Do patients with Duchenne muscular dystrophy receive the palliative care approach?

Do patients with Duchenne muscular dystrophy receive the palliative care approach?

BACKGROUND: Palliative care (PC) is indicated for Duchenne muscular dystrophy (DMD), however, access to this approach is difficult. PURPOSE: To verify whether patients with Duchenne muscular dystrophy (DMD) received the PC approach and evaluate the perceptions of health professionals about PC. M...

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Bibliographic Details
Main Authors: Mariana Angélica de Souza Leon, Elisangela Aparecida da Silva Lizzi, Sara Cristina Pantoni Viana, Claudia Ferreira da Rosa Sobreira, Ana Cláudia Mattiello-Sverzut
Format: Article
Language:English
Published: Via Medica 2025-01-01
Series:Palliative Medicine in Practice
Subjects:
pediatric palliative care
Duchenne muscular dystrophy
death
end-of-life care
Online Access:https://journals.viamedica.pl/palliative_medicine_in_practice/article/view/100494
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