Mapping mad maps and recovery tools developed by mental health service users and survivors of psychiatry: a scoping review
Background Since 1997, several tools based on the experiences of users and survivors of psychiatry have been developed with the goal of promoting self-determination in recovery, empowerment and well-being.Objectives The aims of this study were to identify these tools and their distinctive features,...
Saved in:
| Main Authors: | , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMJ Publishing Group
2022-06-01
|
| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/12/6/e061692.full |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1832583818449518592 |
|---|---|
| author | Hernán María Sampietro Viviana R Carmona J Emilio Rojo J Gómez-Benito |
| author_facet | Hernán María Sampietro Viviana R Carmona J Emilio Rojo J Gómez-Benito |
| author_sort | Hernán María Sampietro |
| collection | DOAJ |
| description | Background Since 1997, several tools based on the experiences of users and survivors of psychiatry have been developed with the goal of promoting self-determination in recovery, empowerment and well-being.Objectives The aims of this study were to identify these tools and their distinctive features, and to know how they were created, implemented and evaluated.Method This work was conducted in accordance with a published Scoping Review protocol, following the Arksey and O’Malley approach and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping reviews. Five search strategies were used, including contact with user and survivor networks, academic database searching (Cochrane, Cumulative Index to Nursing and Allied Health Literature, PsycINFO, PsycARTICLES, SCOPUS, PubMed and Web of Science), grey literature searching, Google Scholar searching and reference harvesting. We focused on tools, elaborated by users and survivors, and studies reporting the main applications of them. The searches were performed between 21 July and 22 September 2022. Two approaches were used to display the data: descriptive analysis and thematic analysis.Results Six tools and 35 studies were identified, most of them originating in the USA and UK. Thematic analysis identified six goals of the tools: improving wellness, navigating crisis, promoting recovery, promoting empowerment, facilitating mutual support and coping with oppression. Of the 35 studies identified, 34 corresponded to applications of the Wellness Recovery Action Plan (WRAP). All of them, but one, evaluated group workshops implementations. The most common objective was to evaluate symptom improvement. Only eight studies included users and survivors as part of the research team.Conclusions Only the WRAP has been widely disseminated and investigated. Despite the tools were designed to be implemented by peers, it seems they have been usually implemented without them as trainers. Even when these tools are not aimed to promote clinical recovery, in practice the most disseminated recovery tool is being used in this way. |
| format | Article |
| id | doaj-art-dbb91a681cbf48e5a6b8b9e10ecc6752 |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2022-06-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-dbb91a681cbf48e5a6b8b9e10ecc67522025-01-28T06:25:09ZengBMJ Publishing GroupBMJ Open2044-60552022-06-0112610.1136/bmjopen-2022-061692Mapping mad maps and recovery tools developed by mental health service users and survivors of psychiatry: a scoping reviewHernán María Sampietro0Viviana R Carmona1J Emilio Rojo2J Gómez-Benito3Activament Catalunya Associació, Barcelona, SpainActivament Catalunya Associació, Barcelona, SpainHospital Benito Menni CASM, Sant Boi de Llobregat, SpainDepartment of Social Psychology and Quantitative Psychology, Universidad de Barcelona, Barcelona, SpainBackground Since 1997, several tools based on the experiences of users and survivors of psychiatry have been developed with the goal of promoting self-determination in recovery, empowerment and well-being.Objectives The aims of this study were to identify these tools and their distinctive features, and to know how they were created, implemented and evaluated.Method This work was conducted in accordance with a published Scoping Review protocol, following the Arksey and O’Malley approach and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping reviews. Five search strategies were used, including contact with user and survivor networks, academic database searching (Cochrane, Cumulative Index to Nursing and Allied Health Literature, PsycINFO, PsycARTICLES, SCOPUS, PubMed and Web of Science), grey literature searching, Google Scholar searching and reference harvesting. We focused on tools, elaborated by users and survivors, and studies reporting the main applications of them. The searches were performed between 21 July and 22 September 2022. Two approaches were used to display the data: descriptive analysis and thematic analysis.Results Six tools and 35 studies were identified, most of them originating in the USA and UK. Thematic analysis identified six goals of the tools: improving wellness, navigating crisis, promoting recovery, promoting empowerment, facilitating mutual support and coping with oppression. Of the 35 studies identified, 34 corresponded to applications of the Wellness Recovery Action Plan (WRAP). All of them, but one, evaluated group workshops implementations. The most common objective was to evaluate symptom improvement. Only eight studies included users and survivors as part of the research team.Conclusions Only the WRAP has been widely disseminated and investigated. Despite the tools were designed to be implemented by peers, it seems they have been usually implemented without them as trainers. Even when these tools are not aimed to promote clinical recovery, in practice the most disseminated recovery tool is being used in this way.https://bmjopen.bmj.com/content/12/6/e061692.full |
| spellingShingle | Hernán María Sampietro Viviana R Carmona J Emilio Rojo J Gómez-Benito Mapping mad maps and recovery tools developed by mental health service users and survivors of psychiatry: a scoping review BMJ Open |
| title | Mapping mad maps and recovery tools developed by mental health service users and survivors of psychiatry: a scoping review |
| title_full | Mapping mad maps and recovery tools developed by mental health service users and survivors of psychiatry: a scoping review |
| title_fullStr | Mapping mad maps and recovery tools developed by mental health service users and survivors of psychiatry: a scoping review |
| title_full_unstemmed | Mapping mad maps and recovery tools developed by mental health service users and survivors of psychiatry: a scoping review |
| title_short | Mapping mad maps and recovery tools developed by mental health service users and survivors of psychiatry: a scoping review |
| title_sort | mapping mad maps and recovery tools developed by mental health service users and survivors of psychiatry a scoping review |
| url | https://bmjopen.bmj.com/content/12/6/e061692.full |
| work_keys_str_mv | AT hernanmariasampietro mappingmadmapsandrecoverytoolsdevelopedbymentalhealthserviceusersandsurvivorsofpsychiatryascopingreview AT vivianarcarmona mappingmadmapsandrecoverytoolsdevelopedbymentalhealthserviceusersandsurvivorsofpsychiatryascopingreview AT jemiliorojo mappingmadmapsandrecoverytoolsdevelopedbymentalhealthserviceusersandsurvivorsofpsychiatryascopingreview AT jgomezbenito mappingmadmapsandrecoverytoolsdevelopedbymentalhealthserviceusersandsurvivorsofpsychiatryascopingreview |