Envisager l’improbable, contourner l’inconcevable : histoires (de fin) de vie en hémato-oncologie pédiatrique montréalais
In pediatric hematology-oncology, technologies and medical progress generate multiple therapeutic avenues. These possibilities and the hope they raise become actors in the decision-making process. Yet, in the context of hematopoietic (bone marrow) transplants complications are numerous and death is...
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| Main Authors: | , , |
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| Format: | Article |
| Language: | fra |
| Published: |
Association Anthropologie Médicale Appliquée au Développement et à la Santé
2021-07-01
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| Series: | Anthropologie & Santé |
| Subjects: | |
| Online Access: | https://journals.openedition.org/anthropologiesante/9819 |
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| Summary: | In pediatric hematology-oncology, technologies and medical progress generate multiple therapeutic avenues. These possibilities and the hope they raise become actors in the decision-making process. Yet, in the context of hematopoietic (bone marrow) transplants complications are numerous and death is a possibility. Based on ethnographic work conducted in a hematology-oncology unit in a pediatric hospital in Montreal, we discuss the decision-making process during poor prognoses and the challenges of moving from a curative to a palliative therapeutic trajectory as they stem from encounters with children, parents and health care providers. We question shared decision-making (patient/family/physician) and the moral role of clinicians in a context where “spontaneous deaths” rarely occur and where the option of prolonging life at all costs competes with palliative medicine. |
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| ISSN: | 2111-5028 |