Living, Caring, Learning - Thinking outside the box to solve care challenges in a rare blood disorder

A specialist nurse for over 20 years, Sandra reflects on her experience of finding ways to deliver effective care for a young girl with a very rare clotting disorder. Symptoms of the girl’s disorder were evident from birth and through an emergency use request Sandra and the care team enabled her fam...

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Bibliographic Details
Main Author: Hibner Sandra
Format: Article
Language:English
Published: Sciendo 2024-02-01
Series:The Journal of Haemophilia Practice
Subjects:
Online Access:https://doi.org/10.2478/jhp-2024-0001
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