Promoting Digital Health Data Literacy: The Datum Project by Daniel Powell, Laiba Asad, Elissa Zavaglia, Manuela Ferrari

“…The Datum project, funded by the Fondation Barreau du Quebec, was created to help these actors better understand legal and ethical issues regarding the collection, use, and disclosure of digital health data for the purposes of scientific research, thereby enhancing literacy around data privacy. …”
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Health data sharing in Germany: individual preconditions, trust and motives by Elias Kühnel, Felix Wilke

Subjects: “…health data…”
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Minimum elements for reporting a feasibility assessment of algorithms based on routinely collected health data for multi-jurisdiction use: Health Data Research Network Canada recommendations by Naomi Hamm, Sharon Bartholomew, Yinshan Zhao, Sandra Peterson, Saeed Al-Azazi, Kimberlyn McGrail, Lisa Lix

“… Background Research and surveillance using routinely collected health data rely on algorithms or definitions to ascertain disease cases or health measures. …”
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Stakeholders' perceptions of personal health data sharing: A scoping review. by Prima Alam, Ana Bolio, Leesa Lin, Heidi J Larson

“…The rapid advancement of digital health technologies has heightened demand for health data for secondary uses, highlighting the importance of understanding global perspectives on personal information sharing. …”
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Improved Coupled Tensor Factorization with Its Applications in Health Data Analysis by Qing Wu, Jie Wang, Jin Fan, Gang Xu, Jia Wu, Blake Johnson, Xingfei Li, Quan Do, Ruiquan Ge

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Patient Perspectives on Health Data Privacy and Management: “Where Is My Data and Whose Is It?” by Mart Wetzels, Eva Broers, Peter Peters, Loe Feijs, Jos Widdershoven, Mirela Habibovic

“…Sharing of non-medical health data (e.g.,, physical activity) was considered unnecessary. …”
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Application of Patient-Generated Health Data Among Older Adults With Cancer: Scoping Review by Yesol Kim, Geonah Kim, Hyeonmi Cho, Yeonju Kim, Mona Choi

“… BackgroundThe advancement of information and communication technologies has spurred a growing interest in and increased applications of patient-generated health data (PGHD). In particular, PGHD may be promising for older adults with cancer who have increased survival rates and experience a variety of symptoms. …”
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Open government data in health sector: a systematic literature review by Patrícia Nascimento Silva, Sarah Nascimento Silva

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eHealth platforms as user–data communication: Examining patients’ struggles with digital health data by Mahnke Martina Skrubbeltrang, Nielsen Mikka

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Participant Contributions to Person-Generated Health Data Research Using Mobile Devices: Scoping Review by Shanshan Song, Micaela Ashton, Rebecca Hahn Yoo, Zoljargal Lkhagvajav, Robert Wright, Debra J H Mathews, Casey Overby Taylor

“… BackgroundMobile devices offer an emerging opportunity for research participants to contribute person-generated health data (PGHD). There is little guidance, however, on how to best report findings from studies leveraging those data. …”
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Applicability of Retrospective and Prospective Gender Scores for Clinical and Health Data: Protocol for a Scoping Review by Lea Schindler, Hilke Beelich, Selina Röll, Elpiniki Katsari, Sylvia Stracke, Dagmar Waltemath

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Fully connecting the Observational Health Data Science and Informatics (OHDSI) initiative with the world of linked open data by Juan M. Banda

“…The usage of controlled biomedical vocabularies is the cornerstone that enables seamless interoperability when using a common data model across multiple data sites. The Observational Health Data Science and Informatics (OHDSI) initiative combines over 100 controlled vocabularies into its own. …”
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Preserving information while respecting privacy through an information theoretic framework for synthetic health data generation by Nadir Sella, Florent Guinot, Nikita Lagrange, Laurent-Philippe Albou, Jonathan Desponds, Hervé Isambert

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Real world perspectives on endometriosis disease phenotyping through surgery, omics, health data, and artificial intelligence by Camran R. Nezhat, Tomiko T. Oskotsky, Joshua F. Robinson, Susan J. Fisher, Angie Tsuei, Binya Liu, Juan C. Irwin, Brice Gaudilliere, Marina Sirota, David K. Stevenson, Linda C. Giudice

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Digital Determinants of Health: Health data poverty amplifies existing health disparities-A scoping review. by Kenneth Eugene Paik, Rachel Hicklen, Fred Kaggwa, Corinna Victoria Puyat, Luis Filipe Nakayama, Bradley Ashley Ong, Jeremey N I Shropshire, Cleva Villanueva

“…Health data poverty is often an unseen factor which leads to perpetuating or exacerbating health disparities. …”
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Situational analysis of the quality of maternal, child, and adolescent health data in the health districts of Thiès, Mbour, Kédougou, and Saraya in Senegal by Fatoumata Binetou Diongue, Adama Faye, Cheikh Loucoubar, Ndèye Marème Sougou, Ibrahima Sy, Adama Tall, Youssoupha Ndiaye, Samba Cor Sarr

“…Summary Introduction In Senegal, the Routine Health Information System (RHIS) captures the majority of data from the Ministry of Health and Social Action (MHSA) public structures and very little health data from the private sector and other ministerial departments. …”
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Retracted: Characteristics Analysis of Mental Health Data of College Students Based on Convolutional Neural Network and TOPSIS Evaluation Model by Discrete Dynamics in Nature and Society

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Harmonizing population health data into OMOP common data model: a demonstration using COVID-19 sero-surveillance data from Nairobi Urban Health and Demographic Surveillance System by Michael Ochola, Sylvia Kiwuwa-Muyingo, Tathagata Bhattacharjee, David Amadi, Maureen Ng’etich, Damazo Kadengye, Henry Owoko, Boniface Igumba, Jay Greenfield, Jim Todd, Agnes Kiragga, Agnes Kiragga

Subjects: “…observational health data…”
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Comorbidity Networks From Population-Wide Health Data: Aggregated Data of 8.9M Hospital Patients (1997–2014) by Elma Dervić, Katharina Ledebur, Stefan Thurner, Peter Klimek

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INSPIRE Datahub: A Pan-African Integrated Suite of Services For Harmonising Longitudinal Population Health Data Using OHDSI Tools. by Bhattacharjee, Tathagata, Kiwuwa-Muyingo, Sylvia, Kanjala, Chifundo, Maoyi, Molulaqhooa L., Amadi, David, Ochola, Michael, Kadengye, Damazo, Gregory, Arofan, Kiragga, Agnes, Amelia, Taylor, Greenfield, Jay, Slaymaker, Emma, Todd, Jim, INSPIRE Network8

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