Operationalizing the principles of patient engagement through a Patient Advisory Council: Lessons and recommendations by Ingrid Nielssen, Maria Santana, Surakshya Pokharel, Kimberly Strain, Veronika Kiryanova, Sandra Zelinsky, Zoha Khawaja, Prachi Khanna, Anni Rychtera, Anshula Ambasta

Subjects: Get full text

Pilot Trial of Quarterly Text-Based Patient Contacts to Increase Engagement in HIV Care Postpartum: Lessons Learned by Emily Johnson, Jillian Harvey, Katie Kirchoff, Rebecca Verdin, Samantha D’Orio, Kathryn King, Gweneth B. Lazenby

Subjects: Get full text

‘Safety is about partnership’: Safety through the lens of patients and caregivers by Kerry Kuluski, Maaike Asselbergs, Ross Baker, Katharina (Kathy) Kovacs Burns, Frances Bruno, Marianne Saragosa, Anne MacLaurin, Virginia Flintoft, Lianne Jeffs

Subjects: Get full text

Unlocking Engagement: Enhancing Participation in Research With Vulnerable Populations by Laura Rojas-Rozo, Geneviève Arsenault-Lapierre, Geneviève Arsenault-Lapierre, Geneviève Arsenault-Lapierre, Diane Dumaresq, Thérèse Trépanier, Paul Lea, Karen Myers Barnett, Denis O’Connor, Rosette Fernandez Loughlin, Kori Miskucza, Mary Beth Wighton, Claire Godard-Sebillotte, Andrea Gruneir, Jean-Baptiste Beuscart, Susan E. Bronskill, Nadia Sourial, Eric E. Smith, Jennifer Bethell, Isabelle Vedel, Isabelle Vedel, The COVID ROSA Research Team, Juanita Bacsu, Howard Bergman, Joanne Bracken, Matthieu Calafiore, Yves Couturier, Nouha Ben Gaied, Serge Gauthier, Mario Gregorio, Sid Feldman, Ngozi Iroanyah, Aaron Jones, Vladimir Khanassov, Julie Kosteniuk, Ginny Lane, Laura C. Maclagan, Carrie McAiney, Debra Morgan, Megan O’Connell, Manuel Montero Odasso, Lisa Poole, Jacqueline Quail, Pamela Roach, Dallas Seitz, Saskia Sivananthan, Natalia Smith, Machelle Wilchesky

Subjects: Get full text

A systematic review of theories, models and frameworks used for youth engagement in health research by Sherald Sanchez, Rachel Thorburn, Marika Rea, Pamela Kaufman, Robert Schwartz, Peter Selby, Michael Chaiton

Subjects: “…patient engagement…”
Get full text

Preclinical systematic review of CCR5 antagonists as cerebroprotective and stroke recovery enhancing agents by Ayni Sharif, Matthew S Jeffers, Dean A Fergusson, Raj Bapuji, Stuart G Nicholls, John Humphrey, Warren Johnston, Ed Mitchell, Mary-Ann Speirs, Laura Stronghill, Michele Vuckovic, Susan Wulf, Risa Shorr, Dar Dowlatshahi, Dale Corbett, Manoj M Lalu

Subjects: Get full text

IoT‐based remote monitoring system: A new era for patient engagement by Khalad Agali, Maslin Masrom, Fiza Abdul Rahim, Yazriwati Yahya

Subjects: Get full text

Engagement in healthcare decision-making and associated factors among patients with chronic non-communicable diseases in Southwest Ethiopia, 2023 by Sadik Abdulwehab, Yeshitila Belay, Frezer Kedir, Ebrahim Yimam, Admasu Belay

Subjects: “…Patient engagement…”
Get full text

What guidance exists to support patient partner compensation practices? A scoping review of available policies and guidelines by Grace Fox, Dean A. Fergusson, Ahmed Sadeknury, Stuart G. Nicholls, Maureen Smith, Dawn Stacey, Manoj M. Lalu

