‘I haven’t met them, I don’t have any trust in them. It just feels like a big unknown’: a qualitative study exploring the determinants of consent to use Human Fertilisation and Emb... by Claire Carson, Lisa Hinton, Jenny Kurinczuk, Maria Quigley

“…Patients were influenced by the wider context of infertility, as well as general concerns about data sharing and security. Low consent rates, which vary by clinic and likely also by patients’ characteristics, have adverse implications for research conducted using HFEA data collected after 2008. …”
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Changing trends in human brucellosis in pastoral and agricultural China, 2004–2019: a Joinpoint regression analysis by Xiaojuan Ma, Zhuo Liu, Yuhui Geng, Yuan Zhao, Hua Meng, Mingbo Chen, Ting Pan, Dongfeng Pan, Peifeng Liang

“…Methods Annual and monthly incidence and numbers of reported cases of human brucellosis in regional China between 2004 and 2019 were accessed from the National Public Health Science Data Sharing Center, and the annual percentage change (APC) in pastoral and agricultural areas was calculated. …”
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Deep Learning Framework for Advanced De-Identification of Protected Health Information by Ahmad Aloqaily, Emad E. Abdallah, Rahaf Al-Zyoud, Esraa Abu Elsoud, Malak Al-Hassan, Alaa E. Abdallah

“…By enabling the de-identification of medical records, this research strengthens patient confidentiality, promotes compliance with privacy regulations, and facilitates safe data sharing for research and analysis.…”
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Multi-study fMRI outlooks on subcortical BOLD responses in the stop-signal paradigm by Scott Isherwood, Sarah A Kemp, Steven Miletić, Niek Stevenson, Pierre-Louis Bazin, Birte Forstmann

“…It demonstrates the significant potential that open-access data sharing can offer to the research community. With an increasing number of datasets being shared publicly, researchers will have the ability to conduct meta-analyses on more than just summary data.…”
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Evaluation of the Education Plan and Activities of Swiss Sport Integrity. A report of a science-practice co-operation. by Christoffer Klenk, Jonas Personeni

“…Results reveal that accepting and including external perspectives, understanding of the framework conditions, mutual trust and engagement, dedicated task specification and distrubition, knowledge and data sharing are perceived beneficial for co-operating. …”
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Measuring how healthcare organizations respond after patients experience harm: perspectives and next steps by Lauge Sokol-Hessner, Lauge Sokol-Hessner, John Adams, Carole Hemmelgarn, Beth Miller, Diane O'Connor, Melissa Parkerton, Leilani Schweitzer, J. Matthew Austin, J. Matthew Austin

“…Recommended next steps include: build a national coalition of interested parties to guide the work; overcome barriers to measurement and improve feasibility, especially through the engagement of patient safety and risk management software vendors; explore measure development processes that focus on patient, family, and clinician-centered outcome and experience measures; define nationally recognized standardized CRP measures; consider the role for regulatory and financial incentives to promote their use; and facilitate data sharing and comparative analysis. Ongoing engagement and strategy will be essential to move CRP measurement forward.…”
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Looking for the origins of the human brain: The role of South Africa in the history of palaeoneurology by Amélie Beaudet, Edwin de Jager, Mirriam Tawane, Brendon Billings

“…Additionally, we examine how the use of digital replicas of fossil hominin endocasts and the need to study extant human brains to form a comparative platform might raise questions about research practices (e.g. study and exhibition of fossil and extant human brains) and management of such invaluable heritage resources (e.g. data sharing). We finally consider how our view of human brain evolution, and in particular the putative uniqueness of the hominin brain, has changed over the last century. …”
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Trends and opportunities in renewable energy investment in Saudi Arabia: Insights for achieving vision 2030 and enhancing environmental sustainability by Mahmoud Mohamed Selim, Nasser Alshareef

“…Data Availability: Data sharing is not applicable to this article as no data sets were generated during the current study.…”
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A practical guide to FAIR data management in the age of multi-OMICS and AI by Douaa Mugahid, Jared Lyon, Charlie Demurjian, Nathan Eolin, Charlie Whittaker, Mark Godek, Douglas Lauffenburger, Sarah Fortune, Stuart Levine

