A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children
The introduction of emicizumab as prophylactic subcutaneous (SC) administered treatment for people with haemophilia A has revolutionised its treatment and care; SC injection and the infrequent treatment intervals that can be achieved with emicizumab reduces treatment burden and interference in daily...
Saved in:
| Main Author: | |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Sciendo
2024-12-01
|
| Series: | The Journal of Haemophilia Practice |
| Subjects: | |
| Online Access: | https://doi.org/10.2478/jhp-2024-0019 |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1832570327668883456 |
|---|---|
| author | Birkedal Maj Friberg |
| author_facet | Birkedal Maj Friberg |
| author_sort | Birkedal Maj Friberg |
| collection | DOAJ |
| description | The introduction of emicizumab as prophylactic subcutaneous (SC) administered treatment for people with haemophilia A has revolutionised its treatment and care; SC injection and the infrequent treatment intervals that can be achieved with emicizumab reduces treatment burden and interference in daily life. The efficacy and safety of emicizumab have been investigated in the Haven 1-7 trials. In contrast to the 4% of enrolled patients experiencing pain at the injection site across all seven trials, 11 out of 16 families at our treatment centre reported pain-related distress in administering emicizumab to their children, despite the application of local analgesia. |
| format | Article |
| id | doaj-art-d9456ea88f154426a3db5f46d2f420d8 |
| institution | Kabale University |
| issn | 2055-3390 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | Sciendo |
| record_format | Article |
| series | The Journal of Haemophilia Practice |
| spelling | doaj-art-d9456ea88f154426a3db5f46d2f420d82025-02-02T15:48:31ZengSciendoThe Journal of Haemophilia Practice2055-33902024-12-0111112913510.2478/jhp-2024-0019A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in childrenBirkedal Maj Friberg0Haemophilia Treatment Centre, Rigshospitalet, Copenhagen, DenmarkThe introduction of emicizumab as prophylactic subcutaneous (SC) administered treatment for people with haemophilia A has revolutionised its treatment and care; SC injection and the infrequent treatment intervals that can be achieved with emicizumab reduces treatment burden and interference in daily life. The efficacy and safety of emicizumab have been investigated in the Haven 1-7 trials. In contrast to the 4% of enrolled patients experiencing pain at the injection site across all seven trials, 11 out of 16 families at our treatment centre reported pain-related distress in administering emicizumab to their children, despite the application of local analgesia.https://doi.org/10.2478/jhp-2024-0019childrenemicizumabhaemophiliapain managementpatient experiencedistress |
| spellingShingle | Birkedal Maj Friberg A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children The Journal of Haemophilia Practice children emicizumab haemophilia pain management patient experience distress |
| title | A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children |
| title_full | A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children |
| title_fullStr | A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children |
| title_full_unstemmed | A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children |
| title_short | A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children |
| title_sort | single centre experience with clinical use of neria™ guard as mode of pain and distress management in the administration of emicizumab in children |
| topic | children emicizumab haemophilia pain management patient experience distress |
| url | https://doi.org/10.2478/jhp-2024-0019 |
| work_keys_str_mv | AT birkedalmajfriberg asinglecentreexperiencewithclinicaluseofneriaguardasmodeofpainanddistressmanagementintheadministrationofemicizumabinchildren AT birkedalmajfriberg singlecentreexperiencewithclinicaluseofneriaguardasmodeofpainanddistressmanagementintheadministrationofemicizumabinchildren |