Development of a family-centred core outcome set for infants with developmental dysplasia of the hip treated with a brace
Aims: This study aims to define a set of family-centred core outcomes for infants undergoing brace treatment to facilitate consistent reporting for future high-quality research. Methods: Family-centred outcomes will be identified through a literature review and a scoping survey involving key stake...
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| Format: | Article |
| Language: | English |
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The British Editorial Society of Bone & Joint Surgery
2025-01-01
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| Series: | Bone & Joint Open |
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| Online Access: | https://online.boneandjoint.org.uk/doi/epdf/10.1302/2633-1462.61.BJO-2024-0186 |
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| author | Joanna Craven Olivia O’Malley Daniel C. Perry |
| author_facet | Joanna Craven Olivia O’Malley Daniel C. Perry |
| author_sort | Joanna Craven |
| collection | DOAJ |
| description | Aims: This study aims to define a set of family-centred core outcomes for infants undergoing brace treatment to facilitate consistent reporting for future high-quality research. Methods: Family-centred outcomes will be identified through a literature review and a scoping survey involving key stakeholders, including parents, healthcare professionals, and researchers. These outcomes will then be rated for their perceived importance in a two-stage modified Delphi process with the same stakeholders. Finally, a consensus meeting will be held to establish the final core outcome set (COS). Conclusion: The impact of brace treatment on the family is profound, but seldom considered in randomized controlled trials. This COS can independently standardize reporting on the family’s experience, and potentially become part of a broader COS for developmental dysplasia of the hip in infants undergoing brace treatment. Cite this article: Bone Jt Open 2024;6(1):21–25. |
| format | Article |
| id | doaj-art-ef5c0cc2898b4d0797350d215791fdd0 |
| institution | Kabale University |
| issn | 2633-1462 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | The British Editorial Society of Bone & Joint Surgery |
| record_format | Article |
| series | Bone & Joint Open |
| spelling | doaj-art-ef5c0cc2898b4d0797350d215791fdd02025-01-28T05:38:53ZengThe British Editorial Society of Bone & Joint SurgeryBone & Joint Open2633-14622025-01-0161212510.1302/2633-1462.61.BJO-2024-0186Development of a family-centred core outcome set for infants with developmental dysplasia of the hip treated with a braceJoanna Craven0https://orcid.org/0000-0002-4715-3288Olivia O’Malley1https://orcid.org/0000-0002-9674-1553Daniel C. Perry2https://orcid.org/0000-0001-8420-8252University of Liverpool, Liverpool, UKImperial College London, London, UKUniversity of Liverpool, Liverpool, UKAims: This study aims to define a set of family-centred core outcomes for infants undergoing brace treatment to facilitate consistent reporting for future high-quality research. Methods: Family-centred outcomes will be identified through a literature review and a scoping survey involving key stakeholders, including parents, healthcare professionals, and researchers. These outcomes will then be rated for their perceived importance in a two-stage modified Delphi process with the same stakeholders. Finally, a consensus meeting will be held to establish the final core outcome set (COS). Conclusion: The impact of brace treatment on the family is profound, but seldom considered in randomized controlled trials. This COS can independently standardize reporting on the family’s experience, and potentially become part of a broader COS for developmental dysplasia of the hip in infants undergoing brace treatment. Cite this article: Bone Jt Open 2024;6(1):21–25.https://online.boneandjoint.org.uk/doi/epdf/10.1302/2633-1462.61.BJO-2024-0186ddhcore outcome setfamily centreddevelopmental dysplasia of the hip (ddh)brace treatmentrandomized controlled trialshealthcare professionalsdelphi processclinicianscomplete dislocationphysiotherapistsclinical trialship joints |
| spellingShingle | Joanna Craven Olivia O’Malley Daniel C. Perry Development of a family-centred core outcome set for infants with developmental dysplasia of the hip treated with a brace Bone & Joint Open ddh core outcome set family centred developmental dysplasia of the hip (ddh) brace treatment randomized controlled trials healthcare professionals delphi process clinicians complete dislocation physiotherapists clinical trials hip joints |
| title | Development of a family-centred core outcome set for infants with developmental dysplasia of the hip treated with a brace |
| title_full | Development of a family-centred core outcome set for infants with developmental dysplasia of the hip treated with a brace |
| title_fullStr | Development of a family-centred core outcome set for infants with developmental dysplasia of the hip treated with a brace |
| title_full_unstemmed | Development of a family-centred core outcome set for infants with developmental dysplasia of the hip treated with a brace |
| title_short | Development of a family-centred core outcome set for infants with developmental dysplasia of the hip treated with a brace |
| title_sort | development of a family centred core outcome set for infants with developmental dysplasia of the hip treated with a brace |
| topic | ddh core outcome set family centred developmental dysplasia of the hip (ddh) brace treatment randomized controlled trials healthcare professionals delphi process clinicians complete dislocation physiotherapists clinical trials hip joints |
| url | https://online.boneandjoint.org.uk/doi/epdf/10.1302/2633-1462.61.BJO-2024-0186 |
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