Mitochondrial disease registries worldwide: A scoping review. by Ammanie Abdul-Fatah, Leila Esmaeilisaraji, Crisel Mae Juan, Martin Holcik

“…Stakeholder consultations were also performed with patient caregivers, advocates, and researchers to provide perspectives beyond those found in the literature. …”
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Social support sources for people with palliative care needs at home: a scoping review by Trudy Schutter, Ian Koper, Kris Vissers, Jeroen Hasselaar

“…Results Social support to people at home with palliative care needs and their relatives is mainly provided by informal caregivers, namely family, friends and neighbours. These people providing social support is perceived as normal, natural and is expected by the recipient. …”
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Highlights of 2023-Print Issue by Patient Safety Authority

“…If your work can help advance patient safety, please [submit it to us for consideration](https://patientsafetyj.com/for-authors), and kindly share our journal with friends, family, colleagues, and caregivers. [Subscribe to our journal email list](https://lp.constantcontactpages.com/sl/otqI5QB/journalupdates) to be updated on new articles as they are published online.…”
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Culture and end of life care: a scoping exercise in seven European countries. by Marjolein Gysels, Natalie Evans, Arantza Meñaca, Erin Andrew, Franco Toscani, Sylvia Finetti, H Roeline Pasman, Irene Higginson, Richard Harding, Robert Pool, Project PRISMA

“…The following themes facilitated cross-country comparison: setting, caregivers, communication, medical EoL decisions, minority ethnic groups, and knowledge, attitudes and values of death and care. …”
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Parents' knowledge and practices of child eye health care: A scoping review. by Nor Diyana Hani Ghani, Norliza Mohamad Fadzil, Zainora Mohammed, Mohd Harimi Abd Rahman, Normah Che Din

“…<h4>Background</h4>Treating children's eyes is not just a privilege for a child, it is an essential requirement for their visual health. Parents, as caregivers, have a paramount responsibility to make decisions regarding their children's eye health. …”
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Incidence and Prevalence of Alzheimer’s Disease in Medicare Beneficiaries by Haixin Zhang, Amir Abbas Tahami Monfared, Quanwu Zhang, Lawrence S. Honig

“…Our findings address the reality of Alzheimer’s disease in clinical practice in the United States that is confronted by healthcare professionals, payors, healthcare decision-makers, patients, and caregivers, and may offer a realistic gauge for patient triage for treatment, healthcare resource allocation, and health-systems’ operational prioritization. …”
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Manual wheelchair training programs: a scoping review of educational approaches and intended learning outcomes by Kimberly Charlton, Carolyn Murray, Natasha Layton, Stacie Attrill

“…Included papers related to manual wheelchair training programs/protocols describing intended wheelchair training outcomes for adults and/or caregivers. Data extracted included study characteristics, type of intervention, explicit learning theories, instructional design principles and intended learning outcomes. …”
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A scoping review of medication self-management intervention tools to support persons with traumatic spinal cord injury. by Lauren Cadel, Stephanie R Cimino, Glyneva Bradley-Ridout, Sander L Hitzig, Tanya L Packer, Lisa M McCarthy, Tejal Patel, Aisha K Lofters, Shoshana Hahn-Goldberg, Chester H Ho, Sara J T Guilcher

“…Only one of the interventions was co-developed with patients, caregivers, and clinicians. There was minimal overlap in the outcomes measured across the studies, but learning outcomes (e.g., perceived knowledge and confidence), behavioural outcomes (e.g., management strategies, data entry), and clinical outcomes (e.g., number of medications, pain scores, functional outcomes) were evaluated. …”
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Health inequalities for older people from minority ethnic groups receiving palliative care and end of life care: A scoping review protocol. by Narin Aker, Rachael Frost, Kate Walters, Emily West, Nathan Davies

“…<h4>Inclusion criteria</h4>The population will be older people of different minority ethnic groups who are receiving palliative or end of life care, family caregivers, and health and social care professionals. …”
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The impact of the COVID-19 virus and pandemic on healthcare utilization, access, delivery, experiences, and outcomes in the spinal cord injuries/dysfunction population: A scoping r... by Arrani Senthinathan, Stephanie Cimino, Susan B Jaglal, B Catharine Craven, Karen Tu, Sara Guilcher

“…The SCI/D population had issues with maintaining caregiving support. It was unclear if the COVID-19 virus infection impacted individuals with SCI/D differently than the general population.…”
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A Randomized Controlled Trial of Misoprostol and Sulprostone to End Pregnancy after Fetal Death by Kristin Van Mensel, Filip Claerhout, Patrick Debois, Marc J. N. C. Keirse, Myriam Hanssens

