Person-centred ostomy care: a qualitative study of patients’ experiences with routine use of a clinical feedback system during consultations
Abstract Background Adapting to life with an ostomy can be challenging due to significant bodily changes. To better meet patients’ needs and support their adjustment, a clinical feedback system (CFS) with patient-reported outcomes was developed for routine outpatient follow-up consultations with sto...
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| Format: | Article |
| Language: | English |
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SpringerOpen
2025-05-01
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| Series: | Journal of Patient-Reported Outcomes |
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| Online Access: | https://doi.org/10.1186/s41687-025-00900-6 |
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| author | Lill Anette Juvik John Roger Andersen Kirsten Lerum Indrebø Anne Marie Sandvoll |
| author_facet | Lill Anette Juvik John Roger Andersen Kirsten Lerum Indrebø Anne Marie Sandvoll |
| author_sort | Lill Anette Juvik |
| collection | DOAJ |
| description | Abstract Background Adapting to life with an ostomy can be challenging due to significant bodily changes. To better meet patients’ needs and support their adjustment, a clinical feedback system (CFS) with patient-reported outcomes was developed for routine outpatient follow-up consultations with stoma care nurses (SCNs) in specialist health care services. While results from its use prior to consultations are promising, little is known about patients’ perceptions of CFS use in consultations with SCNs. Thus, we aimed to explore how patients experience the routine use of the CFS during follow-up consultations in ostomy care. Methods An inductive qualitative design was employed, involving semi-structured individual interviews with 27 patients using the CFS as part of routine care. Data were analysed using reflexive thematic analysis. Results The overarching theme, “A flexible, engaged, person-centred follow-up,” was developed, along with four themes: (1) Explicit and implicit use of information in consultations, (2) A springboard for deeper dialogue on sensitive issues, (3) Reassurance that changes in health status will be captured and adequately assessed, and (4) Utility depends on continuity of use. There were variations in how patients experienced their responses being utilised by the SCNs during consultations. Responses were referenced implicitly and explicitly, with a preference for direct communication. Patients found personal value in using the CFS, as it facilitated communication, particularly on sensitive topics. SCNs’ use of the CFS and expertise provided a sense of reassurance when health status was assessed. Regular use of the CFS and a clear understanding of its purpose enhanced its utility and enabled patients to take a more active role in their treatment. Conclusion The use of the CFS in ostomy care appears promising. It can improve SCNs’ ability to tailor care to patients’ needs. However, the tool should be applied consistently to realise its full potential in clinical practice. |
| format | Article |
| id | doaj-art-ed0e88a96fb846e1a85fb651837a6bab |
| institution | OA Journals |
| issn | 2509-8020 |
| language | English |
| publishDate | 2025-05-01 |
| publisher | SpringerOpen |
| record_format | Article |
| series | Journal of Patient-Reported Outcomes |
| spelling | doaj-art-ed0e88a96fb846e1a85fb651837a6bab2025-08-20T02:03:31ZengSpringerOpenJournal of Patient-Reported Outcomes2509-80202025-05-019111010.1186/s41687-025-00900-6Person-centred ostomy care: a qualitative study of patients’ experiences with routine use of a clinical feedback system during consultationsLill Anette Juvik0John Roger Andersen1Kirsten Lerum Indrebø2Anne Marie Sandvoll3Department of Surgery, Førde Hospital TrustDepartment of Health and Caring Sciences, Western Norway University of Applied SciencesDepartment of Surgery, Førde Hospital TrustDepartment of Health and Caring Sciences, Western Norway University of Applied SciencesAbstract Background Adapting to life with an ostomy can be challenging due to significant bodily changes. To better meet patients’ needs and support their adjustment, a clinical feedback system (CFS) with patient-reported outcomes was developed for routine outpatient follow-up consultations with stoma care nurses (SCNs) in specialist health care services. While results from its use prior to consultations are promising, little is known about patients’ perceptions of CFS use in consultations with SCNs. Thus, we aimed to explore how patients experience the routine use of the CFS during follow-up consultations in ostomy care. Methods An inductive qualitative design was employed, involving semi-structured individual interviews with 27 patients using the CFS as part of routine care. Data were analysed using reflexive thematic analysis. Results The overarching theme, “A flexible, engaged, person-centred follow-up,” was developed, along with four themes: (1) Explicit and implicit use of information in consultations, (2) A springboard for deeper dialogue on sensitive issues, (3) Reassurance that changes in health status will be captured and adequately assessed, and (4) Utility depends on continuity of use. There were variations in how patients experienced their responses being utilised by the SCNs during consultations. Responses were referenced implicitly and explicitly, with a preference for direct communication. Patients found personal value in using the CFS, as it facilitated communication, particularly on sensitive topics. SCNs’ use of the CFS and expertise provided a sense of reassurance when health status was assessed. Regular use of the CFS and a clear understanding of its purpose enhanced its utility and enabled patients to take a more active role in their treatment. Conclusion The use of the CFS in ostomy care appears promising. It can improve SCNs’ ability to tailor care to patients’ needs. However, the tool should be applied consistently to realise its full potential in clinical practice.https://doi.org/10.1186/s41687-025-00900-6Ostomy careRoutine outcome monitoringClinical feedback systemQualitative research |
| spellingShingle | Lill Anette Juvik John Roger Andersen Kirsten Lerum Indrebø Anne Marie Sandvoll Person-centred ostomy care: a qualitative study of patients’ experiences with routine use of a clinical feedback system during consultations Journal of Patient-Reported Outcomes Ostomy care Routine outcome monitoring Clinical feedback system Qualitative research |
| title | Person-centred ostomy care: a qualitative study of patients’ experiences with routine use of a clinical feedback system during consultations |
| title_full | Person-centred ostomy care: a qualitative study of patients’ experiences with routine use of a clinical feedback system during consultations |
| title_fullStr | Person-centred ostomy care: a qualitative study of patients’ experiences with routine use of a clinical feedback system during consultations |
| title_full_unstemmed | Person-centred ostomy care: a qualitative study of patients’ experiences with routine use of a clinical feedback system during consultations |
| title_short | Person-centred ostomy care: a qualitative study of patients’ experiences with routine use of a clinical feedback system during consultations |
| title_sort | person centred ostomy care a qualitative study of patients experiences with routine use of a clinical feedback system during consultations |
| topic | Ostomy care Routine outcome monitoring Clinical feedback system Qualitative research |
| url | https://doi.org/10.1186/s41687-025-00900-6 |
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