“…Here, we outline a practical approach to multi-modal data management and FAIR sharing, which are in line with the latest US and EU funders’ data sharing policies. This framework can help extend the longevity and utility of data by allowing facile use and reuse, accelerating scientific discovery in the biomedical sciences.…”
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The urgency of addressing zoonotic diseases surveillance: Potential opportunities considering One Health approaches and common European Data Spaces by Nicola Riccetti, Serena Signorelli, Angela Fanelli, Emanuele Massaro, Manlio Bacco, Wojciech Szewczyk, Dolores Ibarreta, Juan Carlos Ciscar, Alessandro Cescatti, Sandra Coecke, Ilaria Capua

“…Consequently, this approach might foster data sharing from Member States by leveraging existing developments within data spaces in terms of, for example, data security. …”
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Why and how should we simulate platform trials? Learnings from EU-PEARL by Elias Laurin Meyer, Tobias Mielke, Marta Bofill Roig, Michaela Maria Freitag, Peter Jacko, Pavla Krotka, Peter Mesenbrink, Tom Parke, Sonja Zehetmayer, Dario Zocholl, Franz König

“…To give some examples, the newly developed software supports simulating staggered entry of treatments throughout the trial, choosing different options for control data sharing, specifying different platform stopping rules and platform-level operating characteristics. …”
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Designing smartphone-based cognitive assessments for schizophrenia: Perspectives from a multisite study by Aishwarya Raje, Abhijit R. Rozatkar, Urvakhsh Meherwan Mehta, Ritu Shrivastava, Ameya Bondre, Manaal Amir Ahmad, Anshika Malviya, Yogendra Sen, Deepak Tugnawat, Anant Bhan, Tamonud Modak, Nabagata Das, Srilakshmi Nagendra, Erlend Lane, Juan Castillo, John A. Naslund, John Torous, Soumya Choudhary

“…Thematic analysis reinforces the importance of feedback and data sharing, although this presents a challenge, given the novel nature of smartphone-based cognitive measures that have not yet been standardized or validated.…”
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Achieving inter- and transdisciplinarity in Ecohealth: insights from a rodent-borne disease project in a polycrisis era by Isabelle Arpin, Clémence Massart, Vincent Bourret, Guillaume Castel, Valeria Carolina Colombo, Jana Eccard, Jasmin Firozpoor, Maciej Grzybek, Heikki A. Henttonen, Herwig Leirs, Andrew McManus, Ben Roche, Tarja Sironen, Vincent Sluydts, Peter Stuart, Annetta Zintl, Nathalie Charbonnel

“…Our Ecohealth-inspired project on rodent-borne diseases, initiated just before the COVID-19 pandemic, provided an opportunity to evaluate ITDR implementation.MethodsWe employed a recently developed semi-quantitative evaluation method to measure our project’s success in achieving ITDR and analyzed factors influencing this achievement.ResultsThe project showed strengths in system description, team task allocation, and data sharing, but had lower scores in engaging societal actors throughout the project cycle.DiscussionWe identified the underexplored influence of problem wickedness as a critical determinant of ITDR success. …”
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The necessity of gestational vitamin D supplementation depends on ambient temperature: concern for infant vitamin D status by Wanjun Yin, Wanjun Yin, Wanjun Yin, Wanjun Yin, Lei Zhang, Lei Zhang, Peng Zhu, Peng Zhu

“…The daily mean temperature of Hefei was obtained from the China Meteorological Data Sharing Service System. Individual information on sociodemographic characteristics, perinatal health status, lifestyle, and birth outcomes was collected prospectively.ResultsThe best-fit relationship was observed in the regression model using a quadratic function to describe the association between the ambient temperature of the eighth gestational month (29–32 gestational weeks) and cord blood 25(OH)D concentrations (R2 = 0.358, p < 0.001). …”
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Sandpiper optimization with hybrid deep learning model for blockchain-assisted intrusion detection in iot environment by Mimouna Abdullah Alkhonaini, Manal Abdullah Alohali, Mohammed Aljebreen, Majdy M. Eltahir, Meshari H. Alanazi, Ayman Yafoz, Raed Alsini, Alaa O. Khadidos

