Commercialisation fears and preferred forms of governance: a mixed methods investigation to identify a trusted Australian genomics repository

Commercialisation fears and preferred forms of governance: a mixed methods investigation to identify a trusted Australian genomics repository

This study aimed to identify operating conditions and governance mechanisms that would help to facilitate trust in, and willingness to donate to, a hypothetical Australian national genomic repository for health research where commercial use of data is permitted. Semi-structured telephone interviews...

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Bibliographic Details
Main Authors: Brad Elphinstone, Jarrod Walshe, Dianne Nicol, Mark Taylor
Format: Article
Language:English
Published: Frontiers Media S.A. 2024-12-01
Series:Frontiers in Public Health
Subjects:
biobank
genomic
governance
trust
commercialization
Online Access:https://www.frontiersin.org/articles/10.3389/fpubh.2024.1508261/full
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