A field-test of Not Deciding Alone to support Inuit with health decision making: co-production of a mixed methods study guided by aajiiqatigiingniq
Shared decision-making supports person-centred care. Our team of Inuit-led and/or -focused organizations and researchers field-tested a strategy called Not Deciding Alone to support health decision-making. Guided by aajiiqatigiingniq, a principle of collective decision-making and consensus-building,...
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2025-12-01
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| Series: | International Journal of Circumpolar Health |
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| Online Access: | https://www.tandfonline.com/doi/10.1080/22423982.2025.2513726 |
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| author | Janet Jull Kimberly Fairman Aimo Akulukjuk Felicia Adelaja Parniga Akeeagok Tina Akpalialuk Ida Davidee Mackenzie Daybutch Treena Greene Brittany Hesmer Louisa Kipsigak Theresa Koonoo Kelly Morrisey Rachel Nungnik Carolyn Roberts Jemimah Thomas Meeka Uniuqsaraq Malaya Zehr |
| author_facet | Janet Jull Kimberly Fairman Aimo Akulukjuk Felicia Adelaja Parniga Akeeagok Tina Akpalialuk Ida Davidee Mackenzie Daybutch Treena Greene Brittany Hesmer Louisa Kipsigak Theresa Koonoo Kelly Morrisey Rachel Nungnik Carolyn Roberts Jemimah Thomas Meeka Uniuqsaraq Malaya Zehr |
| author_sort | Janet Jull |
| collection | DOAJ |
| description | Shared decision-making supports person-centred care. Our team of Inuit-led and/or -focused organizations and researchers field-tested a strategy called Not Deciding Alone to support health decision-making. Guided by aajiiqatigiingniq, a principle of collective decision-making and consensus-building, we co-produced a mixed-methods study to: (1) train Qikiqtani region community health representatives (CHRs) with a workshop, (2) develop a radio show and survey, and (3) assess the radio show with Inuit community members in the health system. We evaluated participant experiences using forms, case studies, and an online survey. The workshop was delivered to 13 CHRs; seven (54%) provided evaluation data. All (100%) reported positive experiences with the content, activities, and facilitation. One (14%) said the workshop was too short; four (57%) agreed there was enough discussion time. Six (86%) reported new learning. Three radio show events were held with 33 survey respondents, the majority women (n = 25, 76%). Most found the show informative (n = 29, 88%) and helpful for future decision-making (n = 27, 82%), and said it would improve their confidence (n = 27, 82%). Not Deciding Alone was found to be an acceptable, useful, and relevant strategy for supporting health decision-making among Inuit community members. |
| format | Article |
| id | doaj-art-cbd30f18fc0c4fe8b11e5a80e27b9bc1 |
| institution | Kabale University |
| issn | 2242-3982 |
| language | English |
| publishDate | 2025-12-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | International Journal of Circumpolar Health |
| spelling | doaj-art-cbd30f18fc0c4fe8b11e5a80e27b9bc12025-08-20T03:26:38ZengTaylor & Francis GroupInternational Journal of Circumpolar Health2242-39822025-12-0184110.1080/22423982.2025.2513726A field-test of Not Deciding Alone to support Inuit with health decision making: co-production of a mixed methods study guided by aajiiqatigiingniqJanet Jull0Kimberly Fairman1Aimo Akulukjuk2Felicia Adelaja3Parniga Akeeagok4Tina Akpalialuk5Ida Davidee6Mackenzie Daybutch7Treena Greene8Brittany Hesmer9Louisa Kipsigak10Theresa Koonoo11Kelly Morrisey12Rachel Nungnik13Carolyn Roberts14Jemimah Thomas15Meeka Uniuqsaraq16Malaya Zehr17Department of Health Sciences, Carleton University, Ottawa, Ontario, CanadaSchool of Public Health and Social Policy, University of Victoria, Victoria, BC, CanadaTerritorial Community Health Representative, Department of Health, Government of Nunavut, Pangnirtung, NU, CanadaOntario Inuit Cancer Program, Tungasuvvingat Inuit, Ottawa, Ontario, CanadaManger of Patient Relations, Department of Health, Government of Nunavut, Iqaluit, NU, CanadaDirector of Client Services, Patient Relations, Department of Health, Government of Nunavut, Iqaluit, NU, CanadaInuit Interpreter Team OHSNI (Ottawa Health Services Network