Adolescent and Adult Children of Parents with Parkinson's Disease: Incorporating Their Needs in Clinical Guidelines
Purpose. To compare the quality of life (QoL) and emotional well-being of the offspring of parents with Parkinson's disease (PD) and multiple sclerosis (MS) and to consider results in light of current UK clinical guidelines. Methods. 143 adolescent and adult children of parents with PD and MS w...
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| Format: | Article |
| Language: | English |
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Wiley
2011-01-01
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| Series: | Parkinson's Disease |
| Online Access: | http://dx.doi.org/10.4061/2011/951874 |
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| _version_ | 1832559856658153472 |
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| author | David Morley Caroline Selai Anette Schrag Marjan Jahanshahi Alan Thompson |
| author_facet | David Morley Caroline Selai Anette Schrag Marjan Jahanshahi Alan Thompson |
| author_sort | David Morley |
| collection | DOAJ |
| description | Purpose. To compare the quality of life (QoL) and emotional well-being of the offspring of parents with Parkinson's disease (PD) and multiple sclerosis (MS) and to consider results in light of current UK clinical guidelines. Methods. 143 adolescent and adult children of parents with PD and MS were postally administered the Parental Illness Impact Scale and a measure of emotional well-being. Results. Minimal differences were observed between the two groups in both QoL and emotional well-being. Levels of mild to moderate depression were substantially greater than those of the general population. Conclusions. The nonsignificant differences reported indicate a similar degree of impact across the two conditions assessed. A significant body of evidence demonstrates the considerable impact of parental MS, with the needs of children being acknowledged in current clinical guidelines. There is a need to similarly acknowledge the potential impact of parental Parkinson's in UK guidelines for PD. |
| format | Article |
| id | doaj-art-bc42ea6c54d949678528029629a8a8d8 |
| institution | Kabale University |
| issn | 2042-0080 |
| language | English |
| publishDate | 2011-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | Parkinson's Disease |
| spelling | doaj-art-bc42ea6c54d949678528029629a8a8d82025-02-03T01:29:10ZengWileyParkinson's Disease2042-00802011-01-01201110.4061/2011/951874951874Adolescent and Adult Children of Parents with Parkinson's Disease: Incorporating Their Needs in Clinical GuidelinesDavid Morley0Caroline Selai1Anette Schrag2Marjan Jahanshahi3Alan Thompson4Institute of Neurology, University College London, Queen Square, London WC1N 3BG, UKInstitute of Neurology, University College London, Queen Square, London WC1N 3BG, UKUCL Medical School, University College London, London NW3 2PF, UKInstitute of Neurology, University College London, Queen Square, London WC1N 3BG, UKInstitute of Neurology, University College London, Queen Square, London WC1N 3BG, UKPurpose. To compare the quality of life (QoL) and emotional well-being of the offspring of parents with Parkinson's disease (PD) and multiple sclerosis (MS) and to consider results in light of current UK clinical guidelines. Methods. 143 adolescent and adult children of parents with PD and MS were postally administered the Parental Illness Impact Scale and a measure of emotional well-being. Results. Minimal differences were observed between the two groups in both QoL and emotional well-being. Levels of mild to moderate depression were substantially greater than those of the general population. Conclusions. The nonsignificant differences reported indicate a similar degree of impact across the two conditions assessed. A significant body of evidence demonstrates the considerable impact of parental MS, with the needs of children being acknowledged in current clinical guidelines. There is a need to similarly acknowledge the potential impact of parental Parkinson's in UK guidelines for PD.http://dx.doi.org/10.4061/2011/951874 |
| spellingShingle | David Morley Caroline Selai Anette Schrag Marjan Jahanshahi Alan Thompson Adolescent and Adult Children of Parents with Parkinson's Disease: Incorporating Their Needs in Clinical Guidelines Parkinson's Disease |
| title | Adolescent and Adult Children of Parents with Parkinson's Disease: Incorporating Their Needs in Clinical Guidelines |
| title_full | Adolescent and Adult Children of Parents with Parkinson's Disease: Incorporating Their Needs in Clinical Guidelines |
| title_fullStr | Adolescent and Adult Children of Parents with Parkinson's Disease: Incorporating Their Needs in Clinical Guidelines |
| title_full_unstemmed | Adolescent and Adult Children of Parents with Parkinson's Disease: Incorporating Their Needs in Clinical Guidelines |
| title_short | Adolescent and Adult Children of Parents with Parkinson's Disease: Incorporating Their Needs in Clinical Guidelines |
| title_sort | adolescent and adult children of parents with parkinson s disease incorporating their needs in clinical guidelines |
| url | http://dx.doi.org/10.4061/2011/951874 |
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