The Challenges of Living with Inflammatory Bowel Disease: Summary of a Summit on Patient and Healthcare Provider Perspectives
Canada has one of the highest rates of inflammatory bowel disease (IBD) and the disease represents a significant health, social, and economic burden. There is currently no cure for IBD, although earlier diagnosis and new therapies have improved the overall health outcomes and quality of life for pat...
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| Format: | Article |
| Language: | English |
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Wiley
2016-01-01
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| Series: | Canadian Journal of Gastroenterology and Hepatology |
| Online Access: | http://dx.doi.org/10.1155/2016/9430942 |
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| author | Judith Bray Aida Fernandes Geoffrey C. Nguyen Anthony R. Otley Joan Heatherington Jennifer Stretton Natasha Bollegala Eric I. Benchimol |
| author_facet | Judith Bray Aida Fernandes Geoffrey C. Nguyen Anthony R. Otley Joan Heatherington Jennifer Stretton Natasha Bollegala Eric I. Benchimol |
| author_sort | Judith Bray |
| collection | DOAJ |
| description | Canada has one of the highest rates of inflammatory bowel disease (IBD) and the disease represents a significant health, social, and economic burden. There is currently no cure for IBD, although earlier diagnosis and new therapies have improved the overall health outcomes and quality of life for patients. Crohn’s and Colitis Canada is Canada’s only national, volunteer-based charity dedicated to finding cures for IBD and improving the lives of those affected, through research, education, patient programs, advocacy, and increased awareness. On April 30, 2015, Crohn’s and Colitis Canada hosted the “Patient and Healthcare Professional Summit on the Burden of Disease in IBD” to obtain a deeper understanding of the unmet needs of IBD patients and their caregivers. Through personal vignettes, patients articulated a pressing need to increase understanding of the challenges faced by people suffering from IBD among both health care professionals and the general public, develop best practices for navigating life transitions and addressing the unique challenges faced by children with IBD, and provide equitable access to appropriate, effective, and affordable treatments. The recommendations that emerged from the summit will inform about efforts to increase public awareness, inform about advocacy strategies, and contribute to the development of research priorities. |
| format | Article |
| id | doaj-art-cde7094382084b0d856f4fc11e888079 |
| institution | Kabale University |
| issn | 2291-2789 2291-2797 |
| language | English |
| publishDate | 2016-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | Canadian Journal of Gastroenterology and Hepatology |
| spelling | doaj-art-cde7094382084b0d856f4fc11e8880792025-02-03T05:46:45ZengWileyCanadian Journal of Gastroenterology and Hepatology2291-27892291-27972016-01-01201610.1155/2016/94309429430942The Challenges of Living with Inflammatory Bowel Disease: Summary of a Summit on Patient and Healthcare Provider PerspectivesJudith Bray0Aida Fernandes1Geoffrey C. Nguyen2Anthony R. Otley3Joan Heatherington4Jennifer Stretton5Natasha Bollegala6Eric I. Benchimol7Judy Bray Consulting, 125 Grove Avenue, Ottawa, ON, K1S 3A9, CanadaCrohn’s and Colitis Canada, 600-60 Street Clair Avenue East, Toronto, ON, M4T 1N5, CanadaMount Sinai Centre for Inflammatory Bowel Disease, Mount Sinai Hospital, Department of Medicine, University of Toronto, 600 University Avenue, Toronto, ON, M5G 1X5, CanadaDivision of Gastroenterology & Nutrition, IWK Health Centre, Department of Pediatrics, Dalhousie University, 5980 University Avenue, Halifax, NS, B3K 6R8, CanadaUniversity of Calgary Inflammatory Bowel Disease Clinic, Foothills Medical Centre, 1403-29 Street NW, Calgary, AB, T2N 2T9, CanadaDivision of Gastroenterology, St Joseph’s Healthcare Hamilton, 50 Charlton Avenue East, Hamilton, ON, L8N 4A6, CanadaDivision of Gastroenterology, Women’s College Hospital, 76 Grenville Street, Toronto, ON, M5S 1B2, CanadaInstitute for Clinical Evaluative Sciences, G1 06, 2075 Bayview Avenue, Toronto, ON, M4N 3M5, CanadaCanada has one of the highest rates of inflammatory bowel disease (IBD) and the disease represents a significant health, social, and economic burden. There is currently no cure for IBD, although earlier diagnosis and new therapies have improved the overall health outcomes and quality of life for patients. Crohn’s and Colitis Canada is Canada’s only national, volunteer-based charity dedicated to finding cures for IBD and improving the lives of those affected, through research, education, patient programs, advocacy, and increased awareness. On April 30, 2015, Crohn’s and Colitis Canada hosted the “Patient and Healthcare Professional Summit on the Burden of Disease in IBD” to obtain a deeper understanding of the unmet needs of IBD patients and their caregivers. Through personal vignettes, patients articulated a pressing need to increase understanding of the challenges faced by people suffering from IBD among both health care professionals and the general public, develop best practices for navigating life transitions and addressing the unique challenges faced by children with IBD, and provide equitable access to appropriate, effective, and affordable treatments. The recommendations that emerged from the summit will inform about efforts to increase public awareness, inform about advocacy strategies, and contribute to the development of research priorities.http://dx.doi.org/10.1155/2016/9430942 |
| spellingShingle | Judith Bray Aida Fernandes Geoffrey C. Nguyen Anthony R. Otley Joan Heatherington Jennifer Stretton Natasha Bollegala Eric I. Benchimol The Challenges of Living with Inflammatory Bowel Disease: Summary of a Summit on Patient and Healthcare Provider Perspectives Canadian Journal of Gastroenterology and Hepatology |
| title | The Challenges of Living with Inflammatory Bowel Disease: Summary of a Summit on Patient and Healthcare Provider Perspectives |
| title_full | The Challenges of Living with Inflammatory Bowel Disease: Summary of a Summit on Patient and Healthcare Provider Perspectives |
| title_fullStr | The Challenges of Living with Inflammatory Bowel Disease: Summary of a Summit on Patient and Healthcare Provider Perspectives |
| title_full_unstemmed | The Challenges of Living with Inflammatory Bowel Disease: Summary of a Summit on Patient and Healthcare Provider Perspectives |
| title_short | The Challenges of Living with Inflammatory Bowel Disease: Summary of a Summit on Patient and Healthcare Provider Perspectives |
| title_sort | challenges of living with inflammatory bowel disease summary of a summit on patient and healthcare provider perspectives |
| url | http://dx.doi.org/10.1155/2016/9430942 |
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