The experience of people with multiple sclerosis who receive occupational performance coaching

Objective: To explore how Occupational Performance Coaching (OPC) influences self-management in the daily lives of people with Multiple Sclerosis (PwMS). Methods: A qualitative study involving 10 PwMS who underwent 6 sessions of telephone OPC over ten weeks. Interpretive description was used as the...

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Main Authors: Niloufar Malakouti, Dorothy Kessler, Marcia Finlayson, Samantha Stephens
Format: Article
Language:English
Published: Elsevier 2025-12-01
Series:PEC Innovation
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Online Access:http://www.sciencedirect.com/science/article/pii/S2772628225000470
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author Niloufar Malakouti
Dorothy Kessler
Marcia Finlayson
Samantha Stephens
author_facet Niloufar Malakouti
Dorothy Kessler
Marcia Finlayson
Samantha Stephens
author_sort Niloufar Malakouti
collection DOAJ
description Objective: To explore how Occupational Performance Coaching (OPC) influences self-management in the daily lives of people with Multiple Sclerosis (PwMS). Methods: A qualitative study involving 10 PwMS who underwent 6 sessions of telephone OPC over ten weeks. Interpretive description was used as the methodological approach. Participants were interviewed pre- and post-intervention, with thematic analysis performed on transcripts. Results: Pre-intervention themes included resisting MS, living with MS, ongoing challenges, and strategies. Post-intervention, the theme of resisting MS dissipated, with emergent sub-themes of planning ahead, being consistent, and talking about the plan. Participants reported reduced resistance towards their condition, a shift in their focus from problems towards solutions, and an enhancement of existing strategies and/or development of new strategies used to overcome ongoing challenges in living with MS. Conclusion: OPC may facilitate a shift in focus towards solutions and enhance self-management strategies in PwMS. Innovation: This study highlights OPC as a promising and innovative approach for addressing the self-management needs of individuals with MS, emphasizing its potential to enhance meaningful participation by fostering effective coping strategies and proactive attitudes.
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spelling doaj-art-e8ec8a7a3b654cf69d83bfc6f15cecf62025-08-20T03:17:36ZengElsevierPEC Innovation2772-62822025-12-01710041810.1016/j.pecinn.2025.100418The experience of people with multiple sclerosis who receive occupational performance coachingNiloufar Malakouti0Dorothy Kessler1Marcia Finlayson2Samantha Stephens3School of Rehabilitation Therapy, Queen's University, Louise D Acton Building, 31 George Street, Kingston, Ontario K7L 3N6, Canada; Department of Neurology, Medical University of South Carolina, Murray Center for Research on Parkinson's Disease and related Disorders, 208 Rutledge B, Charleston, SC, United States; Corresponding author at: Murray Center for Research on Parkinson's Disease and Related Disorders, Department of Neurology, Medical University of South Carolina, 30 Courtenay Drive, Charleston, South Carolina, 29425.School of Rehabilitation Therapy, Queen's University, Louise D Acton Building, 31 George Street, Kingston, Ontario K7L 3N6, CanadaSchool of Rehabilitation Therapy, Queen's University, Louise D Acton Building, 31 George Street, Kingston, Ontario K7L 3N6, CanadaThe Hospital for Sick Children, Toronto, Ontario, CanadaObjective: To explore how Occupational Performance Coaching (OPC) influences self-management in the daily lives of people with Multiple Sclerosis (PwMS). Methods: A qualitative study involving 10 PwMS who underwent 6 sessions of telephone OPC over ten weeks. Interpretive description was used as the methodological approach. Participants were interviewed pre- and post-intervention, with thematic analysis performed on transcripts. Results: Pre-intervention themes included resisting MS, living with MS, ongoing challenges, and strategies. Post-intervention, the theme of resisting MS dissipated, with emergent sub-themes of planning ahead, being consistent, and talking about the plan. Participants reported reduced resistance towards their condition, a shift in their focus from problems towards solutions, and an enhancement of existing strategies and/or development of new strategies used to overcome ongoing challenges in living with MS. Conclusion: OPC may facilitate a shift in focus towards solutions and enhance self-management strategies in PwMS. Innovation: This study highlights OPC as a promising and innovative approach for addressing the self-management needs of individuals with MS, emphasizing its potential to enhance meaningful participation by fostering effective coping strategies and proactive attitudes.http://www.sciencedirect.com/science/article/pii/S2772628225000470RehabilitationSelf-managementOccupational performance coachingMultiple sclerosis
spellingShingle Niloufar Malakouti
Dorothy Kessler
Marcia Finlayson
Samantha Stephens
The experience of people with multiple sclerosis who receive occupational performance coaching
PEC Innovation
Rehabilitation
Self-management
Occupational performance coaching
Multiple sclerosis
title The experience of people with multiple sclerosis who receive occupational performance coaching
title_full The experience of people with multiple sclerosis who receive occupational performance coaching
title_fullStr The experience of people with multiple sclerosis who receive occupational performance coaching
title_full_unstemmed The experience of people with multiple sclerosis who receive occupational performance coaching
title_short The experience of people with multiple sclerosis who receive occupational performance coaching
title_sort experience of people with multiple sclerosis who receive occupational performance coaching
topic Rehabilitation
Self-management
Occupational performance coaching
Multiple sclerosis
url http://www.sciencedirect.com/science/article/pii/S2772628225000470
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