Inc.), Ottawa, Ontario, CanadaIndigenous Cancer Program, The Ottawa Hospital, Ottawa, Ontario, CanadaFamily Physician and Regional Physician Lead with Indigenous Cancer Program Indigenous Cancer Program, The Ottawa Hospital, Ottawa, Ontario, CanadaNot Deciding Alone Team, Carleton University, Ottawa, Ontario, CanadaTerritorial Community Health Representative, Department of Health, Government of Nunavut, Iqaluit, NU, CanadaTerritorial Community Health Representative Coordinator, Department of Health, Government of Nunavut, Iqaluit, NU, CanadaResolution Health Initiatives, Healing and Wellness Department, Tungasuvvingat Inuit, Ottawa, Ontario, CanadaOntario Inuit Cancer Program, Tungasuvvingat Inuit, Ottawa, Ontario, CanadaIndigenous Patient Nurse Navigator, Indigenous Cancer Program, The Ottawa Hospital, Ottawa, Ontario, CanadaOntario Inuit Cancer Program, Tungasuvvingat Inuit, Ottawa, Ontario, CanadaToronto, Ontario, CanadaLarga Baffin, Ottawa, Ontario, CanadaShared decision-making supports person-centred care. Our team of Inuit-led and/or -focused organizations and researchers field-tested a strategy called Not Deciding Alone to support health decision-making. Guided by aajiiqatigiingniq, a principle of collective decision-making and consensus-building, we co-produced a mixed-methods study to: (1) train Qikiqtani region community health representatives (CHRs) with a workshop, (2) develop a radio show and survey, and (3) assess the radio show with Inuit community members in the health system. We evaluated participant experiences using forms, case studies, and an online survey. The workshop was delivered to 13 CHRs; seven (54%) provided evaluation data. All (100%) reported positive experiences with the content, activities, and facilitation. One (14%) said the workshop was too short; four (57%) agreed there was enough discussion time. Six (86%) reported new learning. Three radio show events were held with 33 survey respondents, the majority women (n = 25, 76%). Most found the show informative (n = 29, 88%) and helpful for future decision-making (n = 27, 82%), and said it would improve their confidence (n = 27, 82%). Not Deciding Alone was found to be an acceptable, useful, and relevant strategy for supporting health decision-making among Inuit community members.https://www.tandfonline.com/doi/10.1080/22423982.2025.2513726Inuitshared decision makingdecision coachingcollaborative researchintegrated knowledge translationmixed methods |
| spellingShingle | Janet Jull Kimberly Fairman Aimo Akulukjuk Felicia Adelaja Parniga Akeeagok Tina Akpalialuk Ida Davidee Mackenzie Daybutch Treena Greene Brittany Hesmer Louisa Kipsigak Theresa Koonoo Kelly Morrisey Rachel Nungnik Carolyn Roberts Jemimah Thomas Meeka Uniuqsaraq Malaya Zehr A field-test of Not Deciding Alone to support Inuit with health decision making: co-production of a mixed methods study guided by aajiiqatigiingniq International Journal of Circumpolar Health Inuit shared decision making decision coaching collaborative research integrated knowledge translation mixed methods |
| title | A field-test of Not Deciding Alone to support Inuit with health decision making: co-production of a mixed methods study guided by aajiiqatigiingniq |
| title_full | A field-test of Not Deciding Alone to support Inuit with health decision making: co-production of a mixed methods study guided by aajiiqatigiingniq |
| title_fullStr | A field-test of Not Deciding Alone to support Inuit with health decision making: co-production of a mixed methods study guided by aajiiqatigiingniq |
| title_full_unstemmed | A field-test of Not Deciding Alone to support Inuit with health decision making: co-production of a mixed methods study guided by aajiiqatigiingniq |
| title_short | A field-test of Not Deciding Alone to support Inuit with health decision making: co-production of a mixed methods study guided by aajiiqatigiingniq |
| title_sort | field test of not deciding alone to support inuit with health decision making co production of a mixed methods study guided by aajiiqatigiingniq |
| topic | Inuit shared decision making decision coaching collaborative research integrated knowledge translation mixed methods |
| url | https://www.tandfonline.com/doi/10.1080/22423982.2025.2513726 |
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