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Improving the integrity and reproducibility of research that uses antibodies: a technical, data sharing, behavioral and policy challenge
Published 2024-12-01“…Global cooperation and coordination between multiple partners and stakeholders will be crucial to address the technical, policy, behavioral, and open data sharing challenges. We offer potential solutions by describing our Only Good Antibodies initiative, a community of researchers and partner organizations working toward the necessary change. …”
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Cross-border data sharing through the lens of research ethics committee members in sub-Saharan Africa.
Published 2024-01-01“…<h4>Results</h4>Three dominant themes were identified: (i) experiences in reviewing data sharing protocols, (ii) perceptions of data transfer tools and (iii) ethical, legal and social challenges of data sharing. …”
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Lessons for a learning health system: Effectively communicating to patients about research with their health information and biospecimens
Published 2025-01-01Subjects: Get full text
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A publicly accessible global data repository – the WHO TB-IPD platform
Published 2024-04-01Subjects: Get full text
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Architecture of a new infrastructure for data service in DT era
Published 2022-07-01Subjects: Get full text
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Data-Sharing Statements Requested from Clinical Trials by Public, Environmental, and Occupational Health Journals: Cross-Sectional Study
Published 2025-02-01“…ConclusionsOver one-third of the public, environmental, and occupational health journals did not request data-sharing statements in clinical trial reports. Among those journals that requested data-sharing statements in their submission guidance pages, more than one quarter published trial reports with no data-sharing statements. …”
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Privacy-Enhanced Data Sharing Systems from Hierarchical ID-Based Puncturable Functional Encryption with Inner Product Predicates
Published 2024-01-01“…However, HIB-IPFE is not sufficient to capture flexible data sharing and forward security. In this study, we present a notion of hierarchical identity-based puncturable HIBP-IPFE. …”
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The Multicentre Acute ischemic stroke imaGIng and Clinical data (MAGIC) repository: rationale and blueprint
Published 2025-01-01Subjects: Get full text
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Determining the level of data sharing, and number of publications, from research databases that have been given a favourable opinion by UK research ethics committees
Published 2020-09-01“…Email responses from database owners showed a range of attitudes towards data sharing.Conclusion Less than half of research databases that have received a favourable opinion from NHS research ethics committees share their data and produce publications. …”
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Authors' Reply: Commentary on “Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line”
Published 2025-01-01“… We appreciate Reierson’s thoughtful commentary on our 2019 paper, which described our experiences, ethical process, judgment calls, and lessons from a 2016-2017 data-sharing pilot between Crisis Text Line and academic researchers. …”
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Media content analysis of general practitioners’ reactions to care.data expressed in the media: what lessons can be learned for future NHS data-sharing initiatives?
Published 2020-09-01“…Future NHS patient data-sharing schemes should engage with GPs and other clinicians as key stakeholders from the earliest moments of planning, so that their views and needs are incorporated into the design of such schemes.…”
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A Middleware Applications Design for Health Information Sharing
Published 2024-06-01Subjects: Get full text
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Research on technology of data encryption and search based on access broker
Published 2018-07-01Subjects: Get full text
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