Transition from paediatric to adult neurological care: What do we know?
Introduction: Healthcare advances have allowed an increase in the survival of paediatric patients with neurological diseases. As a result, it is increasingly common to find these patients in adult neurology consultations. The aim of this study is to evaluate the current level of consensus on the tra...
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Elsevier
2025-01-01
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| Series: | Neurology Perspectives |
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| Online Access: | http://www.sciencedirect.com/science/article/pii/S2667049624000310 |
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| author | A. Valero-Mut M.M. Rosselló-Vadell M. Caner-Faig J. Rubies-Olives M. Carmona-Belda E. Córdoba-Borrás M.A. Grimalt-Calatayud E. Miravet-Fuster |
| author_facet | A. Valero-Mut M.M. Rosselló-Vadell M. Caner-Faig J. Rubies-Olives M. Carmona-Belda E. Córdoba-Borrás M.A. Grimalt-Calatayud E. Miravet-Fuster |
| author_sort | A. Valero-Mut |
| collection | DOAJ |
| description | Introduction: Healthcare advances have allowed an increase in the survival of paediatric patients with neurological diseases. As a result, it is increasingly common to find these patients in adult neurology consultations. The aim of this study is to evaluate the current level of consensus on the transition of neuropaediatric patients among neurology and paediatric professionals in the Balearic Islands. Material and methods: We conducted an observational, analytical, cross-sectional study through an anonymous questionnaire consisting of 27 questions, which was distributed to neurologists, paediatric neurologists, hospital paediatricians, and primary care paediatricians in the healthcare network of the Balearic Islands. It was developed using Google Forms and distributed by the competent professional societies. Consensus was considered to exist for answers with 70% or more agreement. Results: Responses were received from 58 professionals; 46.6% were hospital paediatricians, 29.9% were neurologists, 13.8% were paediatric neurologists, and 13.8% were primary care paediatricians. Among other issues, consensus was observed on the need for a transition programme for patients with neurological diseases. No consensus was observed regarding the duration of the transition (P=.029) and how long simultaneous follow-up must last after the transfer (P=.09). Conclusions: Due to increased survival rates, there is a need to create transition programmes for paediatric patients with neurological diseases. In our study, more than 70% of professionals believed that it would be beneficial to create such programmes. Resumen: Introducción: Los avances sanitarios han permitido un aumento de la supervivencia de pacientes pediátricos con enfermedades neurológicas. Por ello, cada vez es más frecuente encontrarlos en consultas de neurología de adultos. El objetivo de este estudio es evaluar el nivel de consenso actual sobre la transición del paciente neuropediátrico entre los profesionales de la neurología y de la pediatría de nuestra comunidad autónoma. Material y métodos: Estudio observacional, analítico y transversal a través de una encuesta anónima que consta de 27 preguntas realizada a neurólogos, neuropediatras, pediatras hospitalarios y pediatras de atención primaria de la red sanitaria de las Islas Baleares. Se ha llevado a cabo mediante un formulario Google y la difusión se ha realizado a través de las sociedades profesionales correspondientes. Se considera que existe consenso en aquellas respuestas que han obtenido el 70% o más de coincidencia. Resultados: Han respondido 58 participantes, donde el 46,6% son pediatras hospitalarios, 29,9% neurÓlogos, 13,8% neuropediatras y 13,8% pediatras de atención primaria. Se ha alcanzado consenso, entre otras cuestiones, en la necesidad de un programa de transición para pacientes con enfermedades neurológicas. No se ha alcanzado en la duración de la transición (p = 0,029) y cuánto tiempo tiene que durar el seguimiento simultáneo tras la transferencia (p = 0,09). Conclusiones: Debido a la mayor supervivencia de los pacientes pediátricos con enfermedades neurológicas se plantea la necesidad de crear programas de transición para estos pacientes. En nuestro estudio más del 70% de los profesionales cree que sería beneficioso formar programas de transición. |
| format | Article |
| id | doaj-art-e9cc3d09ce4e42dbb862c25ee9d57b64 |
| institution | Kabale University |
| issn | 2667-0496 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Neurology Perspectives |