“…In this case, the BC technology can be used for a secure data-sharing process. In the presented SPOHDL-ID technique, the selection of features from the network traffic data takes place using the SPO model. …”
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Using the WHO building blocks to examine cross-border public health surveillance in MENA by Laura Buback, Shayanne Martin, Esbeydy Pardo, Farah Massoud, Jesus Formigo, Atousa Bonyani, Noha H. Farag, Zayid K. Almayahi, Kenta Ishii, Susie Welty, Dana Schneider

“…Key challenges include delayed and incomplete data sharing, insufficient funding across sectors, inadequate training, inconsistent data definitions, and limited integration of health data for mobile populations. …”
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Descemet Endothelial Thickness Comparison Trial 1 (DETECT 1): outcome masked, placebo-controlled trial comparing two types of corneal transplant surgeries and effect of rho kinase... by Thomas M Lietman, Jennifer Rose-Nussbaumer, Bennie H Jeng, Benjamin F Arnold, Winston Chamberlain, Charles C Lin, Jennifer Y Li, William Gensheimer, Jameson Clover, Nicole Varnado, Sarah Abdelrahman

“…Dissemination of findings through peer-reviewed publications and national/international meetings will facilitate knowledge translation and guide clinical practice in the field of corneal transplantation.Ethics and dissemination A data and safety monitoring committee (DSMC) has been empaneled by the NEI.All study protocols will be subject to review and approval by WCG IRB as the single IRB of record.This study will comply with the National Institute of Health (NIH) Data Sharing Policy and Policy on the Dissemination of NIH-Funded Clinical Trial Information and the Clinical Trials Registration and Results Information Submission rule. …”
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Analisis Performa Algoritma Decision Tree, Naive Bayes, K-Nearest Neighbor untuk Klasifikasi Zona Daerah Risiko Covid-19 di Indonesia by Ainurohmah Ainurrohmah, Dian Tri Wiyanti

“…The research method uses 10-fold cross validation for data sharing and confusion matrix to assess performance. …”
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Family-focused intervention programme to foster adolescent mental health and well-being: protocol for a multicountry cluster randomised factorial trial (FLOURISH Phase 2) by Heather M Foran, Marija Raleva, Nina Heinrichs, Graham Moore, Yulia Shenderovich, Xiang Zhao, Judith Simon, Antonio Piolanti, Viorel Babii, Janina Mueller, Franziska Waller, Dennis Wienand, Swetha Sampathkumar, Ivo Kunovski

“…The results will be disseminated through peer-reviewed journals, conferences, webinars in multiple languages, regional forums, stakeholder meetings with policymakers and practitioners, public communication through media engagement and open access platforms, including data sharing and early release of findings.Trial registration details Trial registration: NCT06562244; Project page: https://www.flourish-study.org/about.html…”
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Using Laboratory Test Results for Surveillance During a New Outbreak of Acute Hepatitis in 3-Week- to 5-Year-Old Children in the United Kingdom, the Netherlands, Ireland, and Curaç... by Maaike C Swets, Steven R Kerr, Brian MacKenna, Louis Fisher, Merel van Wijnen, Diederik Brandwagt, Paul W Schenk, Pieter Fraaij, Leonardus G Visser, Sebastian Bacon, Amir Mehrkar, Alistair Nichol, Patrick Twomey, Philippa C Matthews, Malcolm G Semple, Geert H Groeneveld, Ben Goldacre, Iain Jones, J Kenneth Baillie

“…Federated analytics using nondisclosive, summary-level laboratory data sharing was successful, safe, and efficient. The approach holds potential as a tool for pandemic surveillance in future outbreaks. …”
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