QUALITY OF LIFE OF TYPICALLY DEVELOPING SIBLINGS OF PEOPLE WITH PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES IN POLAND
Family quality of life (FQOL) is a concept that is gaining increasing importance in family support programmes. However, for some countries, this concept has been insufficiently explored in relation to families with children with intellectual and developmental disabilities. The aim of this study was...
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University of Victoria
2024-12-01
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| Series: | International Journal of Child, Youth & Family Studies |
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| Online Access: | https://journals.uvic.ca/index.php/ijcyfs/article/view/22251 |
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| author | Jakub Niedbalski |
| author_facet | Jakub Niedbalski |
| author_sort | Jakub Niedbalski |
| collection | DOAJ |
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Family quality of life (FQOL) is a concept that is gaining increasing importance in family support programmes. However, for some countries, this concept has been insufficiently explored in relation to families with children with intellectual and developmental disabilities. The aim of this study was to ascertain the perceived QOL of siblings of children with profound intellectual and multiple disabilities (PIMD) living in Poland. The study relies on a qualitative research approach. Semi-structured interviews were conducted with 18 siblings aged 6 to 15, followed by thematic analysis. The siblings identified the following nine domains as dimensions that impacted their QOL: joint activities, mutual understanding, private time, acceptance, forbearance, effect on well-being, exchanging experiences, social support, and dealing with the outside world. The children described both positive and negative experiences, indicating that having a sibling with intellectual and developmental disabilities affected their QOL in diverse ways.
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| format | Article |
| id | doaj-art-d0c2d82f1bb9481bbdc3e1ea35f33eb5 |
| institution | Kabale University |
| issn | 1920-7298 |
| language | English |
| publishDate | 2024-12-01 |
| publisher | University of Victoria |
| record_format | Article |
| series | International Journal of Child, Youth & Family Studies |
| spelling | doaj-art-d0c2d82f1bb9481bbdc3e1ea35f33eb52025-01-29T09:55:41ZengUniversity of VictoriaInternational Journal of Child, Youth & Family Studies1920-72982024-12-0115410.18357/ijcyfs154202422251QUALITY OF LIFE OF TYPICALLY DEVELOPING SIBLINGS OF PEOPLE WITH PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES IN POLANDJakub Niedbalski0University of Lodz Family quality of life (FQOL) is a concept that is gaining increasing importance in family support programmes. However, for some countries, this concept has been insufficiently explored in relation to families with children with intellectual and developmental disabilities. The aim of this study was to ascertain the perceived QOL of siblings of children with profound intellectual and multiple disabilities (PIMD) living in Poland. The study relies on a qualitative research approach. Semi-structured interviews were conducted with 18 siblings aged 6 to 15, followed by thematic analysis. The siblings identified the following nine domains as dimensions that impacted their QOL: joint activities, mutual understanding, private time, acceptance, forbearance, effect on well-being, exchanging experiences, social support, and dealing with the outside world. The children described both positive and negative experiences, indicating that having a sibling with intellectual and developmental disabilities affected their QOL in diverse ways. https://journals.uvic.ca/index.php/ijcyfs/article/view/22251quality of life, siblings, children with profound intellectual and multiple disabilities, Poland, qualitative research, family studies |
| spellingShingle | Jakub Niedbalski QUALITY OF LIFE OF TYPICALLY DEVELOPING SIBLINGS OF PEOPLE WITH PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES IN POLAND International Journal of Child, Youth & Family Studies quality of life, siblings, children with profound intellectual and multiple disabilities, Poland, qualitative research, family studies |
| title | QUALITY OF LIFE OF TYPICALLY DEVELOPING SIBLINGS OF PEOPLE WITH PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES IN POLAND |
| title_full | QUALITY OF LIFE OF TYPICALLY DEVELOPING SIBLINGS OF PEOPLE WITH PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES IN POLAND |
| title_fullStr | QUALITY OF LIFE OF TYPICALLY DEVELOPING SIBLINGS OF PEOPLE WITH PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES IN POLAND |
| title_full_unstemmed | QUALITY OF LIFE OF TYPICALLY DEVELOPING SIBLINGS OF PEOPLE WITH PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES IN POLAND |
| title_short | QUALITY OF LIFE OF TYPICALLY DEVELOPING SIBLINGS OF PEOPLE WITH PROFOUND INTELLECTUAL AND MULTIPLE DISABILITIES IN POLAND |
| title_sort | quality of life of typically developing siblings of people with profound intellectual and multiple disabilities in poland |
| topic | quality of life, siblings, children with profound intellectual and multiple disabilities, Poland, qualitative research, family studies |
| url | https://journals.uvic.ca/index.php/ijcyfs/article/view/22251 |
| work_keys_str_mv | AT jakubniedbalski qualityoflifeoftypicallydevelopingsiblingsofpeoplewithprofoundintellectualandmultipledisabilitiesinpoland |