Subjects: Get full text

Family Interviews Improve Health Service Recommendations in Mortality Review Process: A Mixed‐Methods Assessment by Catherine Kothari, Fernando Ospina, Nia Evans, Cynthia Bane, Joi Presberry Dixon, Vaishali Patil, Ruth Butters, Rosemary Fournier, Susanna C. Joy, Brenda O'Rourke, Josephine Woods, Debra Lenz, Aaron L. Davies

Subjects: “…community and patient engagement…”
Get full text

The importance of justified patient trust in unlocking AI's potential in mental healthcare by Tita Alissa Bach, Niko Männikkö

Subjects: Get full text

Amplifying adolescent and emerging adult voices: Development of a pediatric-to-adult transition research advisory council by Zoya Punjwani, Megan Patton, Brooke Allemang, Cassandra Chisholm, Mica Pabia, Sarah Mooney, Paul Siska, Laurel Ryan, Daniella San Martin-Feeney, Ken Pfister, Andrew Mackie, Gina Dimitropoulos, Susan Samuel

Subjects: “…Patient engagement…”
Get full text

Results of a patient engagement training for health advisors: a study of self-perceived competency enhancements by Eduardo Perez-Guagnelli, Nicole Jardine, Amye Leong, Chris Rao, Michael Cohen, Annabel De Maria

Subjects: “…Patient engagement…”
Get full text

Through Their Eyes: Using Photovoice to Capture the Capacity‐Building Journey of Long Covid Patient Experts by Nabil Natafgi, Katie Parris, Erin Walker, Tracey Gartner, Jeanette Coffin, Ariana Mitcham, Luis Sanchez Ferrer, Maushmi K. Patel, Haley Wymbs, Ann Blair Kennedy

Subjects: Get full text

Lived Experience and Family Engagement in Mental Health and Substance use Health Research: Case Profiles of Five Studies by Lisa D. Hawke, Lena Quilty, Branka Agic, Darren B. Courtney, Gray Liddell, Etienne Sibille, Sheila Jennings, Joshua Orson, Holly Harris, Shelby McKee, Cara Sullivan, Sophie Soklaridis, Tarek K. Rajji, Sanjeev Sockalingam

Subjects: Get full text

Using Human‐Centred Design to Codesign Patient Engagement Tools With a Patient Advisory Council: Successes and Challenges by Madelyn Knaub, Santiago Leon, Surakshya Pokharel, Veronika Kiryanova, Kim Giroux, Prachi Khanna, Anna Rychtera, D'Arcy Duquette, Pamela Mathura, Nancy Verdin, Anshula Ambasta

Subjects: Get full text

Patient partner engagement in the publication process: challenges and possible solutions by Krista E. Cooksey, Mark Neuman, Mara Bollini, Bethany Pennington, Hugo de O. Campos, Kathleen Oberst, Melissa Wurst, Mary C. Politi

Subjects: “…Patient engagement…”
Get full text

Building Engagement‐Capable Environments for Health System Transformation: Development and Early Implementation of a Capability Framework for Patient, Family and Caregiver Engageme... by Julia Abelson, Laura Tripp, Reham Abdelhalim, Lotje Hives, Betty‐Lou Kristy, Maureen Smith, Laura Tenhagen, Lindsay Wingham‐Smith, the Engagement Capable OHT Working Group

Subjects: Get full text

Establishing Effective Patient Engagement Through a Terms of Reference to Foster Inclusivity and Empowerment in Research: Example From a Healthcare Transition Quality Indicators Pr... by Sarah E. P. Munce, Tomisin John, Dorothy Luong, Sarah Mooney, Lisa Stromquist, Kyle Chambers, Marilyn Crabtree, Sanober Diaz, Gina Dimitropoulos, Megan Henze, Amanda Higgins, Elaine Li, Samadhi Mora Severino, Melanie Penner, Jacklynn Pidduck, Michelle Wan, Laura Williams, Darryl Yates, Alene Toulany

Subjects: Get full text

Overcoming barriers to implementation of patient engagement in clinical trials: feasibility testing of an embedded study by Geneviève Castonguay, Sylvain Bédard, Anick Dubois, Émilie Lessard, Léna Rivard, Ghislaine Rouly, Antoine Boivin

Subjects: “…Patient Engagement…”
Get full text