Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocate
Michelle brought experience of working with people with chronic pain to her role as a bleeding disorders nurse, before going on to develop a research department at the National Hemophilia Foundation (now the National Bleeding Disorders Foundation). Reflecting on the pain experienced by various indiv...
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| Format: | Article |
| Language: | English |
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Sciendo
2024-05-01
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| Series: | The Journal of Haemophilia Practice |
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| Online Access: | https://doi.org/10.2478/jhp-2024-0009 |
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| author | Witkop Michelle |
| author_facet | Witkop Michelle |
| author_sort | Witkop Michelle |
| collection | DOAJ |
| description | Michelle brought experience of working with people with chronic pain to her role as a bleeding disorders nurse, before going on to develop a research department at the National Hemophilia Foundation (now the National Bleeding Disorders Foundation). Reflecting on the pain experienced by various individuals she cared for, she highlights the importance of listening carefully to what patients have to say and the value of patient-reported information. Michelle explains how understanding this led her into patient advocacy, and how nurses acting as advocates for their patients supports their care and thereby enable people with bleeding disorders to live the best life they can. |
| format | Article |
| id | doaj-art-fc1a9e8ef7db45b1965c344b03aa44f1 |
| institution | Kabale University |
| issn | 2055-3390 |
| language | English |
| publishDate | 2024-05-01 |
| publisher | Sciendo |
| record_format | Article |
| series | The Journal of Haemophilia Practice |
| spelling | doaj-art-fc1a9e8ef7db45b1965c344b03aa44f12025-02-02T15:48:30ZengSciendoThe Journal of Haemophilia Practice2055-33902024-05-01111697110.2478/jhp-2024-0009Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocateWitkop Michelle0MICHELLE WITKOP recently retired as Vice President, Research Strategy, National Hemophilia Foundation, and was previously Lead Clinician-Nurse Practitioner at the Northern Regional Michigan Bleeding Disorders Center, New York, USAMichelle brought experience of working with people with chronic pain to her role as a bleeding disorders nurse, before going on to develop a research department at the National Hemophilia Foundation (now the National Bleeding Disorders Foundation). Reflecting on the pain experienced by various individuals she cared for, she highlights the importance of listening carefully to what patients have to say and the value of patient-reported information. Michelle explains how understanding this led her into patient advocacy, and how nurses acting as advocates for their patients supports their care and thereby enable people with bleeding disorders to live the best life they can.https://doi.org/10.2478/jhp-2024-0009bleeding disorderschronic painpatient advocacynursesprofessional practice |
| spellingShingle | Witkop Michelle Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocate The Journal of Haemophilia Practice bleeding disorders chronic pain patient advocacy nurses professional practice |
| title | Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocate |
| title_full | Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocate |
| title_fullStr | Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocate |
| title_full_unstemmed | Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocate |
| title_short | Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocate |
| title_sort | living caring learning listening to patients with bleeding disorders and not being afraid to advocate |
| topic | bleeding disorders chronic pain patient advocacy nurses professional practice |
| url | https://doi.org/10.2478/jhp-2024-0009 |
| work_keys_str_mv | AT witkopmichelle livingcaringlearninglisteningtopatientswithbleedingdisordersandnotbeingafraidtoadvocate |