Codeveloping a community-based, peer-led psychosocial support intervention to reduce stigma and depression among people with tuberculosis and their households in Indonesia: a mixed-methods participatory action study
Abstract Evidence relating to peer support and community-based psychological and social (psychosocial) interventions to reduce stigma and depression among people with tuberculosis (TB) and their households is limited. This study aimed to engage with multisectoral stakeholders in Indonesia to co-deve...
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| Format: | Article |
| Language: | English |
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Nature Portfolio
2025-01-01
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| Series: | npj Primary Care Respiratory Medicine |
| Online Access: | https://doi.org/10.1038/s41533-024-00407-5 |
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| author | Ahmad Fuady Mariska Anindhita Matsna Hanifah Arieska Malia Novia Putri Artasya Karnasih Feranindhya Agiananda Finny Fitry Yani Marinda Asiah Nuril Haya Trevino Aristaskus Pakasi Tom Wingfield |
| author_facet | Ahmad Fuady Mariska Anindhita Matsna Hanifah Arieska Malia Novia Putri Artasya Karnasih Feranindhya Agiananda Finny Fitry Yani Marinda Asiah Nuril Haya Trevino Aristaskus Pakasi Tom Wingfield |
| author_sort | Ahmad Fuady |
| collection | DOAJ |
| description | Abstract Evidence relating to peer support and community-based psychological and social (psychosocial) interventions to reduce stigma and depression among people with tuberculosis (TB) and their households is limited. This study aimed to engage with multisectoral stakeholders in Indonesia to co-develop a peer-led, community-based psychosocial intervention that is replicable, acceptable, and sustainable. We used a participatory action design and engaged key national, multisectoral stakeholders to ensure that the intervention co-design was relevant and appropriate to the TB health system and the sociocultural context of Indonesia. The co-design of the intervention evolved through four phases: (1) a scoping review to identify a long list of potential TB stigma reduction interventions; (2) a modified Delphi survey to define a shortlist of the potential interventions; (3) a national multisectoral participatory workshop to identify and pre-finalize the most viable elements of psychosocial support to distill into a single multi-faceted intervention; and (4) finalization of the intervention activities. The scoping review identified 12 potential intervention activities. These were then reduced to a shortlist of six potential intervention activities through a modified Delphi Survey completed by 22 multisectoral stakeholder representatives. At the national participatory workshop, the suitability, acceptability, and feasibility of the six potential intervention activities were discussed by the key stakeholders, and consensus reached on the final four activities to be integrated into the psychosocial support intervention. These activities consisted of: individual psychological assessment and counselling; monthly peer-led group counselling; peer-led individual support; and community-based TB Talks. In Indonesia, meaningful participation of multisectoral stakeholders facilitated co-design of a community-based, peer-led intervention to reduce TB stigma and depression amongst people with TB and their households. The intervention was considered to be locally appropriate and viable, and is being implemented and evaluated as part of the TB-CAPS intervention study. |
| format | Article |
| id | doaj-art-bfe20ccbaf9145b28a95549a4882fc53 |
| institution | Kabale University |
| issn | 2055-1010 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Nature Portfolio |
| record_format | Article |
| series | npj Primary Care Respiratory Medicine |
| spelling | doaj-art-bfe20ccbaf9145b28a95549a4882fc532025-02-02T12:09:14ZengNature Portfolionpj Primary Care Respiratory Medicine2055-10102025-01-013511910.1038/s41533-024-00407-5Codeveloping a community-based, peer-led psychosocial support intervention to reduce stigma and depression among people with tuberculosis and their households in Indonesia: a mixed-methods participatory action studyAhmad Fuady0Mariska Anindhita1Matsna Hanifah2Arieska Malia Novia Putri3Artasya Karnasih4Feranindhya Agiananda5Finny Fitry Yani6Marinda Asiah Nuril Haya7Trevino Aristaskus Pakasi8Tom Wingfield9Department of Community Medicine, Faculty of Medicine, Universitas IndonesiaPrimary Health Care Research and Innovation Centre, Indonesian Medical Education and Research Institute, Faculty of Medicine Universitas IndonesiaPrimary Health Care Research and Innovation Centre, Indonesian Medical Education and Research Institute, Faculty of Medicine Universitas IndonesiaPrimary Health Care Research and Innovation