Neuropsychiatric symptoms in patients with dementia and the longitudinal costs of informal care in the Cache County population

Abstract Introduction Severity of dementia and neuropsychiatric symptoms contribute to increasing informal care costs. We examined which neuropsychiatric symptoms subdomains (NPS‐SD) were associated with informal costs in a population‐based sample. Methods Dementia progression and informal costs (20...

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Main Authors: Gail B. Rattinger, Chelsea L. Sanders, Elizabeth Vernon, Sarah Schwartz, Stephanie Behrens, Constantine G. Lyketsos, JoAnn T. Tschanz
Format: Article
Language:English
Published: Wiley 2019-01-01
Series:Alzheimer’s & Dementia: Translational Research & Clinical Interventions
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Online Access:https://doi.org/10.1016/j.trci.2019.01.002
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author Gail B. Rattinger
Chelsea L. Sanders
Elizabeth Vernon
Sarah Schwartz
Stephanie Behrens
Constantine G. Lyketsos
JoAnn T. Tschanz
author_facet Gail B. Rattinger
Chelsea L. Sanders
Elizabeth Vernon
Sarah Schwartz
Stephanie Behrens
Constantine G. Lyketsos
JoAnn T. Tschanz
author_sort Gail B. Rattinger
collection DOAJ
description Abstract Introduction Severity of dementia and neuropsychiatric symptoms contribute to increasing informal care costs. We examined which neuropsychiatric symptoms subdomains (NPS‐SD) were associated with informal costs in a population‐based sample. Methods Dementia progression and informal costs (2015 dollars) were estimated from the Cache County Dementia Progression Study. Overall NPS and specific NPS‐SD were assessed with the Neuropsychiatric Inventory. Generalized Estimating Equations (GEE with gamma‐distribution/log‐link) modeled the relationship between NPS‐SDs and informal cost trajectories. Results Two hundred eighty participants (52.1% female; age M = 85.67, SD = 5.60) exhibited an adjusted cost increase of 5.6% (P = .005), 6.4% (P < .001), 7.6% (P = .030), and 13% (P = .024) for every increasing Neuropsychiatric Inventory unit in psychosis‐SD, affective‐SD, agitation/aggression‐SD, and apathy‐SD, respectively. An increase in each unit of apathy was associated with a 2% annual decrease in costs (P = .040). Discussion We extend our prior work on informal costs and dementia severity by identifying NPS‐SD associated with informal costs. Interventions targeting NPS‐SD may lower informal costs.
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spelling doaj-art-b4e0dcbe7ed045bebcf4e678cbca70282025-08-20T02:36:54ZengWileyAlzheimer’s & Dementia: Translational Research & Clinical Interventions2352-87372019-01-0151818810.1016/j.trci.2019.01.002Neuropsychiatric symptoms in patients with dementia and the longitudinal costs of informal care in the Cache County populationGail B. Rattinger0Chelsea L. Sanders1Elizabeth Vernon2Sarah Schwartz3Stephanie Behrens4Constantine G. Lyketsos5JoAnn T. Tschanz6School of Pharmacy and Pharmaceutical Sciences, Binghamton University State University of New YorkNew YorkNYUSADepartment of PsychologyUtah State UniversityLoganUTUSADepartment of PsychologyUtah State UniversityLoganUTUSADepartment of Mathematics and StatisticsUtah State UniversityLoganUTUSADepartment of PsychologyUtah State UniversityLoganUTUSAJohns Hopkins Bayview Medical CenterBaltimoreMDUSADepartment of PsychologyUtah State UniversityLoganUTUSAAbstract Introduction Severity of dementia and neuropsychiatric symptoms contribute to increasing informal care costs. We examined which neuropsychiatric symptoms subdomains (NPS‐SD) were associated with informal costs in a population‐based sample. Methods Dementia progression and informal costs (2015 dollars) were estimated from the Cache County Dementia Progression Study. Overall NPS and specific NPS‐SD were assessed with the Neuropsychiatric Inventory. Generalized Estimating Equations (GEE with gamma‐distribution/log‐link) modeled the relationship between NPS‐SDs and informal cost trajectories. Results Two hundred eighty participants (52.1% female; age M = 85.67, SD = 5.60) exhibited an adjusted cost increase of 5.6% (P = .005), 6.4% (P < .001), 7.6% (P = .030), and 13% (P = .024) for every increasing Neuropsychiatric Inventory unit in psychosis‐SD, affective‐SD, agitation/aggression‐SD, and apathy‐SD, respectively. An increase in each unit of apathy was associated with a 2% annual decrease in costs (P = .040). Discussion We extend our prior work on informal costs and dementia severity by identifying NPS‐SD associated with informal costs. Interventions targeting NPS‐SD may lower informal costs.https://doi.org/10.1016/j.trci.2019.01.002Informal costs of dementiaNeuropsychiatric symptomsDementiaAlzheimer's disease
spellingShingle Gail B. Rattinger
Chelsea L. Sanders
Elizabeth Vernon
Sarah Schwartz
Stephanie Behrens
Constantine G. Lyketsos
JoAnn T. Tschanz
Neuropsychiatric symptoms in patients with dementia and the longitudinal costs of informal care in the Cache County population
Alzheimer’s & Dementia: Translational Research & Clinical Interventions
Informal costs of dementia
Neuropsychiatric symptoms
Dementia
Alzheimer's disease
title Neuropsychiatric symptoms in patients with dementia and the longitudinal costs of informal care in the Cache County population
title_full Neuropsychiatric symptoms in patients with dementia and the longitudinal costs of informal care in the Cache County population
title_fullStr Neuropsychiatric symptoms in patients with dementia and the longitudinal costs of informal care in the Cache County population
title_full_unstemmed Neuropsychiatric symptoms in patients with dementia and the longitudinal costs of informal care in the Cache County population
title_short Neuropsychiatric symptoms in patients with dementia and the longitudinal costs of informal care in the Cache County population
title_sort neuropsychiatric symptoms in patients with dementia and the longitudinal costs of informal care in the cache county population
topic Informal costs of dementia
Neuropsychiatric symptoms
Dementia
Alzheimer's disease
url https://doi.org/10.1016/j.trci.2019.01.002
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