Chronic pelvic pain treatment understanding what matters: a social media survey
Chronic pelvic pain (CPP) is a debilitating condition that reduces quality of life (QoL). In the United Kingdom, there is currently no standardised treatment pathway for women suffering from CPP. Therefore, it is essential to understand individuals’ concerns regarding CPP, their treatment experience...
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| Format: | Article |
| Language: | English |
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Bioscientifica
2025-01-01
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| Series: | Reproduction and Fertility |
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| Online Access: | https://raf.bioscientifica.com/view/journals/raf/6/1/RAF-24-0038.xml |
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| author | Selina Johnson Emma Evans Dharani K Hapangama |
| author_facet | Selina Johnson Emma Evans Dharani K Hapangama |
| author_sort | Selina Johnson |
| collection | DOAJ |
| description | Chronic pelvic pain (CPP) is a debilitating condition that reduces quality of life (QoL). In the United Kingdom, there is currently no standardised treatment pathway for women suffering from CPP. Therefore, it is essential to understand individuals’ concerns regarding CPP, their treatment experiences and what they seek from treatment. To do this, we conducted a two-month social media survey focused on the UK population to explore treatment experiences and identify the factors that people consider important to managing their condition. Of 1,279 respondents, women who completed ≥50% of the questions were included (n = 864; 68%). Results suggest that many women are living with moderate-intensity CPP and experience symptoms for 6 years (average) before receiving a diagnosis. Initially, most women see general practitioners and gynaecologists (90%), with varied care beyond these providers. Using an adapted STarT Back tool, 85% of respondents were classified as medium–high risk of poor outcomes based on physical, psychosocial, and psychological risk. Thematic analysis identified that people desire treatment validation/understanding, self-management, and support to manage pain and QoL. Notably, only 26% of respondents report satisfaction with their healthcare experience, suggesting that current treatment approaches do not address these themes. In conclusion, results suggest that treatment should focus on quality-of-life improvement to enhance CPP treatment outcomes and satisfaction. Findings endorse the need for improved and standardised treatment approaches that address patients’ needs. |
| format | Article |
| id | doaj-art-b7976bc4ae86498a95500f95e75100f4 |
| institution | Kabale University |
| issn | 2633-8386 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Bioscientifica |
| record_format | Article |
| series | Reproduction and Fertility |
| spelling | doaj-art-b7976bc4ae86498a95500f95e75100f42025-01-25T15:01:32ZengBioscientificaReproduction and Fertility2633-83862025-01-016110.1530/RAF-24-00381Chronic pelvic pain treatment understanding what matters: a social media surveySelina Johnson0Emma Evans1Dharani K Hapangama2Walton Centre NHS Foundation Trust, Liverpool, UKNuffield Department of Women’s and Reproductive Health, University of Oxford, Oxford, UKDepartment of Women’s and Children’s Health, Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool, UKChronic pelvic pain (CPP) is a debilitating condition that reduces quality of life (QoL). In the United Kingdom, there is currently no standardised treatment pathway for women suffering from CPP. Therefore, it is essential to understand individuals’ concerns regarding CPP, their treatment experiences and what they seek from treatment. To do this, we conducted a two-month social media survey focused on the UK population to explore treatment experiences and identify the factors that people consider important to managing their condition. Of 1,279 respondents, women who completed ≥50% of the questions were included (n = 864; 68%). Results suggest that many women are living with moderate-intensity CPP and experience symptoms for 6 years (average) before receiving a diagnosis. Initially, most women see general practitioners and gynaecologists (90%), with varied care beyond these providers. Using an adapted STarT Back tool, 85% of respondents were classified as medium–high risk of poor outcomes based on physical, psychosocial, and psychological risk. Thematic analysis identified that people desire treatment validation/understanding, self-management, and support to manage pain and QoL. Notably, only 26% of respondents report satisfaction with their healthcare experience, suggesting that current treatment approaches do not address these themes. In conclusion, results suggest that treatment should focus on quality-of-life improvement to enhance CPP treatment outcomes and satisfaction. Findings endorse the need for improved and standardised treatment approaches that address patients’ needs.https://raf.bioscientifica.com/view/journals/raf/6/1/RAF-24-0038.xmlpelvic paintreatmentquestionnairesurveysocial mediaunderstandingchronic |
| spellingShingle | Selina Johnson Emma Evans Dharani K Hapangama Chronic pelvic pain treatment understanding what matters: a social media survey Reproduction and Fertility pelvic pain treatment questionnaire survey social media understanding chronic |
| title | Chronic pelvic pain treatment understanding what matters: a social media survey |
| title_full | Chronic pelvic pain treatment understanding what matters: a social media survey |
| title_fullStr | Chronic pelvic pain treatment understanding what matters: a social media survey |
| title_full_unstemmed | Chronic pelvic pain treatment understanding what matters: a social media survey |
| title_short | Chronic pelvic pain treatment understanding what matters: a social media survey |
| title_sort | chronic pelvic pain treatment understanding what matters a social media survey |
| topic | pelvic pain treatment questionnaire survey social media understanding chronic |
| url | https://raf.bioscientifica.com/view/journals/raf/6/1/RAF-24-0038.xml |
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