A meta-core outcome set for stillbirth prevention and bereavement care following stillbirth in LMIC
Study objective Stillbirth is burdensome in low-income and middle-income countries (LMICs), especially in sub-Saharan Africa and South Asia. Currently, there are two core outcome sets (COS) for stillbirth (prevention and bereavement care), but these were developed with limited reflection of the need...
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BMJ Publishing Group
2025-01-01
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| Series: | BMJ Global Health |
| Online Access: | https://gh.bmj.com/content/10/1/e017688.full |
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| author | Jamie J Kirkham Declan Devane Carol Bedwell Tina Lavender Tracey A Mills Sabina Wakasiaka Rose Laisser Bellington Vwalika Nasim Chaudhry Angela Chimwaza Elizabeth Ombeva Ayebare Sudhindrashayana Fattepur Tayyeba Kiran Kushupika Dube Farai Marenga Idesi Chilinda Unice Goshomi Allen Nabisere Zaib Un Nisa |
| author_facet | Jamie J Kirkham Declan Devane Carol Bedwell Tina Lavender Tracey A Mills Sabina Wakasiaka Rose Laisser Bellington Vwalika Nasim Chaudhry Angela Chimwaza Elizabeth Ombeva Ayebare Sudhindrashayana Fattepur Tayyeba Kiran Kushupika Dube Farai Marenga Idesi Chilinda Unice Goshomi Allen Nabisere Zaib Un Nisa |
| author_sort | Jamie J Kirkham |
| collection | DOAJ |
| description | Study objective Stillbirth is burdensome in low-income and middle-income countries (LMICs), especially in sub-Saharan Africa and South Asia. Currently, there are two core outcome sets (COS) for stillbirth (prevention and bereavement care), but these were developed with limited reflection of the needs of parents in an LMIC setting. To address this gap, the objective of this study was to establish consensus on the most important outcomes for stillbirth prevention and bereavement care following stillbirth in sub-Saharan Africa and South Asia.Methods Previous stillbirth outcomes were reviewed for inclusion into the COS by senior research leaders and community engagement and involvement members from six sub-Saharan African and two South Asian countries. An online real-time Delphi survey was then conducted with healthcare professionals, parents who have experienced a stillbirth and researchers in the field to score the agreed list. The results of the Delphi were summarised and then discussed at a virtual consensus meeting where the final COS were agreed.Results 287 participants contributed towards the Delphi (143 midwives, 32 obstetricians, 50 mothers, 12 fathers and 50 researchers), with at least 2 parents attending the full consensus meetings. Consensus was reached on 13 core outcomes for stillbirth prevention covering 5 domains: obstetric, fetal, perinatal and neonatal outcomes and maternal complications. For bereavement care following a stillbirth, five core outcomes reached a consensus, which included outcomes related to labour and birth, a postpartum complication, care experience, mental health and emotional and social well-being.Discussion These COS will improve the consistency of outcomes for future research in an LMIC setting. Additionally, they will complement existing COS for stillbirth prevention and bereavement care developed in high-income settings. The output from this work will move us towards a global set of outcomes that can be used in stillbirth research worldwide. |
| format | Article |
| id | doaj-art-f39481387598416c9258c20a75c3689c |
| institution | Kabale University |
| issn | 2059-7908 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Global Health |
| spelling | doaj-art-f39481387598416c9258c20a75c3689c2025-01-29T05:25:10ZengBMJ Publishing GroupBMJ Global Health2059-79082025-01-0110110.1136/bmjgh-2024-017688A meta-core outcome set for stillbirth prevention and bereavement care following stillbirth in LMICJamie J Kirkham0Declan Devane1Carol Bedwell2Tina Lavender3Tracey A Mills4Sabina Wakasiaka5Rose Laisser6Bellington Vwalika7Nasim Chaudhry8Angela Chimwaza9Elizabeth Ombeva Ayebare10Sudhindrashayana Fattepur11Tayyeba Kiran12Kushupika Dube13Farai Marenga14Idesi Chilinda15Unice Goshomi16Allen Nabisere17Zaib Un Nisa18Centre for Biostatistics, The University of Manchester, Manchester Academic Health Science Centre, Manchester, UKSchool of Nursing and Midwifery, University of Galway, Galway, IrelandDepartment of International Public Health, Liverpool School of Tropical