Design and Implementation of a Multinational Computerized Patient Survey: The European Paediatric Orthopaedic Society Down Syndrome Survey
In 1997, the European Paediatric Orthopaedic Society (EPOS) initiated an international survey of musculoskeletal problems in individuals with Down syndrome. The goals of the study were far-reaching and ambitious in order to obtain a clear picture of the variety of orthopedic problems associated with...
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| Format: | Article |
| Language: | English |
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Wiley
2004-01-01
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| Series: | The Scientific World Journal |
| Online Access: | http://dx.doi.org/10.1100/tsw.2004.26 |
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| _version_ | 1832551572142292992 |
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| author | David M. Steinberg Moshe Kaplan Joav Merrick Shlomo Wientroub |
| author_facet | David M. Steinberg Moshe Kaplan Joav Merrick Shlomo Wientroub |
| author_sort | David M. Steinberg |
| collection | DOAJ |
| description | In 1997, the European Paediatric Orthopaedic Society (EPOS) initiated an international survey of musculoskeletal problems in individuals with Down syndrome. The goals of the study were far-reaching and ambitious in order to obtain a clear picture of the variety of orthopedic problems associated with Down syndrome, to relate their occurrence to other medical conditions, and to record and compare methods of treatment. The survey was to be international in scope, including orthopedic surgeons and departments across Europe and outside Europe. The study was coordinated from the Tel Aviv University in Israel as a multicenter study using electronic technology. This paper describes the organization and implementation of the EPOS Down Syndrome Survey, with special emphasis on the sophisticated electronic data entry instrument that was developed especially for the survey. It is concluded that computerized data entry forms like the one that we developed for the EPOS Down Syndrome Survey are valuable tools for medical surveys. They are especially important for multicenter and multinational studies. |
| format | Article |
| id | doaj-art-ed0548e8b8e440079db22ea72ccc57f6 |
| institution | Kabale University |
| issn | 1537-744X |
| language | English |
| publishDate | 2004-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | The Scientific World Journal |
| spelling | doaj-art-ed0548e8b8e440079db22ea72ccc57f62025-02-03T06:01:12ZengWileyThe Scientific World Journal1537-744X2004-01-01425626310.1100/tsw.2004.26Design and Implementation of a Multinational Computerized Patient Survey: The European Paediatric Orthopaedic Society Down Syndrome SurveyDavid M. SteinbergMoshe KaplanJoav MerrickShlomo WientroubIn 1997, the European Paediatric Orthopaedic Society (EPOS) initiated an international survey of musculoskeletal problems in individuals with Down syndrome. The goals of the study were far-reaching and ambitious in order to obtain a clear picture of the variety of orthopedic problems associated with Down syndrome, to relate their occurrence to other medical conditions, and to record and compare methods of treatment. The survey was to be international in scope, including orthopedic surgeons and departments across Europe and outside Europe. The study was coordinated from the Tel Aviv University in Israel as a multicenter study using electronic technology. This paper describes the organization and implementation of the EPOS Down Syndrome Survey, with special emphasis on the sophisticated electronic data entry instrument that was developed especially for the survey. It is concluded that computerized data entry forms like the one that we developed for the EPOS Down Syndrome Survey are valuable tools for medical surveys. They are especially important for multicenter and multinational studies.http://dx.doi.org/10.1100/tsw.2004.26 |
| spellingShingle | David M. Steinberg Moshe Kaplan Joav Merrick Shlomo Wientroub Design and Implementation of a Multinational Computerized Patient Survey: The European Paediatric Orthopaedic Society Down Syndrome Survey The Scientific World Journal |
| title | Design and Implementation of a Multinational Computerized Patient Survey: The European Paediatric Orthopaedic Society Down Syndrome Survey |
| title_full | Design and Implementation of a Multinational Computerized Patient Survey: The European Paediatric Orthopaedic Society Down Syndrome Survey |
| title_fullStr | Design and Implementation of a Multinational Computerized Patient Survey: The European Paediatric Orthopaedic Society Down Syndrome Survey |
| title_full_unstemmed | Design and Implementation of a Multinational Computerized Patient Survey: The European Paediatric Orthopaedic Society Down Syndrome Survey |
| title_short | Design and Implementation of a Multinational Computerized Patient Survey: The European Paediatric Orthopaedic Society Down Syndrome Survey |
| title_sort | design and implementation of a multinational computerized patient survey the european paediatric orthopaedic society down syndrome survey |
| url | http://dx.doi.org/10.1100/tsw.2004.26 |
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