| spelling | doaj-art-e9cc3d09ce4e42dbb862c25ee9d57b642025-01-26T05:05:14ZengElsevierNeurology Perspectives2667-04962025-01-0151100174Transition from paediatric to adult neurological care: What do we know?A. Valero-Mut0M.M. Rosselló-Vadell1M. Caner-Faig2J. Rubies-Olives3M. Carmona-Belda4E. Córdoba-Borrás5M.A. Grimalt-Calatayud6E. Miravet-Fuster7Hospital de Manacor, Servicio de Neurología y Servicio de Pediatría unidad de Neuropediatría, Manacor, Illes Balears, Spain; Hospital Universitario Son Espases, Servicio de Neurología, CPalma, Illes Balears, Spain; Corresponding author.Hospital Universitario Son Espases, Servicio de Neurología, CPalma, Illes Balears, SpainHospital de Manacor, Servicio de Pediatría unidad de Neuropediatría, Manacor, Illes Balears, Spain; Hospital Universitario Son Espases, Servicio de Pediatría, unidad de Neuropediatría, Palma, Illes Balears, SpainHospital de Manacor, Servicio de Pediatría unidad de Neuropediatría, Manacor, Illes Balears, Spain; Hospital Universitario Son Espases, Servicio de Pediatría, unidad de Neuropediatría, Palma, Illes Balears, SpainHospital Universitario Son Espases, Servicio de Pediatría, unidad de Neuropediatría, Palma, Illes Balears, SpainHospital Universitario Son Espases, Servicio de Pediatría, unidad de Neuropediatría, Palma, Illes Balears, SpainHospital Universitario Son Espases, Servicio de Pediatría, unidad de Neuropediatría, Palma, Illes Balears, SpainHospital Universitario Son Espases, Servicio de Pediatría, unidad de Neuropediatría, Palma, Illes Balears, SpainIntroduction: Healthcare advances have allowed an increase in the survival of paediatric patients with neurological diseases. As a result, it is increasingly common to find these patients in adult neurology consultations. The aim of this study is to evaluate the current level of consensus on the transition of neuropaediatric patients among neurology and paediatric professionals in the Balearic Islands. Material and methods: We conducted an observational, analytical, cross-sectional study through an anonymous questionnaire consisting of 27 questions, which was distributed to neurologists, paediatric neurologists, hospital paediatricians, and primary care paediatricians in the healthcare network of the Balearic Islands. It was developed using Google Forms and distributed by the competent professional societies. Consensus was considered to exist for answers with 70% or more agreement. Results: Responses were received from 58 professionals; 46.6% were hospital paediatricians, 29.9% were neurologists, 13.8% were paediatric neurologists, and 13.8% were primary care paediatricians. Among other issues, consensus was observed on the need for a transition programme for patients with neurological diseases. No consensus was observed regarding the duration of the transition (P=.029) and how long simultaneous follow-up must last after the transfer (P=.09). Conclusions: Due to increased survival rates, there is a need to create transition programmes for paediatric patients with neurological diseases. In our study, more than 70% of professionals believed that it would be beneficial to create such programmes. Resumen: Introducción: Los avances sanitarios han permitido un aumento de la supervivencia de pacientes pediátricos con enfermedades neurológicas. Por ello, cada vez es más frecuente encontrarlos en consultas de neurología de adultos. El objetivo de este estudio es evaluar el nivel de consenso actual sobre la transición del paciente neuropediátrico entre los profesionales de la neurología y de la pediatría de nuestra comunidad autónoma. Material y métodos: Estudio observacional, analítico y transversal a través de una encuesta anónima que consta de 27 preguntas realizada a neurólogos, neuropediatras, pediatras hospitalarios y pediatras de atención primaria de la red sanitaria de las Islas Baleares. Se ha llevado a cabo mediante un formulario Google y la difusión se ha realizado a través de las sociedades profesionales correspondientes. Se considera que existe consenso en aquellas respuestas que han obtenido el 70% o más de coincidencia. Resultados: Han respondido 58 participantes, donde el 46,6% son pediatras hospitalarios, 29,9% neurÓlogos, 13,8% neuropediatras y 13,8% pediatras de atención primaria. Se ha alcanzado consenso, entre otras cuestiones, en la necesidad de un programa de transición para pacientes con enfermedades neurológicas. No se ha alcanzado en la duración de la transición (p = 0,029) y cuánto tiempo tiene que durar el seguimiento simultáneo tras la transferencia (p = 0,09). Conclusiones: Debido a la mayor supervivencia de los pacientes pediátricos con enfermedades neurológicas se plantea la necesidad de crear programas de transición para estos pacientes. En nuestro estudio más del 70% de los profesionales cree que sería beneficioso formar programas de transición.http://www.sciencedirect.com/science/article/pii/S2667049624000310TransicióntransferenciaNeurologíaNeuropediatríaadolescenciacronicidad |
| spellingShingle | A. Valero-Mut M.M. Rosselló-Vadell M. Caner-Faig J. Rubies-Olives M. Carmona-Belda E. Córdoba-Borrás M.A. Grimalt-Calatayud E. Miravet-Fuster Transition from paediatric to adult neurological care: What do we know? Neurology Perspectives Transición transferencia Neurología Neuropediatría adolescencia cronicidad |
| title | Transition from paediatric to adult neurological care: What do we know? |
| title_full | Transition from paediatric to adult neurological care: What do we know? |
| title_fullStr | Transition from paediatric to adult neurological care: What do we know? |
| title_full_unstemmed | Transition from paediatric to adult neurological care: What do we know? |
| title_short | Transition from paediatric to adult neurological care: What do we know? |
| title_sort | transition from paediatric to adult neurological care what do we know |
| topic | Transición transferencia Neurología Neuropediatría adolescencia cronicidad |
| url | http://www.sciencedirect.com/science/article/pii/S2667049624000310 |
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