Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study
Objective: This study aimed to investigate the current status and changes in motor and functional status, participation, and quality of life of individuals with cerebral palsy (CP) during the 13-year follow-up. Methods: Data from the database were retrospectively analyzed, including comorbidities,...
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| Format: | Article |
| Language: | English |
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Galenos Publishing House
2022-03-01
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| Series: | Medeniyet Medical Journal |
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| Online Access: | https://jag.journalagent.com/z4/download_fulltext.asp?pdir=medeniyet&un=MEDJ-54920 |
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| author | Bilinc DOGRUOZ KARATEKIN Afitap ICAGASIOGLU |
| author_facet | Bilinc DOGRUOZ KARATEKIN Afitap ICAGASIOGLU |
| author_sort | Bilinc DOGRUOZ KARATEKIN |
| collection | DOAJ |
| description | Objective: This study aimed to investigate the current status and changes in motor and functional status, participation, and quality of life of individuals with cerebral palsy (CP) during the 13-year follow-up.
Methods: Data from the database were retrospectively analyzed, including comorbidities, mobility status, orthotic usage, and information about the rehabilitation program and follow-up. The EuroQol 5-Dimension 3-Level (EQ-5D-3L) was used to measure the health-related quality of life.
Results: Of our participants, 38.4% could independently walk 13-years ago, which increased to 51.2% presently. The orthotic usage decreased from 48.7% to 25.6%, and the rate of continuing rehabilitation decreased from 100% to 58.9%. The mean EQ-5D-3L score was 0.36+-0.42, and the mean EQ-visual analog scale score was 68+-24.01.
Conclusions: Individuals with CP and their caregivers should be aware that CP is a lifelong disease and their continuity in rehabilitation programs should be encouraged. Independence in daily life activities should be aimed and participation in social life should be ensured. |
| format | Article |
| id | doaj-art-ed8af13d9fe24bbe85234ba750c92cb2 |
| institution | Kabale University |
| issn | 2149-2042 2149-4606 |
| language | English |
| publishDate | 2022-03-01 |
| publisher | Galenos Publishing House |
| record_format | Article |
| series | Medeniyet Medical Journal |
| spelling | doaj-art-ed8af13d9fe24bbe85234ba750c92cb22025-01-30T07:15:45ZengGalenos Publishing HouseMedeniyet Medical Journal2149-20422149-46062022-03-0137110511210.4274/MMJ.galenos.2022.54920MEDJ-54920Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up StudyBilinc DOGRUOZ KARATEKIN0Afitap ICAGASIOGLU1Istanbul Goztepe Prof. Dr. Suleyman Yalcin City Hospital, Clinic of Physical Medicine and Rehabilitation, Istanbul, TurkeyIstanbul Medeniyet University Faculty of Medicine, Department of Physical Medicine and Rehabilitation, Istanbul, TurkeyObjective: This study aimed to investigate the current status and changes in motor and functional status, participation, and quality of life of individuals with cerebral palsy (CP) during the 13-year follow-up. Methods: Data from the database were retrospectively analyzed, including comorbidities, mobility status, orthotic usage, and information about the rehabilitation program and follow-up. The EuroQol 5-Dimension 3-Level (EQ-5D-3L) was used to measure the health-related quality of life. Results: Of our participants, 38.4% could independently walk 13-years ago, which increased to 51.2% presently. The orthotic usage decreased from 48.7% to 25.6%, and the rate of continuing rehabilitation decreased from 100% to 58.9%. The mean EQ-5D-3L score was 0.36+-0.42, and the mean EQ-visual analog scale score was 68+-24.01. Conclusions: Individuals with CP and their caregivers should be aware that CP is a lifelong disease and their continuity in rehabilitation programs should be encouraged. Independence in daily life activities should be aimed and participation in social life should be ensured.https://jag.journalagent.com/z4/download_fulltext.asp?pdir=medeniyet&un=MEDJ-54920cerebral palsyquality of lifedisabilityparticipation |
| spellingShingle | Bilinc DOGRUOZ KARATEKIN Afitap ICAGASIOGLU Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study Medeniyet Medical Journal cerebral palsy quality of life disability participation |
| title | Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study |
| title_full | Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study |
| title_fullStr | Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study |
| title_full_unstemmed | Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study |
| title_short | Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study |
| title_sort | quality of life participation and functional status in cerebral palsy a 13 year follow up study |
| topic | cerebral palsy quality of life disability participation |
| url | https://jag.journalagent.com/z4/download_fulltext.asp?pdir=medeniyet&un=MEDJ-54920 |
| work_keys_str_mv | AT bilincdogruozkaratekin qualityoflifeparticipationandfunctionalstatusincerebralpalsya13yearfollowupstudy AT afitapicagasioglu qualityoflifeparticipationandfunctionalstatusincerebralpalsya13yearfollowupstudy |