Driving with Parkinson’s Disease: Exploring Lived Experience

A growing body of literature has explored the impact of Parkinson’s disease (PD) on fitness to drive. As such, evidence now supports the use of specific clinical tests for screening purposes, the predictive validity of risk impressions, and the critical driving errors that predict on-road pass/fail...

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Main Authors: Jeffrey D. Holmes, Liliana Alvarez, Andrew M. Johnson, Amy E. Robinson, Kaylie Gilhuly, Emily Horst, Aaron Kowalchuk, Kayleigh Rathwell, Yanni Reklitis, Nolan Wheildon
Format: Article
Language:English
Published: Wiley 2019-01-01
Series:Parkinson's Disease
Online Access:http://dx.doi.org/10.1155/2019/3169679
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author Jeffrey D. Holmes
Liliana Alvarez
Andrew M. Johnson
Amy E. Robinson
Kaylie Gilhuly
Emily Horst
Aaron Kowalchuk
Kayleigh Rathwell
Yanni Reklitis
Nolan Wheildon
author_facet Jeffrey D. Holmes
Liliana Alvarez
Andrew M. Johnson
Amy E. Robinson
Kaylie Gilhuly
Emily Horst
Aaron Kowalchuk
Kayleigh Rathwell
Yanni Reklitis
Nolan Wheildon
author_sort Jeffrey D. Holmes
collection DOAJ
description A growing body of literature has explored the impact of Parkinson’s disease (PD) on fitness to drive. As such, evidence now supports the use of specific clinical tests for screening purposes, the predictive validity of risk impressions, and the critical driving errors that predict on-road pass/fail outcomes in this population. However, little is known about the lived experiences of persons with PD as they navigate driving-related concerns such as driving impairments, cessation, potential threats to independence, and community mobility. This qualitative secondary data analysis aimed to explore the driving-related lived experiences of persons with PD. We utilized summative content analysis to identify themes related to driving from transcribed interviews with nineteen community-dwelling individuals with PD who participated in the primary study. Five themes emerged within the analysis: (1) the meaning and significance of driving; (2) driving cessation; (3) modified driving behaviors; (4) factors affecting driving; and (5) accessibility. Participants identified driving as an activity that holds significant importance—both directly (i.e., as a primary activity) and as a means for enabling other activities. This study lays the foundation for the development of client-centred and evidence-informed driving interventions for individuals with PD, as well as the development of driving retirement programs.
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spelling doaj-art-ee20e488b09144f2b1f8bd88c612c3342025-02-03T01:22:24ZengWileyParkinson's Disease2090-80832042-00802019-01-01201910.1155/2019/31696793169679Driving with Parkinson’s Disease: Exploring Lived ExperienceJeffrey D. Holmes0Liliana Alvarez1Andrew M. Johnson2Amy E. Robinson3Kaylie Gilhuly4Emily Horst5Aaron Kowalchuk6Kayleigh Rathwell7Yanni Reklitis8Nolan Wheildon9School of Occupational Therapy, The University of Western Ontario, London, CanadaSchool of Occupational Therapy, The University of Western Ontario, London, CanadaSchool of Health Studies, The University of Western Ontario, London, CanadaHealth and Rehabilitation Sciences, The University of Western Ontario, London, CanadaSchool of Occupational Therapy, The University of Western Ontario, London, CanadaSchool of Occupational Therapy, The University of Western Ontario, London, CanadaSchool of Occupational Therapy, The University of Western Ontario, London, CanadaSchool of Occupational Therapy, The University of Western Ontario, London, CanadaSchool of Occupational Therapy, The University of Western Ontario, London, CanadaSchool of Occupational Therapy, The University of Western Ontario, London, CanadaA growing body of literature has explored the impact of Parkinson’s disease (PD) on fitness to drive. As such, evidence now supports the use of specific clinical tests for screening purposes, the predictive validity of risk impressions, and the critical driving errors that predict on-road pass/fail outcomes in this population. However, little is known about the lived experiences of persons with PD as they navigate driving-related concerns such as driving impairments, cessation, potential threats to independence, and community mobility. This qualitative secondary data analysis aimed to explore the driving-related lived experiences of persons with PD. We utilized summative content analysis to identify themes related to driving from transcribed interviews with nineteen community-dwelling individuals with PD who participated in the primary study. Five themes emerged within the analysis: (1) the meaning and significance of driving; (2) driving cessation; (3) modified driving behaviors; (4) factors affecting driving; and (5) accessibility. Participants identified driving as an activity that holds significant importance—both directly (i.e., as a primary activity) and as a means for enabling other activities. This study lays the foundation for the development of client-centred and evidence-informed driving interventions for individuals with PD, as well as the development of driving retirement programs.http://dx.doi.org/10.1155/2019/3169679
spellingShingle Jeffrey D. Holmes
Liliana Alvarez
Andrew M. Johnson
Amy E. Robinson
Kaylie Gilhuly
Emily Horst
Aaron Kowalchuk
Kayleigh Rathwell
Yanni Reklitis
Nolan Wheildon
Driving with Parkinson’s Disease: Exploring Lived Experience
Parkinson's Disease
title Driving with Parkinson’s Disease: Exploring Lived Experience
title_full Driving with Parkinson’s Disease: Exploring Lived Experience
title_fullStr Driving with Parkinson’s Disease: Exploring Lived Experience
title_full_unstemmed Driving with Parkinson’s Disease: Exploring Lived Experience
title_short Driving with Parkinson’s Disease: Exploring Lived Experience
title_sort driving with parkinson s disease exploring lived experience
url http://dx.doi.org/10.1155/2019/3169679
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