Centre, Indonesian Medical Education and Research Institute, Faculty of Medicine Universitas IndonesiaDepartment of Psychiatry, Faculty of Medicine, Universitas Indonesia, Dr Cipto Mangunkusumo General HospitalDepartment of Psychiatry, Faculty of Medicine, Universitas Indonesia, Dr Cipto Mangunkusumo General HospitalDepartment of Child Health, Faculty of Medicine, Universitas AndalasDepartment of Community Medicine, Faculty of Medicine, Universitas IndonesiaDepartment of Community Medicine, Faculty of Medicine, Universitas IndonesiaCentre for Tuberculosis Research, Departments of Clinical Sciences and International Public Health, Liverpool School of Tropical MedicineAbstract Evidence relating to peer support and community-based psychological and social (psychosocial) interventions to reduce stigma and depression among people with tuberculosis (TB) and their households is limited. This study aimed to engage with multisectoral stakeholders in Indonesia to co-develop a peer-led, community-based psychosocial intervention that is replicable, acceptable, and sustainable. We used a participatory action design and engaged key national, multisectoral stakeholders to ensure that the intervention co-design was relevant and appropriate to the TB health system and the sociocultural context of Indonesia. The co-design of the intervention evolved through four phases: (1) a scoping review to identify a long list of potential TB stigma reduction interventions; (2) a modified Delphi survey to define a shortlist of the potential interventions; (3) a national multisectoral participatory workshop to identify and pre-finalize the most viable elements of psychosocial support to distill into a single multi-faceted intervention; and (4) finalization of the intervention activities. The scoping review identified 12 potential intervention activities. These were then reduced to a shortlist of six potential intervention activities through a modified Delphi Survey completed by 22 multisectoral stakeholder representatives. At the national participatory workshop, the suitability, acceptability, and feasibility of the six potential intervention activities were discussed by the key stakeholders, and consensus reached on the final four activities to be integrated into the psychosocial support intervention. These activities consisted of: individual psychological assessment and counselling; monthly peer-led group counselling; peer-led individual support; and community-based TB Talks. In Indonesia, meaningful participation of multisectoral stakeholders facilitated co-design of a community-based, peer-led intervention to reduce TB stigma and depression amongst people with TB and their households. The intervention was considered to be locally appropriate and viable, and is being implemented and evaluated as part of the TB-CAPS intervention study.https://doi.org/10.1038/s41533-024-00407-5 |
| spellingShingle | Ahmad Fuady Mariska Anindhita Matsna Hanifah Arieska Malia Novia Putri Artasya Karnasih Feranindhya Agiananda Finny Fitry Yani Marinda Asiah Nuril Haya Trevino Aristaskus Pakasi Tom Wingfield Codeveloping a community-based, peer-led psychosocial support intervention to reduce stigma and depression among people with tuberculosis and their households in Indonesia: a mixed-methods participatory action study npj Primary Care Respiratory Medicine |
| title | Codeveloping a community-based, peer-led psychosocial support intervention to reduce stigma and depression among people with tuberculosis and their households in Indonesia: a mixed-methods participatory action study |
| title_full | Codeveloping a community-based, peer-led psychosocial support intervention to reduce stigma and depression among people with tuberculosis and their households in Indonesia: a mixed-methods participatory action study |
| title_fullStr | Codeveloping a community-based, peer-led psychosocial support intervention to reduce stigma and depression among people with tuberculosis and their households in Indonesia: a mixed-methods participatory action study |
| title_full_unstemmed | Codeveloping a community-based, peer-led psychosocial support intervention to reduce stigma and depression among people with tuberculosis and their households in Indonesia: a mixed-methods participatory action study |
| title_short | Codeveloping a community-based, peer-led psychosocial support intervention to reduce stigma and depression among people with tuberculosis and their households in Indonesia: a mixed-methods participatory action study |
| title_sort | codeveloping a community based peer led psychosocial support intervention to reduce stigma and depression among people with tuberculosis and their households in indonesia a mixed methods participatory action study |
| url | https://doi.org/10.1038/s41533-024-00407-5 |
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