“…There was no difference in either gastrointestinal side effects, as reported by the women and their caregivers, use of analgesia, women's pain perception, blood loss or placental retention. …”
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Seminoma of Testis Masquerading as Orchitis in an Adult with Paraplegia: Proposed Measures to Avoid Delay in Diagnosing Testicular Tumours in Spinal Cord Injury Patients by Subramanian Vaidyanathan, Peter L. Hughes, Paul Mansour, Bakul M. Soni

“…To prevent delay in the diagnosis of testicular tumours in SCI patients, we propose the following measures: (1) patients who develop swelling of the testis should consult a physician as soon as possible for clinical examination; blind antibiotic therapy should be avoided if possible; (2) if clinical examination reveals a hard swelling of the testis and the typical features of acute urinary infection are absent, an ultrasound scan of the scrotum should be performed as soon as possible; (3) in patients with equivocal ultrasound findings, ultrasound-guided, fine-needle aspiration cytology may allow an early diagnosis of testicular malignancy; (4) education of SCI patients and their caregivers is needed to implement these recommendations.…”
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Is leisure sedentary time associated with mental health issues? Evidence from China Health and Nutrition Survey by Hao Li, Hao Li, Weihong Zeng, Weihong Zeng

“…Among older adults, social engagement and support from female caregivers showed greater potential to reduce the detrimental mental health impact of leisure sedentary time. …”
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Risk Factors Associated with Helminthic Intestinal Infection in Lurambi Subcounty, Kakamega, Kenya by Ruth W. Kiiti, Elizabeth N. Omukunda, Jackson C. Korir

“…Risk factors associated with STH infection were obtained using a structured questionnaire answered by the children’s caregivers. Stool samples were examined using the standard quantitative Kato-Katz technique. …”
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Geriatric rehabilitation in the Netherlands and their preparedness for the increase in older adults: a scoping review by Hanne Jacomijntje van de Haar, Maria Nordheim Alme

“…Follow-up care and prevention strategies focus on home rehabilitation, the implementation of e-health, and support for informal caregivers. No articles focused specifically on preparedness, and a limited number of studies mentioned the use of resources for geriatric rehabilitation. …”
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Symptom clusters and networks analysis in acute-phase stroke patients: a cross-sectional study by Siyu Zhou, Yuan Zhang, Huijuan He, Xiangrong Wang, Mengying Li, Na Zhang, Jiali Song

“…Abstract The symptoms of stroke jeopardize patients’ health and increase the burden on society and caregivers. Although the traditional symptom cluster research paradigm can enhance management efficiency, it fails to provide targets for intervention, thereby hindering the development of patient-centered precision medicine. …”
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A scoping review of telehealth diagnosis of autism spectrum disorder. by Katherine Kuhl-Meltzoff Stavropoulos, Yasamin Bolourian, Jan Blacher

“…The seven papers that reported social validity indicated that caregivers, as well as adult participants and clinicians, were mostly satisfied with telehealth. …”
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Nebulised 3% hypertonic saline versus 0.9% saline for treating patients hospitalised with acute bronchiolitis: protocol for a randomised, double-blind, multicentre trial by Sara Szupieńko, Aleksandra Buczek, Henryk Szymański

“…The primary outcome measure will be the duration of hospitalisation.Ethics and dissemination The Bioethics Committee of the Lower Silesia Medical Chamber in Wroclaw approved the study protocol (4/PNDR/2023). Caregivers will receive oral and written information about the study and written informed consent will be obtained by the study physicians. …”
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Anti-vascular Endothelial Growth Factor Outpatient Treatment Patterns in Patients with Exudative Age-related Macular Degeneration from a Japanese Hospital Claims Database by Tomohiro Iida, Aya Narimatsu, Kenji Adachi, Edward CY Wang

“…Nonetheless, patients still visit the hospital frequently, which can significantly burden patients, caregivers, and healthcare providers.…”
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Are the Menstrual Characteristics Similar in Adolescent and Adult Women with Cerebral Palsy? by Hanife Dogan, Duygu Turker, Ozge Coban, Merve Basol Goksuluk, Nuriye Ozengin, Necmiye Un Yildirim

“…Providing training that raises awareness and behavior-changing education for women with cerebral palsy and their caregivers can help to improve gynecological health. …”
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