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The adolescent experience of hereditary angioedema: a qualitative study of disease burden and treatment experience
Published 2025-01-01“…Participants were recruited via a patient advocacy organization and were eligible to take part in this study if they had a confirmed diagnosis of type I or type II HAE and were currently on prophylactic treatment to prevent HAE attacks. …”
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Globalizing opposition to pro-environmental institutions: The growth of counter climate change organizations around the world, 1990 to 2018.
Published 2025-01-01“…More than two decades of social scientific research has identified the growing network of corporations, think tanks, nonprofits, and advocacy organizations that aim to obstruct climate change action within the United States. …”
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Food Integrity and Food Technology Concerns in Canada: Evidence from Two Public Surveys
Published 2018-01-01“…However, trust in advocacy organizations appears to be related to higher concerns in each case. …”
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BIPOC Community Perspectives on Environmental Justice in Georgia
Published 2025-01-01“…Furthermore, before community advocacy organizations and community members can advocate for and enact policies and other political decisions on behalf of these communities, we must first ask them what environmental harm has looked like and what solutions they need as we look toward the future. …”
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Effectiveness of a Patient Support Program in Supporting Access to Therapy for Solid Tumor Malignancies
Published 2016-10-01“…**Background:** Certain governmental agencies, patient advocacy organizations, and pharmaceutical manufacturers have implemented programs to assist patients in overcoming barriers to accessing healthcare. …”
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