensured that their perspectives as HCWs were incorporated into the HERO Research. …”
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Exploring the experiences of children's palliative care for forced migrant families in the United Kingdom: an interpretative phenomenological study by Marie Clancy, Caroline Bradbury-Jones, Jenny Phillimore, Julie Taylor

“…Interdisciplinary education including the use of lived-experience expert insights is also advocated. Sufficient time to build relationships, the importance of interpreter support and the need for better access to hospice care for forced migrant families is also recommended.…”
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“It’s more than a ride” veteran perceptions of peer specialist qualities and activities that were most valuable for post-incarceration reentry: a qualitative analysis by Eric Richardson, Kimberlee Flike, Justeen Hyde, Beth Ann Petrakis, D. Keith McInnes, Bo Kim

“…Results Veterans found the peer specialist’s physical and emotional availability, shared lived experience, and connection to resources to be invaluable for successful reentry post-incarceration. …”
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Self-Harm in Eating Disorders (SHINE): a mixed-methods exploratory study by Maria Michail, Helen Bould, Anna Lavis, Sheryllin McNeil, Anthony Winston, Kalen Reid, Christina L Easter, Rosina Pendrous

“…We anticipate disseminating findings to clinical, academic and lived experience audiences, at academic conferences, through peer-reviewed articles, and through various public engagement activities (eg, infographics, podcasts).…”
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Varying circumstances surrounding opioid toxicity deaths across ethno-racial groups in Ontario, Canada: a population-based descriptive cross-sectional study by Tara Gomes, Mina Tadrous, Sophie A Kitchen, Frank Crichlow, Tonya J Campbell, Cynthia Damba, Colin H Johnson, Ashley Smoke

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Designing the First Pregnancy Guaranteed Income Program in the United States: Qualitative Needs Assessment and Human-Centered Design to Develop the Abundant Birth Project by Deborah Karasek, Jazzmin C Williams, Michaela A Taylor, Monica M De La Cruz, Stephanie Arteaga, Sabra Bell, Esperanza Castillo, Maile A Chand, Anjeanette Coats, Erin M Hubbard, Latriece Love-Goodlett, Breezy Powell, Solaire Spellen, Zea Malawa, Anu Manchikanti Gomez

“…MethodsThe research team included community researchers, community members with lived experience as Black or Pacific Islander pregnant, and parenting people in the San Francisco Bay Area. …”
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A scoping review on peer-led interventions to improve youth mental health in low- and middle-income countries by Dana Chow, Dunstan J. Matungwa, Elizabeth R. Blackwood, Paul Pronyk, Dorothy Dow

“…Peer-led interventions are versatile in terms of both the types of interventions and mode of delivery. Lived experience, mutual respect and reduced stigma make this method a highly unique and effective way to engage this age group. …”
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