Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative study
Objectives The aim of the study was to understand the experiences of living with multiple chronic conditions (MCC) from the perspective of community-living older adults with MCC.Design A qualitative study using an interpretive description approach.Setting Participants were recruited from southern On...
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| Format: | Article |
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BMJ Publishing Group
2019-03-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/9/3/e023345.full |
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| author | Sharon Kaasalainen Jenny Ploeg Marta Canesi Kimberly D Fraser Carrie McAiney Maureen Markle-Reid Sinead Dufour Lisa Garland Baird Tracey Chambers |
| author_facet | Sharon Kaasalainen Jenny Ploeg Marta Canesi Kimberly D Fraser Carrie McAiney Maureen Markle-Reid Sinead Dufour Lisa Garland Baird Tracey Chambers |
| author_sort | Sharon Kaasalainen |
| collection | DOAJ |
| description | Objectives The aim of the study was to understand the experiences of living with multiple chronic conditions (MCC) from the perspective of community-living older adults with MCC.Design A qualitative study using an interpretive description approach.Setting Participants were recruited from southern Ontario, Canada.Participants 21 community-living, older adults (≥65 years) with an average of 7.4 chronic conditions including one of diabetes, dementia or stroke.Methods Data were collected through digitally-recorded, in-depth, semi-structured in-person interviews. Interview transcripts were analysed and coded using Thorne’s interpretive description approach.Results Five themes were identified representing older adults' experiences of living with MCC: (a) trying to stay healthy while living with MCC, (b) depending on family caregivers for support with just about everything, (c) paying the high costs of living with MCC, (d) making healthcare decisions by proxy and (e) receiving healthcare services that do not address the complex needs of persons living with MCC.Conclusions The experience of living with MCC in the community was complex and multi-faceted. The need for a person-centred and family-centred approach to care in the community, which includes the coordination of health and social services that are tailored to the needs of older adults and their informal caregivers, was underscored. Such an approach would facilitate improved information-sharing and discussion of care management options between health professionals and their patients, enable older adults with MCC to actively engage in priority-setting and decision-making and may result in improved health and quality of life for older adults with MCC. |
| format | Article |
| id | doaj-art-b843034f981c4b3496561ecbe247c533 |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2019-03-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-b843034f981c4b3496561ecbe247c5332025-02-04T13:00:14ZengBMJ Publishing GroupBMJ Open2044-60552019-03-019310.1136/bmjopen-2018-023345Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative studySharon Kaasalainen0Jenny Ploeg1Marta Canesi2Kimberly D Fraser3Carrie McAiney4Maureen Markle-Reid5Sinead Dufour6Lisa Garland Baird7Tracey Chambers85 School of Nursing, McMaster University, Hamilton, Ontario, CanadaSchool of Nursing, McMaster University, Hamilton, Ontario, Canada2 School of Nursing, Universita degli Studi di Milano-Bicocca, Milano, Lombardia, Italy3 Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada4 Department of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, Ontario, Canada2 School of Nursing, Aging, Community and Health Research Unit, McMaster University Faculty of Health Sciences, Hamilton, Ontario, Canada11 McMaster University Faculty of Health Sciences, Hamilton, southeastern Ontario, Canada3 Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada2 School of Nursing, Aging, Community and Health Research Unit, McMaster University Faculty of Health Sciences, Hamilton, Ontario, CanadaObjectives The aim of the study was to understand the experiences of living with multiple chronic conditions (MCC) from the perspective of community-living older adults with MCC.Design A qualitative study using an interpretive description approach.Setting Participants were recruited from southern Ontario, Canada.Participants 21 community-living, older adults (≥65 years) with an average of 7.4 chronic conditions including one of diabetes, dementia or stroke.Methods Data were collected through digitally-recorded, in-depth, semi-structured in-person interviews. Interview transcripts were analysed and coded using Thorne’s interpretive description approach.Results Five themes were identified representing older adults' experiences of living with MCC: (a) trying to stay healthy while living with MCC, (b) depending on family caregivers for support with just about everything, (c) paying the high costs of living with MCC, (d) making healthcare decisions by proxy and (e) receiving healthcare services that do not address the complex needs of persons living with MCC.Conclusions The experience of living with MCC in the community was complex and multi-faceted. The need for a person-centred and family-centred approach to care in the community, which includes the coordination of health and social services that are tailored to the needs of older adults and their informal caregivers, was underscored. Such an approach would facilitate improved information-sharing and discussion of care management options between health professionals and their patients, enable older adults with MCC to actively engage in priority-setting and decision-making and may result in improved health and quality of life for older adults with MCC.https://bmjopen.bmj.com/content/9/3/e023345.full |
| spellingShingle | Sharon Kaasalainen Jenny Ploeg Marta Canesi Kimberly D Fraser Carrie McAiney Maureen Markle-Reid Sinead Dufour Lisa Garland Baird Tracey Chambers Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative study BMJ Open |
| title | Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative study |
| title_full | Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative study |
| title_fullStr | Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative study |
| title_full_unstemmed | Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative study |
| title_short | Experiences of community-dwelling older adults living with multiple chronic conditions: a qualitative study |
| title_sort | experiences of community dwelling older adults living with multiple chronic conditions a qualitative study |
| url | https://bmjopen.bmj.com/content/9/3/e023345.full |
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