Medicine, Liverpool, UKDepartment of International Public Health, Liverpool School of Tropical Medicine, Liverpool, UKDepartment of International Public Health, Liverpool School of Tropical Medicine, Liverpool, UKSchool of Nursing Sciences, University of Nairobi, Nairobi, KenyaArchbishop Anthony Mayala School of Nursing, Catholic University of Health and Allied Sciences, Mwanza, TanzaniaSchool of Medicine, University of Zambia, Lusaka, ZambiaPakistan Institute of Living and Learning (PILL), Karachi, PakistanKamuzu University of Health Sciences, Lilongwe, MalawiDepartment of Nursing, Makerere University, Kampala, UgandaDepartment of Paediatrics, Karnataka Institute of Medical Sciences, Karnataka, IndiaPakistan Institute of Living and Learning (PILL), Karachi, PakistanMpilo School of Midwifery, Mpilo Central Hospital, Bulawayo, ZimbabweWomen’s University in Africa, Harare, ZimbabweKamuzu University of Health Sciences, Lilongwe, MalawiWomen’s University in Africa, Harare, ZimbabweDepartment of Nursing, Makerere University, Kampala, UgandaPakistan Institute of Living and Learning (PILL), Karachi, PakistanStudy objective Stillbirth is burdensome in low-income and middle-income countries (LMICs), especially in sub-Saharan Africa and South Asia. Currently, there are two core outcome sets (COS) for stillbirth (prevention and bereavement care), but these were developed with limited reflection of the needs of parents in an LMIC setting. To address this gap, the objective of this study was to establish consensus on the most important outcomes for stillbirth prevention and bereavement care following stillbirth in sub-Saharan Africa and South Asia.Methods Previous stillbirth outcomes were reviewed for inclusion into the COS by senior research leaders and community engagement and involvement members from six sub-Saharan African and two South Asian countries. An online real-time Delphi survey was then conducted with healthcare professionals, parents who have experienced a stillbirth and researchers in the field to score the agreed list. The results of the Delphi were summarised and then discussed at a virtual consensus meeting where the final COS were agreed.Results 287 participants contributed towards the Delphi (143 midwives, 32 obstetricians, 50 mothers, 12 fathers and 50 researchers), with at least 2 parents attending the full consensus meetings. Consensus was reached on 13 core outcomes for stillbirth prevention covering 5 domains: obstetric, fetal, perinatal and neonatal outcomes and maternal complications. For bereavement care following a stillbirth, five core outcomes reached a consensus, which included outcomes related to labour and birth, a postpartum complication, care experience, mental health and emotional and social well-being.Discussion These COS will improve the consistency of outcomes for future research in an LMIC setting. Additionally, they will complement existing COS for stillbirth prevention and bereavement care developed in high-income settings. The output from this work will move us towards a global set of outcomes that can be used in stillbirth research worldwide.https://gh.bmj.com/content/10/1/e017688.full |
| spellingShingle | Jamie J Kirkham Declan Devane Carol Bedwell Tina Lavender Tracey A Mills Sabina Wakasiaka Rose Laisser Bellington Vwalika Nasim Chaudhry Angela Chimwaza Elizabeth Ombeva Ayebare Sudhindrashayana Fattepur Tayyeba Kiran Kushupika Dube Farai Marenga Idesi Chilinda Unice Goshomi Allen Nabisere Zaib Un Nisa A meta-core outcome set for stillbirth prevention and bereavement care following stillbirth in LMIC BMJ Global Health |
| title | A meta-core outcome set for stillbirth prevention and bereavement care following stillbirth in LMIC |
| title_full | A meta-core outcome set for stillbirth prevention and bereavement care following stillbirth in LMIC |
| title_fullStr | A meta-core outcome set for stillbirth prevention and bereavement care following stillbirth in LMIC |
| title_full_unstemmed | A meta-core outcome set for stillbirth prevention and bereavement care following stillbirth in LMIC |
| title_short | A meta-core outcome set for stillbirth prevention and bereavement care following stillbirth in LMIC |
| title_sort | meta core outcome set for stillbirth prevention and bereavement care following stillbirth in lmic |
| url | https://gh.bmj.com/content/10/1/e017688.full |
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